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 4mg of Risperdal-what to expect? 
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Joined: Sun Feb 24, 2013 11:58 am
Posts: 3
Post 4mg of Risperdal-what to expect?
Hello,
During a recent visit to my fathers Doctor apt. we had one of his meds changed to a higher dosage.
My dad has been asking to go home allot more these last few weeks and asking for his mother that has passed away 12 years ago and seems to be dragging his feet allot more. He does these things dailey and over and over but it just seemed to get worse so that is why the dr. increased his dosage.
My mother and I are worried about what to expect with him on this higher dosage? Any responces would be of great help. Thanks..
Martyg. :shock:


Mon Mar 04, 2013 1:27 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: 4mg of Risperdal-what to expect?
I just responded to your post under the behavioral topic.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Mon Mar 04, 2013 11:10 pm
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Joined: Wed Nov 13, 2013 3:04 pm
Posts: 41
Post Re: 4mg of Risperdal-what to expect?
We, personally, had a bad experience. As far as mood, it was wonderful. However, her body became weaker quickly, and worse, she didn't know where she was....horrible confusion...I ended up having her took off of it, ALTHOUGH the doctor says it was coincidental, ALTHOUGH these symptoms appeared the next day. Now she is on Zyprexa and was doing better, but has lost her memory AGAIN. No memory probs on Seroquel....just got meaner.


Wed Dec 18, 2013 12:19 pm
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Joined: Tue Apr 29, 2014 4:27 pm
Posts: 75
Post Re: 4mg of Risperdal-what to expect?
My husband was on risperdal and he would cry over everything he was so depressed. His dr. changed him to abilify and he has done a lot better.


Tue Apr 29, 2014 9:58 pm
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Joined: Wed Oct 09, 2013 7:18 pm
Posts: 2
Location: Shelbyville, IL
Post Re: 4mg of Risperdal-what to expect?
Six days of 0.25mg of Risperdal sent my mother (age 56) into a psychotic "episode" (I guess is what you'd call it)... so, horrifying experience for us. She was hospitalized in the psychiatric unit for 13 days and then upon discharge, the doctors wouldn't let her come home to me (her one and only child/caregiver) for fear of my safety. They urged me to find her a group home to live in, and they changed her medicine to Zyprexa. *Note: she is on many other medications also. That lasted only a month - living in the group home amongst 70 and 80 year olds only increased her depression (to lows I've never seen before, much talk of suicide, etc.)

It amazes me that doctors prescribe Seroquel, Risperdal, and Zyprexa (the three that I am familiar with) to LBD patients. They are all atypical anti-psychotics, and specifically NOT recommended with any DEMENTIA pt. Read up... bold black print, first warning says they may cause DEATH in Dementia patients.
Does anyone agree with me that something is wrong here? (Not to mention the crazy, scary side effects that can come along with these meds...)
I showed this warning to the "hospitalist" who prescribed the Zyprexa (after I ask him politely to steer clear of atypical anti-psychotics with my mom) while she was still a patient in the Psychiatric Unit. He responded to me "If a patient of mine is acting psychotic, I'm going to prescribe them anti-psychotic medication, regardless of the pre-existing condition/illness present."

Thankfully her psychiatrist (after discharge from the hospital) took her off the Zyprexa, and replaced it with Remeron. She may have taken action because I told her if she didn't take my Mom off of the dirty drug, I wasn't going to leave the office.... in any event, the med was changed.

Unfortunately, one thing that stays the same no matter what meds are changed, rearranged, swapped, or whatever, my mom is extremely depressed, sad, unhappy person. Diagnosed bi-polar in the late 80s, and now LBD in 2012, at age 55. (though she began presenting memory trouble in '06).

I hurt for her. I cry for her, and with her. She rarely now has "good days". I empathize with her... she is afflicted with this terrible disease, yes, but she is still coherent enough to know that all the independence she once had, has been stripped from her, a piece at a time.
She had to move in with my family - couldn't maintain her home/bills/dr(s) were concerned about safety.
She had to take disability retirement - she was a mail carrier, got lost on her mail route countless times.
The Drs. suggested she not drive (when they diagnosed her in March 2012) and she followed their suggestion (she didn't like it, and she was quite vocal about it) - but in Aug. 2013 the DMV officially 'cancelled' her driver's license.

