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 Seroquel Experiences? 
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Joined: Sun Oct 04, 2009 10:18 am
Posts: 276
Location: Washington State
Post Seroquel Experiences?
I think I've read everything on the discussion forum on seroquel over the last several weeks as I've done multiple searches. For those whose LO has had a bad reaction to seroquel, can you tell me what the symptoms were? I know everyone is different but it is amazing how sometimes experiences are alike.

My LO is on 25 mg of seroquel at bedtime with no exelon, no antidepressants, etc. When she is not on seroquel she is more "in her head" and moves more normally but she is also more agitated and potentially violent. We have had to move her several times since she attacked a caregiver at an adult family home on Dec. 11th and she has been in a dementia care institution for about 5 days now after one night at my house and 3 days in the hospital before that, where she struck out at the nurses. After 1 or possibly two days of being off seroquel, she started back on 4 days ago. Today she is much worse with body rigidity, stooped posture, "crazy talk", etc. Three doctors have recommended that she stay on the 25 mg seroquel, including Dr. Leverenz from Seattle.

I'm trying to figure out why Mom is worse today. This always seems to happen on the weekend. If you LO had a bad reaction to seroquel can you tell me what the symptoms were? Thanks.


Sat Dec 19, 2009 3:47 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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As you may recall from reading some of the posts, the bad reactions have sometimes been NMS. You can do a search here on this term and associated symptoms. It is a life-threatening condition.

Have you read the possible side effects of Seroquel on a website such as rxlist.com or drugs.com?

If you think your mother isn't doing well on any dose of Seroquel, then you need to stand up and advocate for her. You are on the front lines; the MDs are not. If you have a good MD, he/she will listen to you.


Sat Dec 19, 2009 5:12 pm
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Joined: Tue Jan 05, 2010 5:27 pm
Posts: 146
Location: Fl.
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Annie,
My mom has not had a good experience on Seroquel. I have a question though. She is only on 25mg of Seroquel? Is this right, Does they go up slowly. SHe is only on 5mg of Aricept too. Maybe it is the dosage that is causing her the problems?
Thank you,
Tammy

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Mon Jan 25, 2010 11:03 am
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Joined: Sun Oct 04, 2009 10:18 am
Posts: 276
Location: Washington State
Post Stopped Seroquel
Tammy, I stopped the seroquel soon after I posted my previous post in December. The dosage went slowly (at least a week in between) from 25 mg to 37.5 mg to 50 mg. At 50 mg she attacked a caregiver. During the resulting weekend in the emergency room the ER doctor and I agreed to take her off seroquel altogether. The first few days afterwards she was bent almost double and terribly confused. It has been a month and a half since that time and she has improved remarkably. However, three of us (me, sister, and husband) spend a lot of time with her walking around and around, talking with her, etc. at her assisted living facility. During the week she gets three 2.5-hour visits a day. On the weekend she gets more. We have observed that if we stay away too long her symptoms get worse and she becomes more agitated. In my opinion, it is easier to spend the time rather than get called in on an emergency basis. Nicer for her, too. She's very appreciative.

Anyway, I don't think my LO had NMS because she didn't run a fever or have other symptoms I've read about. I do think that seroquel is a bad drug for her. As you know, everybody is different.


Mon Jan 25, 2010 11:26 am
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Joined: Wed Apr 29, 2009 1:37 pm
Posts: 17
Post dosage question fpr sequel
The neurologist is starting with 1/4 tablet of 25mg - increasing weekly to the full 25 ( all to be taken at bedtime.) The agitation -especially with delusions of an affair- seem to escalate in the afternoon. But the past week has been fairly smooth. My question is: should I wait to start when things heat up again? Does it help with sleeping?
He falls to sleep fairly quickly but awakens to go to the bathroom about every hour. ( one morning he said he had had a bad night and had gotten up 3 1/2 times!)
Thank you for any suggestions/experiences.


Tue Mar 09, 2010 5:09 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Seroquel is sedating in most (not all).

Your question about whether to start the Seroquel now or wait until later is a great one for the prescribing MD!


Tue Mar 09, 2010 5:33 pm
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Joined: Wed Apr 29, 2009 1:37 pm
Posts: 17
Post seroquel
Thank you for the reply! I have adjusted meds based on this forum and to the approval of the MD - but I felt one of you wonderful people would have "in-the-trenches" assistance. I just finiashed trying to find and digest appropriate info on Sinemet + Seroquel + lisinipril + glyburide + doxycline....
By the way - does anyone have experience with complaints of scratchy eyes? We have seen three specialists - thus the Doxycycline for "clogged" ducts on the eyelid. He becomes almost frantic in the afternoons. Wipes, warm cloths,drops, etc - all no help.


Tue Mar 09, 2010 5:42 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
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My husband reacted to his first [and only] 25mg dose of Seroquel in the following manner: Within 30-40 minutes, he became unable to move his arms or legs and was unable to speak. He could vocalize, but not form words.


Tue Mar 09, 2010 5:45 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Re: scratchy eyes
This could be caused by many things, including eyes being dry, the weather, seasonal allergies, infection, etc. I think it's important to try to identify the cause.

One sort of specialist is a neuro-ophthalmologist. To find one, see nanosweb.org.


Tue Mar 09, 2010 6:05 pm
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Joined: Sun Feb 28, 2010 9:48 pm
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My mother just started 25 mg seroquel per day at bedtime 2 nights ago. So far so good, she slept through the night and doesn't seem to have any adverse reaction. That was the goal, for her to sleep better so my father could sleep better.

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Wed Mar 10, 2010 10:28 pm
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Joined: Mon Mar 08, 2010 9:32 pm
Posts: 118
Location: Dumfries Va
Post Seroquel
My wife was put on 50MG of Seroquel in response to having a very confusing night. She could not keep her head up. She fell asleep while we were talking and then on a walk, she became very sleepy and almost fell. They cut it to 25MG and it was better but she had may more hallucinations and incidents of confusion. They have taken her completely off it and now have her on Exelon Patch. That seems to be working well so far. ONly been 2 weeks and a lot of the confusion and hallucinations are reduced by 50%


Tue Mar 16, 2010 2:19 pm
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