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 Finally, some peace 
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3402
Location: Vermont
Post Re: Finally, some peace
My dad's namenda is finally being stepped down and discontinued. The CNP says "it's no longer needed since he is at end of life". I think he would have been much calmer all spring, summer and fall if he had not been on this at all, but I gave up the fight to have him taken off it a few months ago. I just could not deal with the 2 CNPs anymore. They weren't budging and going through the legal process was too daunting while I was exhausted and ill myself. Anyway, for those of you whose LOs are put on several meds at a time, I'd recommend asking the dr. to just add ONE at a time, monitor the patient's response, and make changes (if necessary) accordingly. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Nov 17, 2010 8:58 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Finally, some peace
You're so right, Lynn! This would seem elementary, wouldn't it?

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Wed Nov 17, 2010 9:13 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3402
Location: Vermont
Post Re: Finally, some peace
It does to many of us, but it made no sense to his psychiatrist or CNPs. They just pile them (several meds at a time) on, don't consult at all with the family, and then threaten to sue family members who try to get them off all these meds that we see have made them worse. :roll: Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Nov 18, 2010 8:53 pm
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Joined: Sun Sep 05, 2010 4:46 pm
Posts: 29
Post Re: Finally, some peace
LTCVT,
Glad something positive for U. I have found out at the ALF my Mom is at has a Dr. that makes rounds once a month. She is a geriatric,DO but one Dr. would be so simple. Serioulsy thinking of making a consult with her. this neuro,psych & then family Dr. is too much. Although I am getting some reaction re: her Aricept. But she had side effects before & he had her off of it now put her back on. Got it D/C for now but see him after Thnaksgiving & the nurse suggested trying Exelon patch. Again my Mom & myself see nothing helping her but making her feel sick,dizzy headaches etc. Mom just would like to take her thyroid pill & her Ativan. : )
Hmmm does she know something the dr. doesn't?


Fri Nov 19, 2010 2:39 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Finally, some peace
Galias: I wouldn't want to take a pill that made me 'sick, dizzy, and head achy,' either. I think your mom must know something the doctor doesn't..... FOR SURE.

I'm thinking that LESS is BETTER.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Fri Nov 19, 2010 9:06 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Finally, some peace
Patients have legal rights in this country. When I admitted a patient to home health services I had to read their 'Bill of Rights' to them and/or their POA and make sure they understood them. One of those rights allows them to refuse any treatment [even if a physician ordered it]. This applies equally to someone given legal health care power of attorney for the patient. Bear in mind that a physician may choose not continue to treat a patient who refuses his/her orders and that a facility may discharge a resident who refuses medical treatment that may make care more difficult.

If you and your mother observe that a certain medication is causing more problems than it solves, I would consider the option of discontinuing [or refusing] that medication. Before doing so, I would discuss it with the ordering physician and state your case, emphasizing quality of life. Good luck. I think Lynn ran into some practitioners who were unaware of these rights.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Fri Nov 19, 2010 10:46 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3402
Location: Vermont
Post Re: Finally, some peace
Even when I'd remind my dad's drs. and CNPs that I had the legal right to do what I thought was best for my dad, they'd either say they didn't care, or they would d/c his care, like Pat said. Only when I went to his atty. several times and told him what was going on, and reiterated to the the CNP that his atty. was well aware what was going on and I was ready to file a court order against HER, did she back down. She still didn't decrease or eliminate all the meds for a while, but she did take him off several like blood pressure meds, cholesterol, etc. just after our very heated discussion over the phone. Just about everything with her has had to be a fight. Hope the rest of you don't experience this, it just adds to an already very stressful situation. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Fri Nov 19, 2010 11:26 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Finally, some peace
When Dale's father was dying (pancreatic cancer), he was hooked up to a room full of machines. He had DNR instructions and yet, the hospital would not disconnect him. Dale is an attorney and threatened to sue them. Only then did they agree to disconnect his father. It was traumatic. We think the cost to the insurance company for all his care was the reason they wanted to continue to allow him to lie there - even though it was obvious that his brain was gone and he was not coming back.

When my father was in a similar condition - hooked up to machines after heart surgery, he wrote notes saying, "Get me out of here! Call 911." The hospital finally released him to go home to die. He then lived another fourteen years. We still have the bill from the hospital dated 11-29-88. The total is $228,895.53. Imagine what that bill would be today.


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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Fri Nov 19, 2010 11:50 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Finally, some peace
This is why it is so very important to have the person's final wishes written, back in the day people didn't do that like today, I think even if you do to a hospital for a MRI they ask do you have a living will.

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Irene Selak


Fri Nov 19, 2010 12:09 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Finally, some peace
Gayle,
Has your mother been taking Ativan for awhile? It can have some bad side effects for some people (dizziness, etc).
Robin


Fri Nov 19, 2010 5:48 pm
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