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 Difficulty with Nursing Home Staff 
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Difficulty with Nursing Home Staff
Lynn, it reminds me of when Derek was in the ICU in 1985 with a tracheostomy and feeding tube and he coughed a blood clot as big as a golf ball out of his trach and into my hand. I had to go searching for someone to help--I was afraid he would choke to death or bleed out. I was afraid to leave so I slept on the floor.

He was in ICU again in January 2009 and it was even worse for a 'don't care' attitude by the staff. You don't dare leave them. It's scary!

Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.

Mon Dec 06, 2010 11:40 pm

Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Difficulty with Nursing Home Staff
The hospital is the last resort, a few times I was questioning myself if it was in Frank's best interest to "just" watch to see if he comes out of it, whatever "it" is at that time. Last night he fell asleep, at 6:00, on the couch, I tried several times to wake him up before I went to bed and again at 1:00 and again when I got up at 4:30, he just grunts. There were 2 other occasions when this happened and it went on for so long I did call 911, this time I waiting, he's breathing and isn't in distress.

My oncologist told me that she and her husband agreed that the hospital is not a safe place to be. I think of that often, but there are times that we don't have a choice.

All the best to everyone on this journey.

Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.

Tue Dec 07, 2010 7:50 am

Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Difficulty with Nursing Home Staff - Gerry
On the couch sounds better than on the floor..... and grunting isn't a bad sign either. Let's hope he's just getting the sleep he needs.

I share your concern, though. And I'm sorry this development is not allowing you to sleep through the night, Gerry. (I had a rough night last night too. I'm hoping to catch up with a nap this afternoon.)

I'm sending hugs.

Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011

Tue Dec 07, 2010 9:17 am
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