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Gerry
Joined: Sun Oct 21, 2007 4:18 pm Posts: 835 Location: Acton, MA
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 Atropine
Frank saw his psychiatrist today and we're going to try Atropine to see if it helps with his drooling. Do any of your LO's take this and if so, what have they experienced for side effects. Our last resort for the drooling. Thank you, Gerry
_________________ Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.
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| Mon Nov 22, 2010 5:12 pm |
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robin
Joined: Fri Aug 11, 2006 1:46 pm Posts: 4811 Location: SF Bay Area (Northern CA)
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 Re: Atropine
Many in our local support group use atropine eye drops. They are placed under the tongue for treatment of drooling. Usually this medication either doesn't work or works with no unwanted side effects. We haven't seen any side effects of confusion from this medication. I hope it works for Frank.
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| Mon Nov 22, 2010 6:02 pm |
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Gerry
Joined: Sun Oct 21, 2007 4:18 pm Posts: 835 Location: Acton, MA
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 Re: Atropine
Robin, Thank you, the drug store had to order it so we'll start tomorrow and hope for the best.
_________________ Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.
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| Mon Nov 22, 2010 10:38 pm |
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Gerry
Joined: Sun Oct 21, 2007 4:18 pm Posts: 835 Location: Acton, MA
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 Re: Atropine
I'm keeping my fingers crossed...This is the 4th day of taking Sal-tropine, (Atropine), and it seems to work very well for 8-10 hrs. It's like a new life, no drool puddles all over the house, no slimmy drool dripping out of my hair, while helping him get pulled back to gether, NO DROOL!!!! This was definately something to be thankful for. Gerry
_________________ Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.
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| Sat Nov 27, 2010 10:21 am |
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robin
Joined: Fri Aug 11, 2006 1:46 pm Posts: 4811 Location: SF Bay Area (Northern CA)
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 Re: Atropine
I'm knocking on all the wood in sight....
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| Sat Nov 27, 2010 1:56 pm |
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dorthea
Joined: Sat Oct 06, 2007 4:28 pm Posts: 670 Location: LA
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 Re: Atropine
Wonderful blessing!
Dorthea
_________________ "See this lady, she's 85, but she's nice"
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| Sat Nov 27, 2010 3:02 pm |
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mockturtle
Joined: Wed Dec 30, 2009 1:46 pm Posts: 3008 Location: WA
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 Re: Atropine
Gerry, what great news! If I understand you correctly, these are eye drops that you use in the mouth? Where did you finally find some? I can have Derek's PCP order some and we can try it, as well. He's been drooling for years, some days worse than others but most of the time, continuous. He just forgets to swallow, plus he's always bent over.
_________________ Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
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| Sat Nov 27, 2010 5:09 pm |
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Gerry
Joined: Sun Oct 21, 2007 4:18 pm Posts: 835 Location: Acton, MA
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 Re: Atropine
Pat, This is a pill form, "Sal-Tropine 0.4mg tablet hope" . I have no idea what the "hope" means, unless they were hoping along with me  Frank's psychiatrist gave me the prescription and said they may need to order them, they did but they were in the next day. End of day 4, Frank's brother and wife, from Sycracuse were here for lunch and Frank was drool free and was comfortable trying to join in with the conversation. Before he knew he'd drool if he opened his mouth. I've been trying to pay attention and so far it seems to last for 8-10 hrs.
_________________ Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.
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| Sat Nov 27, 2010 6:12 pm |
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LTCVT
Joined: Fri Jan 15, 2010 9:33 pm Posts: 2824 Location: Vermont
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 Re: Atropine
So glad you found something helpful Gerry. These "little things" can mean so much - if he now feels more comfortable talking that is great! Lynn
_________________ Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.
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| Sat Nov 27, 2010 6:19 pm |
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irene selak
Joined: Sat Jan 03, 2009 2:59 pm Posts: 1941
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 Re: Atropine
Gerry, So glad this is working out for Frank and he can have a little more pleasure with things!
_________________ Some forum members may be intense in sharing what they have found to be useful/recommend certain resources.While meaning well, some comments may seem rather strong. Please contact me with any concerns. Irene Selak LBDA Forum Moderator http://www.lbda.org
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| Sat Nov 27, 2010 6:46 pm |
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Gerry
Joined: Sun Oct 21, 2007 4:18 pm Posts: 835 Location: Acton, MA
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 Re: Atropine
So much for being drool free. For 4 days Frank didn't drool, I was in heaven and I think Frank felt the same, he was a bit like my old Frank. The 5th day he started to have "some" drool and was a little more confused, hallucinating and up and down all night. I've always wondered if I gave up too soon, so I wanted to give it more time. Day 6 and 7 the drool was worse and confusion and halluciation increased drastically. No point of taking the med if the drooling continued. He had no clue, I had to feed him most of his meals and he resisted with EVERYTHING. I didn't give him that med yesterday so hopefully he'll get back to what was his normal, which will include drooling. 
_________________ Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.
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| Thu Dec 02, 2010 7:57 am |
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Leone
Joined: Wed Oct 28, 2009 11:53 am Posts: 969 Location: Ocala, FL
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 Re: Atropine - Gerry
I'm so sad for both of you! We've not had the drool problem - but I know the frustration of trying some new med and realizing that the negative effects were worse than the original problem. Dale complained of always being sleepy and we tried Neuvigil. Big mistake. Someone described the result as being 'a wide awake drunk.' I wanted my old Dale back.
I do hope something works for you both.
_________________ Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011
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| Thu Dec 02, 2010 8:09 am |
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mockturtle
Joined: Wed Dec 30, 2009 1:46 pm Posts: 3008 Location: WA
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 Re: Atropine
Gerry, what a disappointment! How often our hopes are dashed in this disease and we make things even worse trying to bring quality of life to our LOs. We just can't win, can we??!!
I was thinking of using the drops but am also a bit concerned about any systemic effect that might occur. My daughter told me they are using the drops on her father [my ex] who is in Hospice care and it keeps him from gurgling. While drooling is a nuisance, my husband has been drooling for six or seven years now and we're kind of used to it by now. If anyone is using the atropine drops I'd like to know.
_________________ Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
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| Thu Dec 02, 2010 10:32 am |
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robin
Joined: Fri Aug 11, 2006 1:46 pm Posts: 4811 Location: SF Bay Area (Northern CA)
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 Re: Atropine
Oh, what a shame.
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| Thu Dec 02, 2010 11:10 am |
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LTCVT
Joined: Fri Jan 15, 2010 9:33 pm Posts: 2824 Location: Vermont
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 Re: Atropine
That's too bad Gerry. My dad started drooling a little about a week before he died and they gave him a med for it. Don't remember what it was but they said it worked and he did not hallucinate from it. Lynn
_________________ Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.
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| Sat Dec 04, 2010 12:17 am |
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