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 Seroquel Dosage 
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Joined: Wed Jan 06, 2010 1:24 pm
Posts: 8
Location: Santa Barbara
Post Seroquel Dosage
I'm just wondering what kind of dosages of Seroquel are common among LBD patients. My mother gets 3 1/2 25 mg pills a day. She continues to hallucinate , at times it is pretty bad, other times not so bad, like she's more accepting of them. The Dr. wants to up her dosage to 4 25 mg pills a day and says that will help her agitated state with the hallucinations. Our caregiver said Seroquel is a double edged sword - it can cause the hallucinations or it can help with them.Is there anything better than Seroquel out there? Any thoughts or personal experiences would be very much appreciated.
~ John


Tue Jul 27, 2010 2:18 pm
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Joined: Fri Aug 11, 2006 1:46 pm
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Location: SF Bay Area (Northern CA)
Post Re: Seroquel Dosage
Have you reviewed Dr. Boeve's "Continuum" paper both for what it says about Seroquel dosing and treating hallucinations?

Most in our local support group are on very low doses of Seroquel -- half of a 25mg tablet at bedtime. Some are on very high doses -- 200mg/day.


Tue Jul 27, 2010 3:28 pm
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Joined: Wed Jan 06, 2010 1:24 pm
Posts: 8
Location: Santa Barbara
Post Re: Seroquel Dosage
Thanks Robin, I wish I could find the report you speak of.I've spent the better part of a half an hour and cant seem to find it, but see lots of reference to it!


Tue Jul 27, 2010 6:05 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Seroquel Dosage
Go to lbda.org. In the search box enter "Boeve Continuum 2004." You'll see it in the search results.


Tue Jul 27, 2010 6:27 pm
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Joined: Fri Feb 06, 2009 9:25 pm
Posts: 69
Location: N Ala
Post Re: Seroquel Dosage
I haven't posted on here in months
My husband started on 25mg at night about 2 years ago. Now he is on 100mg at night, 75 in the morning and we have 3 25mg that I can give him for agitation during the day. The Seroquel has really helped with his vivid dreams and with his rages during the day. If he is really upset, I crush it and mix it in koolaid. Seroquel has been a good thing for us
nanny


Thu Jul 29, 2010 3:01 am
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Joined: Thu Aug 19, 2010 3:03 pm
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Post Re: Seroquel Dosage
My Husband is on 200 MG each night


Thu Aug 19, 2010 3:12 pm
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Joined: Tue Aug 17, 2010 9:20 am
Posts: 184
Location: So Cal
Post Re: Seroquel Dosage
Hi John,
My husband take 25mg in AM, 50mg at noon and 200mg at night. He still hallucinates a lot, not sure that it has changed that at all, but the agitation is really under control. I'm off to read the continuum paper Robin speaks of. take care, Sherry

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Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.


Fri Aug 20, 2010 9:23 am
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Joined: Tue Aug 17, 2010 9:20 am
Posts: 184
Location: So Cal
Post Re: Seroquel Dosage
I finally found the article and reference to Seroquel. It is to help with hallucinations/delusions, agitation/aggression, wandering/disinhibition. It looks like up to 400mg can be prescribed at bedtime, less during the day. It is curious that it has helped Ken in all of the areas except hallucinations, although the delusions are all but gone. Sherry

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Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.


Fri Aug 20, 2010 9:54 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Seroquel Dosage
100 mg Seroquel and Xanax .05 were not able to calm Dale last night and I'm hoping some of you have suggestions tonight. I know that Dale was over-stimulated on Friday and Saturday... so those nights were active with dreams. I'm hoping for solid sleep tonight.

I note that some give much more Seroquel - up to 200 mg. Dale has been taking 100 mg for well over a year. Is an increase desirable? The doctor has given me permission to treat him as appropriate with Seroquel 25 mg during the day but I've rarely done that.

What about adding the Xanax .05? Do you have experience with the combination?

Comment, please....

