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 Atropine 
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Atropine
Frank saw his psychiatrist today and we're going to try Atropine to see if it helps with his drooling. Do any of your LO's take this and if so, what have they experienced for side effects. Our last resort for the drooling.
Thank you, Gerry

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Mon Nov 22, 2010 5:12 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Atropine
Many in our local support group use atropine eye drops. They are placed under the tongue for treatment of drooling. Usually this medication either doesn't work or works with no unwanted side effects. We haven't seen any side effects of confusion from this medication. I hope it works for Frank.


Mon Nov 22, 2010 6:02 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Atropine
Robin, Thank you, the drug store had to order it so we'll start tomorrow and hope for the best.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Mon Nov 22, 2010 10:38 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Atropine
I'm keeping my fingers crossed...This is the 4th day of taking Sal-tropine, (Atropine), and it seems to work very well for 8-10 hrs. It's like a new life, no drool puddles all over the house, no slimmy drool dripping out of my hair, while helping him get pulled back to gether, NO DROOL!!!! This was definately something to be thankful for.
Gerry

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Sat Nov 27, 2010 10:21 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Atropine
I'm knocking on all the wood in sight....


Sat Nov 27, 2010 1:56 pm
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 758
Location: LA
Post Re: Atropine
Wonderful blessing!

Dorthea

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"See this lady she's 85 but she's nice", This is the way my husband, Mr B., introduced me in 2006 to the people only he knew. Death due to pneumonia. Lewy Body Dementia diagnosed post mortem at Mayo Clinic in Jacksonville Florida.


Sat Nov 27, 2010 3:02 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Atropine
Gerry, what great news! If I understand you correctly, these are eye drops that you use in the mouth? Where did you finally find some? I can have Derek's PCP order some and we can try it, as well. He's been drooling for years, some days worse than others but most of the time, continuous. He just forgets to swallow, plus he's always bent over.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sat Nov 27, 2010 5:09 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Atropine
Pat, This is a pill form, "Sal-Tropine 0.4mg tablet hope" . I have no idea what the "hope" means, unless they were hoping along with me :lol: Frank's psychiatrist gave me the prescription and said they may need to order them, they did but they were in the next day. End of day 4, Frank's brother and wife, from Sycracuse were here for lunch and Frank was drool free and was comfortable trying to join in with the conversation. Before he knew he'd drool if he opened his mouth. I've been trying to pay attention and so far it seems to last for 8-10 hrs.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Sat Nov 27, 2010 6:12 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3432
Location: Vermont
Post Re: Atropine
So glad you found something helpful Gerry. These "little things" can mean so much - if he now feels more comfortable talking that is great! Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Nov 27, 2010 6:19 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Atropine
Gerry,
So glad this is working out for Frank and he can have a little more pleasure with things!

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Irene Selak


Sat Nov 27, 2010 6:46 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Atropine
So much for being drool free. For 4 days Frank didn't drool, I was in heaven and I think Frank felt the same, he was a bit like my old Frank. The 5th day he started to have "some" drool and was a little more confused, hallucinating and up and down all night. I've always wondered if I gave up too soon, so I wanted to give it more time. Day 6 and 7 the drool was worse and confusion and halluciation increased drastically. No point of taking the med if the drooling continued. He had no clue, I had to feed him most of his meals and he resisted with EVERYTHING. I didn't give him that med yesterday so hopefully he'll get back to what was his normal, which will include drooling. :cry:

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Thu Dec 02, 2010 7:57 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Atropine - Gerry
I'm so sad for both of you! :cry: We've not had the drool problem - but I know the frustration of trying some new med and realizing that the negative effects were worse than the original problem. Dale complained of always being sleepy and we tried Neuvigil. Big mistake. Someone described the result as being 'a wide awake drunk.' I wanted my old Dale back.

I do hope something works for you both.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Dec 02, 2010 8:09 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Atropine
Gerry, what a disappointment! How often our hopes are dashed in this disease and we make things even worse trying to bring quality of life to our LOs. We just can't win, can we??!!

I was thinking of using the drops but am also a bit concerned about any systemic effect that might occur. My daughter told me they are using the drops on her father [my ex] who is in Hospice care and it keeps him from gurgling. While drooling is a nuisance, my husband has been drooling for six or seven years now and we're kind of used to it by now. If anyone is using the atropine drops I'd like to know.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Dec 02, 2010 10:32 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Atropine
Oh, what a shame.


Thu Dec 02, 2010 11:10 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3432
Location: Vermont
Post Re: Atropine
That's too bad Gerry. My dad started drooling a little about a week before he died and they gave him a med for it. Don't remember what it was but they said it worked and he did not hallucinate from it. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Dec 04, 2010 12:17 am
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