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 Haldol alert 
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Haldol alert
Actually, you might want to check which kind of markers first. My mother used to be an art teacher and I recall her commenting after her retirement that the permanent markers she used to let the kids use were later banned from art rooms due to some toxicity issue. I'm really not sure that just any marker should be used on the skin without checking it out first. I also know that surgeons make marks on patients' skin, so there must be something that is safe, but it might not be good to use your garden variety "Sharpie."

Julianne


Mon Feb 07, 2011 6:48 pm
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Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: Haldol alert
My Charlie had lithotripsy a couple of days ago for a giant kidney stone. They give general anesthesia. While they were prepping him, I gave them a document to take to the recovery room nurse--I didn't want it to be given too much in advance. It was the LBDA Emergency Room article about anti-psychotics. The cover sheet was in 18 pt. type and said (nicely formatted for impact):

ALLERGY ALERT

CHARLES SHEFFIELD HAS BEEN DIAGNOSED WITH LEWY BODY DEMENTIA

HE IS ALLERGIC TO TO TYPICAL ANTI-PSYCHOTICS SUCH AS HALDOL
DO NOT ADMINISTER!

ATTACHED IS A PUBLICATION OF THE LEWY BODY DEMENTIA ASSOCIATION ABOUT SAFE ATYPICAL ANTI-PSYCHOTICS.

HE WILL AWAKEN FROM ANESTHESIA CONFUSED AND PERHAPS SCARED.
ALTHOUGH UNLIKELY, HE COULD BE AGITATED OR WORSE.

signed and dated by me

The recovery room nurse came out and said "this is great. I wish more patients would do this. We don't always know."


Sat Mar 26, 2011 10:40 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3430
Location: Vermont
Post Re: Haldol alert
Good job, Gail! Great idea for those facing procedures! Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Mar 26, 2011 10:41 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Haldol alert
Well done! :P How's he doing now?

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sat Mar 26, 2011 11:04 pm
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Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: Haldol alert
He's doing fine, thanks. No need for the anti-psychotics. I was wondering if the general anesthesia would leave him on a lower level of functioning, but it seems the same.


Sat Mar 26, 2011 11:13 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Haldol alert
Gail -
Good that you were so prepared!
Robin


Sat Mar 26, 2011 11:26 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Haldol alert
Do you happen to know what was used?

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sat Mar 26, 2011 11:27 pm
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Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: Haldol alert
You mean what anesthesia? Didn't think to ask. If I can remember to, I'll find out. Maybe some are better for LBD or any dementia than others. ???


Sun Mar 27, 2011 12:50 am
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 758
Location: LA
Post Re: Haldol alert
Gail, some meds are usually given before surgery to calm the patient. Lorazepam [Ativan] is administered before anesthesia. among others. So much to think about.

Yes, a hospital is almost a mine field for LBD loved ones. A wonderful place after learning how to navigate through.

Dorthea


Sun Mar 27, 2011 1:42 am
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Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: Haldol alert
This cool hospital subsitutes professional massage for pre-anesthesia calming drugs.


Sun Mar 27, 2011 1:49 am
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 758
Location: LA
Post Re: Haldol alert
Sounds good to me. DrP


Sun Mar 27, 2011 2:07 am
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Haldol alert
Good for you, Gail! Great job!

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Sun Mar 27, 2011 9:26 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Haldol alert
Really good thinking on your part and I am glad all went well!

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Irene Selak


Sun Mar 27, 2011 3:26 pm
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Joined: Wed Mar 02, 2011 1:11 pm
Posts: 27
Location: Michigan
Post Re: Haldol alert
Interesting information. My husband had a few episodes a year ago for which the doctor prescribed haldol. I knew it was on the list of meds he should avoid, but the doctor told me the warning was based on a study done with a handful of old men, and he didn't put much stock in it. I gave it once with no bad effect, but decided it was too risky to do again. Thank goodness there hasn't been further need for anything.

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Wife of a 60-year-old LBD patient who was diagnosed in 2003.


Sun Mar 27, 2011 9:32 pm
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