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Julianne
Joined: Sun Aug 29, 2010 5:46 pm
Posts: 603
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 Re: Haldol alert Actually, you might want to check which kind of markers first. My mother used to be an art teacher and I recall her commenting after her retirement that the permanent markers she used to let the kids use were later banned from art rooms due to some toxicity issue. I'm really not sure that just any marker should be used on the skin without checking it out first. I also know that surgeons make marks on patients' skin, so there must be something that is safe, but it might not be good to use your garden variety "Sharpie."
Julianne
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| Mon Feb 07, 2011 6:48 pm |
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gailshef
Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
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Re: Haldol alert My Charlie had lithotripsy a couple of days ago for a giant kidney stone. They give general anesthesia. While they were prepping him, I gave them a document to take to the recovery room nurse--I didn't want it to be given too much in advance. It was the LBDA Emergency Room article about anti-psychotics. The cover sheet was in 18 pt. type and said (nicely formatted for impact):
ALLERGY ALERT
CHARLES SHEFFIELD HAS BEEN DIAGNOSED WITH LEWY BODY DEMENTIA
HE IS ALLERGIC TO TO TYPICAL ANTI-PSYCHOTICS SUCH AS HALDOL
DO NOT ADMINISTER!
ATTACHED IS A PUBLICATION OF THE LEWY BODY DEMENTIA ASSOCIATION ABOUT SAFE ATYPICAL ANTI-PSYCHOTICS.
HE WILL AWAKEN FROM ANESTHESIA CONFUSED AND PERHAPS SCARED.
ALTHOUGH UNLIKELY, HE COULD BE AGITATED OR WORSE.
signed and dated by me
The recovery room nurse came out and said "this is great. I wish more patients would do this. We don't always know."
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| Sat Mar 26, 2011 10:40 pm |
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LTCVT
Joined: Fri Jan 15, 2010 9:33 pm
Posts: 2841
Location: Vermont
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Re: Haldol alert Good job, Gail! Great idea for those facing procedures! Lynn
_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.
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| Sat Mar 26, 2011 10:41 pm |
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mockturtle
Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3020
Location: WA
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Re: Haldol alert Well done!  How's he doing now?
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Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
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| Sat Mar 26, 2011 11:04 pm |
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gailshef
Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
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Re: Haldol alert He's doing fine, thanks. No need for the anti-psychotics. I was wondering if the general anesthesia would leave him on a lower level of functioning, but it seems the same.
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| Sat Mar 26, 2011 11:13 pm |
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robin
Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Re: Haldol alert Gail -
Good that you were so prepared!
Robin
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| Sat Mar 26, 2011 11:26 pm |
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mockturtle
Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3020
Location: WA
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Re: Haldol alert Do you happen to know what was used?
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Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
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| Sat Mar 26, 2011 11:27 pm |
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gailshef
Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
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Re: Haldol alert You mean what anesthesia? Didn't think to ask. If I can remember to, I'll find out. Maybe some are better for LBD or any dementia than others. ???
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| Sun Mar 27, 2011 12:50 am |
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dorthea
Joined: Sat Oct 06, 2007 4:28 pm
Posts: 670
Location: LA
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Re: Haldol alert Gail, some meds are usually given before surgery to calm the patient. Lorazepam [Ativan] is administered before anesthesia. among others. So much to think about.
Yes, a hospital is almost a mine field for LBD loved ones. A wonderful place after learning how to navigate through.
Dorthea
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| Sun Mar 27, 2011 1:42 am |
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gailshef
Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
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Re: Haldol alert This cool hospital subsitutes professional massage for pre-anesthesia calming drugs.
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| Sun Mar 27, 2011 1:49 am |
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dorthea
Joined: Sat Oct 06, 2007 4:28 pm
Posts: 670
Location: LA
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Re: Haldol alert Sounds good to me. DrP
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| Sun Mar 27, 2011 2:07 am |
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JeanneG
Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1037
Location: Minnesota
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Re: Haldol alert Good for you, Gail! Great job!
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Jeanne, 66 caring for husband Coy, 85. RBD for 30+ years; LDB since 2003, Coy still at home, in early stage
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| Sun Mar 27, 2011 9:26 am |
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irene selak
Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1950
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Re: Haldol alert Really good thinking on your part and I am glad all went well!
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Some forum members may be intense in sharing what they have found to be useful/recommend certain resources.While meaning well, some comments may seem rather strong. Please contact me with any concerns.
Irene Selak
LBDA Forum Moderator
http://www.lbda.org
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| Sun Mar 27, 2011 3:26 pm |
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Debry
Joined: Wed Mar 02, 2011 1:11 pm
Posts: 27
Location: Michigan
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Re: Haldol alert Interesting information. My husband had a few episodes a year ago for which the doctor prescribed haldol. I knew it was on the list of meds he should avoid, but the doctor told me the warning was based on a study done with a handful of old men, and he didn't put much stock in it. I gave it once with no bad effect, but decided it was too risky to do again. Thank goodness there hasn't been further need for anything.
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Wife of a 60-year-old LBD patient who was diagnosed in 2003.
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| Sun Mar 27, 2011 9:32 pm |
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