View unanswered posts | View active topics It is currently Thu Sep 18, 2014 3:46 am



Reply to topic  [ 9 posts ] 
 Nuvigil for daytime sleepiness? 
Author Message

Joined: Thu Jan 14, 2010 2:40 pm
Posts: 95
Location: California
Post Nuvigil for daytime sleepiness?
Does anyone have experience with Nuvigil for daytime sleepiness? For the past 5 days, My LO has been taking 75mg in the morning. So far, there is not much difference in his wakefulness.
Thanks so much,
Roxanne


Thu Mar 04, 2010 1:49 pm
Profile

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post 
I think most here have had experience with Provigil.

What did the prescribing MD say in terms of when you should see benefit, if it was to be seen?

Dr. Boeve at Mayo Rochester is conducting a trial of Nuvigil (the newer form of Provigil) in DLB:
http://clinicaltrials.gov/ct2/show/NCT01023672


Thu Mar 04, 2010 1:55 pm
Profile

Joined: Thu Jan 14, 2010 2:40 pm
Posts: 95
Location: California
Post 
The MD didn't say when to expect a difference... I "assumed" it would be immediate given the type of drug it is. The pills are 150mg each but we were afraid to start at the 150mg dose so he cut them in 1/2. Yesterday, he was feeling more drowsy... we may try it again.
Thanks,
Roxanne


Thu Mar 04, 2010 7:47 pm
Profile

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post 
My "assumption" (equally dangerous!) is that it takes several weeks to know if there's benefit. Does rxlist.com or drugs.com say?


Thu Mar 04, 2010 10:03 pm
Profile

Joined: Fri Dec 18, 2009 11:08 am
Posts: 1
Post NUVIGIL
I started with 1/2 of a 150mg Nuvigil and this helped a great deal with tiredness during the day but after a few days I started having tremors and difficulty swallowing in the evening. When I stoped the 1/2 dosage the symptoms soon went away. Now I daily take 1/4 a 150mg dosage and it helps for a few days without the extra symptoms. And then I skip the pill a few days if symptoms return. Without the 1/4 dosage I sleep more during the day.


Mon Mar 29, 2010 8:40 pm
Profile

Joined: Tue Dec 23, 2008 8:52 am
Posts: 154
Location: Michigan
Post 
I'm toying with the idea of trying nuvigil for my hubby. He complains of being so sleepy in the mornings. He said it takes him way into the afternoon to feel awake. He usually gets 12 solid hours of sleep at night. In the morning he gets his breakfast & coffee & takes his pills, then shaves and does that bathroom stuff. Then he heads for the lazy boy and naps till I wake him for lunch. I found a coupon for 7 free tablets on the net. You still need to have your doctor write the rx for it and hopefully you'll know how your LO will react to the drug before you buy the 3 month supply.

We have an appointment next month with the geriatric psychiatrist and we shall discuss it then. He's also mentioned that his balance seems off. Looks like he is progressing a bit in the illness. He is in a good place right now and hopefully it will last for a long, long time.

Thanks for reminding me to start slow - half a tablet for starters. I'm off the to read about it on rxlist.com. Thanks Robin.

Karen


Sat May 15, 2010 7:30 pm
Profile

Joined: Sun Feb 28, 2010 9:48 pm
Posts: 12
Post 
We've tried an anti-depressant, an anti-psycotic, and now finally Nuvigal for my mother's daytime drowsiness. The anti-psycotic was taken at night to help her sleep through the night, thinking that would help her stay awake during the day. The only thing that has worked is the Nuvigal. I noticed an immediate difference. We started with the 150 mg, but my father didn't notice any difference. So the neurologist gave us a 250 mg dose. But to start I split the pill in half, so she is only getting 125 every morning. She is very alert, smiling more, giggling a bit. She's a different person and it's great. She did also stay up later, 10:30 instead of 8:30 or 9:00, but that's ok. And although she gets up to use the bathroom, nighttime sleeping seems to be ok. I don't think I'll increase the dose, I don't know why my father didn't notice a difference. He's in the hospital now, so I am with her more and I think it's working. Maybe he split the 150 into 75 and maybe that wasn't quite enough.

_________________
Cindy


Sat Jun 05, 2010 7:58 pm
Profile

Joined: Tue Dec 23, 2008 8:52 am
Posts: 154
Location: Michigan
Post 
Thanks for the input, Cindy.

Our appointment is coming up mid June.

I'm quite excited about the possibilities of this drug after reading your post. Hubby's not to sure he wants to start taking another drug. He spent time napping after breakfast this morning and then I found him flat out sleeping on the couch this afternoon when I came in the house from doing some gardening. Because of the anti-psycotic and klonopin he takes at bedtime, he usually sleeps a good 9 - 10 hours at night.

Karen


Sat Jun 05, 2010 9:11 pm
Profile

Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post 
I wish my husband could sleep at night. He doesn't sleep much during the day, either. He dozes a bit after his breakfast and shower and sometimes takes a brief afternoon nap. He never sleeps more than 5-6 hours at night.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sat Jun 05, 2010 11:37 pm
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 9 posts ] 

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
cron
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.
Designed by STSoftware for PTF.
Localized by MaĆ«l Soucaze © 2010 phpBB.fr