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 desperate for sleep 
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: desperate for sleep
mockturtle wrote:
assuming it was hallucinations or other abnormal brain activity keeping him awake.

In Dale's case, he was deeply involved in believing in this sudden windfall of money ... and I wasn't taking it seriously enough. In fact, I drove right past the bank on the way to the drug store to obtain his medication. He was furious at me when we came back home.

He is now sleeping deeply. He has not had dinner and he is not attached to the condom catheter... but I will leave him to sleep as long as he wants. Hopefully, he will awake at a respectful time in the morning and be refreshed.

Have you had a similar experience and did he sleep through the night on medication?

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Mon Jan 24, 2011 9:23 pm
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Joined: Sat Jan 03, 2009 2:59 pm
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Post Re: desperate for sleep
Ginny,
Also check into free cliinics in your area and they also have clinics that are based on income with a sliding scale.

Good Luck !

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Irene Selak


Mon Jan 24, 2011 9:24 pm
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Joined: Sat Oct 06, 2007 4:28 pm
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Location: LA
Post Re: desperate for sleep
Leone, I'm attempting to reenact in my mind a scenarerio such as you describe. I would not wake him until he went to bathroom, at that time, I would have a minimum number of his meds ready [only the ones which would help him sleep again or maybe Namenda if he is taking that]. I would not use any unnecessary speaking and be quiet as possible letting him wash the meds down with Ensure to help promote sleep and have a comfy tummy. Of course, you are dealing with the catherter so I don't know how that would fit into this trying to keep him in the sleep mode, but you get the idea, talk quietly and lovingly.

If he has something really bothering him, like an undiagonosed infection, or over-due bowel movement then all bets are off this is just a suggestion. Anything to break through his sleep could resurface. I pray for his good night rest.

Dorthea

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"See this lady she's 85 but she's nice", This is the way my husband, Mr B., introduced me in 2006 to the people only he knew. Death due to pneumonia. Lewy Body Dementia diagnosed post mortem at Mayo Clinic in Jacksonville Florida.


Mon Jan 24, 2011 10:24 pm
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Joined: Fri Aug 11, 2006 1:46 pm
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Location: SF Bay Area (Northern CA)
Post Re: desperate for sleep
FYI - Ginny's last post was from a year ago (Jan 2010). I haven't seen her post lately.


Mon Jan 24, 2011 11:30 pm
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Joined: Sat Jan 03, 2009 2:59 pm
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Post Re: desperate for sleep
Thanks I guess I just looked at the month! But will leave it in just in case someone else is looking for medical care.

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Irene Selak


Mon Jan 24, 2011 11:34 pm
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Location: Ocala, FL
Post Re: desperate for sleep - another dose of Xanax
Dale was down for the night last night, I thought. He said he was tired after dinner so we did the bedtime ritual ... with the catheter and the Seroquel. He had been extremely difficult to put in his wheelchair. He hates that chair! He cannot SIT without great effort at this point.

Two hours later, he was up ... walking around with the bag in one hand and his robe in the other. He was supposed to be the speaker at a convention and he couldn't find the hall. I tried to get him back to bed to no avail. I finally gave him Xanax again.

An hour later, he was sleeping with his robe on slippers still on. I could finally remove his glasses.

These episodes ... now Friday, Sunday, and Monday .... are wearing me out. He gets mad at me because I won't cooperate and take him where he knows he needs to be.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Jan 26, 2011 7:24 am
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Joined: Sun Oct 21, 2007 4:18 pm
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Location: Acton, MA
Post Re: desperate for sleep
Leone, I've been there and while not getting enough sleep I struggled with tears every step of the way. We all know and hope this is a temporary situation. I have you in my thoughts and maybe you could tell Dale they called and cancelled all meetings. If he's like Frank, he'd accuse you of not being truthful, either way you'll never win, but with enough sleep you can get through it.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Wed Jan 26, 2011 8:31 am
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Re: desperate for sleep
Thanks Gerry... and Pat A for your thoughts and prayers. We're doing fine this morning. Dale was even able to laugh at the memory that he walked around the house naked with the bag in his hand. He says he wishes we had a photo. I said no newsmen were here.

Both of us had a full night of sleep thanks to Xanax 0.5 mg. I'm going to use that as 'my big gun' on these episodes and see if we can control it that way. I don't want him to get used to that medication... as has apparently happened with the Seroquel.

When we're going through these, I keep wondering how long I can continue to do this. This morning, I'm confident again.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Jan 26, 2011 10:36 am
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Location: Ocala, FL
Post Re: desperate for sleep
False alarm..... Dale is into another episode. It has been five days and his neurologist is referring us to a psychiatrist. The neurologist is not confident that he is able to give us the best medicine for this situation.

Strangely, Dale is able to walk during the episodes and almost completely immobile at other times.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Jan 26, 2011 8:34 pm
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Location: Minnesota
Post Re: desperate for sleep
I'm sorry.

Will you be able to see the psychiatrist soon?

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Wed Jan 26, 2011 8:45 pm
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Joined: Wed Oct 28, 2009 11:53 am
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Post Re: desperate for sleep
Thanks for asking, Jeanne. You are very kind. I haven't received the call yet. I will keep you posted.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Jan 26, 2011 9:08 pm
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Location: Vermont
Post Re: desperate for sleep
So sorry Leone. It is so much more difficult to deal with this when you aren't getting enough sleep on top of all the other stressors. I hope you and the med. folks find something that helps ASAP.
Can he drink alcohol? Maybe a nice big glass of Bailey's over ice, or a hot toddy, or whatever would relax him enough to get him to sleep.
Can he take Benadryl?
I wish you the best in getting this problem solved. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Jan 26, 2011 9:44 pm
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Post Re: desperate for sleep
You make me smile, Lynn. Dale enjoys beer ... but the last time he had a small glass, he was so delusional afterward that I have completely rejected that idea. He is now sleeping with Xanax and Seroquel.

I hope he can go back to a glass of beer once we have this medicine problem solved. He asked for some tonight... in the middle of his delusions.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Jan 26, 2011 9:50 pm
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Post Re: desperate for sleep
Benadryl is on the no-no list. And it takes eons to work its way out of the body of a geriatric aged person. Nan


Wed Jan 26, 2011 9:55 pm
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Post Re: desperate for sleep
Dale slept through the night for a year and a half with Seroquel 100 mg. Now, Seroquel is not enough. He was wide awake last night talking about the traffic signals in the room and mumbling in a conversation with himself.

I gave him 1/2 Xanax at midnight and after about an hour, he slept and didn't awaken until 9:30 am. In fact, he is still groggy at 11 am.

I am well aware that Seroquel is not a sleeping pill but it was effective for a long time.

What works at your house for sleep through the night?

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Feb 03, 2011 11:54 am
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