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sun Feb 06, 2011 8:26 pm
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Joined: Fri Aug 11, 2006 1:46 pm
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Location: SF Bay Area (Northern CA)
Post Re: Seroquel Dosage
Some (maybe Tanis Ferman?) do not like the idea of giving a person with LBD Xanax, Ativan, etc. So you might try eliminating that and see if you get a change. I don't know how many days you'd have to try it to say it was a good experiment. Can you talk to your husband's MD about these medication changes?


Sun Feb 06, 2011 10:08 pm
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Re: Seroquel Dosage
Robin.... Thanks for your response on Super Bowl night.

The Xanax was added recently out of desperation by the neurologist when he said he would set up a consult with his colleague Psychiatrist... but I haven't heard from him at this point. I am hoping the Psychiatrist will have input for me next week.

I've given Dale Xanax .05 maybe 5-6 times at this point. As backgrouind, Dale's earliest symptoms (Feb 09) were heavy duty delusions and hallucinations. The Seroquel calmed him for a year and a half. (I know it isn't a sleeping medication. We've discussed that.)

However, the night time restlessness, talking, and acting out began strongly again in November, 2010. We rarely have a quiet night now. He is quite delusional during the day as well. He is in bed. He can no longer stand. He is now is under Palliative Care... prior to Hospice.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sun Feb 06, 2011 10:24 pm
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Joined: Fri Aug 11, 2006 1:46 pm
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Location: SF Bay Area (Northern CA)
Post Re: Seroquel Dosage
The issue with Xanax, Ativan, etc. is that they *can* cause paradoxic anxiety.


Sun Feb 06, 2011 11:32 pm
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Joined: Fri Jun 19, 2009 11:23 am
Posts: 201
Post Re: Seroquel Dosage
I have been wondering if LO would benefit by a neuropsychologist. His neurologist suggested an appointment with a neuropsychologist but we didn't keep the appointment because I found out our insurance doesn't cover any psych care and they charged $300.00 an hour. I would have justified the expense except LO hates having to answer all the questions they ask. The first consult was to have been 4 hours long. (Ouch!) I let the neurologist know about the insurance issue and he said he thought, some time LO would need that evaluation. I am wondering if the time is now.

Even though LO can act almost normal, when we are alone and I observe him, he seems to be talking to someone almost all the time. He sits with his eyes shut and mumbles and mumbles. (Is this delusional?) Recently we went to a wedding and he went into the mens room. When he didn't come out, I sent someone in. He was sitting in the dark. He seems to like to do that. Sit in the dark. He makes up stories a lot. Some times cute, sometimes funny, but never scary anymore. Like you Leone, his earliest symptons were heavy delusions and hallucinations. He is on Seroquel 50mg XR at bedtime. Aricept and Namenda during the day.
I also have to watch him closely as he takes things. At the wedding he took the entire candy dish and put it in my bag. :roll: Also took the brides white pen for the guest book. I didn't realize this until we were home and I looked in my bag. He is so sweet and agreeable. I just hate to repremend him so I just kept quite and hid the candy dish and he doesn't seem to remember it. I was going to return the pen to the bride and attempted to hide it also but he remembered and was upset that I tried to put it somewhere else. I do not want to get him upset, however I find myself getting more overwhelmed about this. Would an order for more Seroquel help? or maybe it is now time for the neuropsychologist or maybe a psychiatrist for me? :roll:
Mary


Mon Feb 07, 2011 2:51 pm
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Joined: Wed Dec 30, 2009 1:46 pm
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Location: WA
Post Re: Seroquel Dosage
Mary, we found that Seroquel helps with hallucinations but doesn't do anything for delusions. Wish it did! Maybe others have had different experiences.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Mon Feb 07, 2011 4:04 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Seroquel Dosage
Mary, I'm fairly new here myself, and I might be off-base about this. But I wonder if you would get more response if you start a new post, maybe with a subject like "When is it time to see a neuropsychologist?" Having it in this thread it might miss caregivers who know about that topic but who have no reason to check a thread about seroquel. Just a thought ...

About the pen, could you say something like "You, know, honey, I think I picked that up by mistake at the wedding reception and I'm going to give it back to Connie when they get back from their honeymoon. But if you particularly like that one, let's go shopping for one like it for you."

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Mon Feb 07, 2011 4:20 pm
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