I despise this disease, I believe it's straight from the devil himself.
I wish I knew how to do better. Being a caregiver is HARD - it's taking it's toll on me - I'm having a very hard time watching my mom deteriorate each day.
My family (husband, dad, in-laws, grandparents) worries for my own health, as I was recently hospitalized -- STRESS being the key problem.

This began as "our story" about Risperdal, and I've written a book, I apologize. Guess that's what a forum is for though, I hope.

Thanks in advance -
Dana, age 33
Caregiver to Mom, Patty, age 56, diagnosed bi-polar (1980s) & LBD (2012)

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Dana, age 33 - daughter/caregiver to Mom, Patty, age 56 (Bi-polar, LBD)


Mon May 26, 2014 5:54 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3317
Location: Vermont
Post Re: 4mg of Risperdal-what to expect?
I'm so sorry for your situation, Dana. You DO need to find ways to de-stress and take care of yourself. The last thing any of you need is for you to be sick and debilitated too. I have a lifelong heart condition from NOT dealing with the stress very well when my dad was so ill.

Your mom is lucky to have you in her corner fighting (and it does become a fight sometimes when drs. and others won't listen and don't know much about this disease). Keep being her advocate, but please find a way to give yourself time to relax and have fun, even if it is just occasional. You deserve it, she would want you to be strong, healthy and happy, wouldn't she?

Come back as often and write as much as you want on this forum. Sometimes it's the only way I could de-stress when my dad was still alive. We're here for you! Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Mon May 26, 2014 10:17 pm
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Joined: Sun Mar 30, 2014 5:11 pm
Posts: 74
Location: IL
Post Re: 4mg of Risperdal-what to expect?
Hi Dana! "Amen" to all that Lynn just wrote; it's very important advice to follow to survive this long journey. Welcome to the forum. I feel for you, especially with your mother being so young.

Those who are worried about your health must step up to the plate and help. Please don't be afraid to ask for help. Sometimes people think that if you (one) wanted help, you'd ask for it. You definitely need assistance in caregiving, even if you have to pay for it.

My mother also had bipolar disorder and, later, LBD. She was very pessimistic and depressed. And, it was sometimes hard to be around her. Once her psychiatrist started her on Lithium (mood stabilizer), Effexor (anti-depressant), Klonopin and Trazodone (both ? anti-anxiety), she was happier and easier to be around. Maybe your mom's meds need to be tweaked? It was trial-and-error for my mom in the psychiatric hospital, before this psychiatrist found a combination that worked well enough to keep her out of the psych hospital for good.

My mother loved the outdoors. I'd take her out in the wheelchair and that would brighten her mood. Maybe there's something your mom likes or used to like? A pet cat (pet therapy) also helped my mom. Special music? Art?? Both therapeutic approaches. Let us know how you're doing, Dana. AnneAAA

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AnneA -- Forum Moderator; also daughter, caregiver, and patient advocate for Jean, who died of LBD in January, 2013, at age 91.


Tue May 27, 2014 11:56 pm
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Joined: Wed Oct 09, 2013 7:18 pm
Posts: 2
Location: Shelbyville, IL
Post Re: 4mg of Risperdal-what to expect?
Thank you for the support...much needed :)

I am pleased to say that today was one of the better days (hallelujah!), proud to post a little bit of positive!

I will definitely be on here much more, im sure of it.

One day at a time, good or bad :)
(Just really prefer the good ones...its so much better for all involved.) :)

_________________
Dana, age 33 - daughter/caregiver to Mom, Patty, age 56 (Bi-polar, LBD)


Wed May 28, 2014 12:14 am
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Joined: Wed Nov 13, 2013 3:04 pm
Posts: 41
Post Re: 4mg of Risperdal-what to expect?
I want to reiterate that this drug is very strong and I will always believe it permanently impaired my mom's memory. She has never been the same since her first dose. (am told it is a coincidence.) After 5 days, no more! She has never know where she was since her first pill. So sad.


Sat Jun 14, 2014 12:58 am
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Joined: Thu Apr 21, 2011 9:07 pm
Posts: 245
Post Re: 4mg of Risperdal-what to expect?
Hi Dana,
Just a note on the atypical antipsychotics: I think it's really important for physicians and family members to weigh risks and benefits carefully. I went through this with my mother several years ago.

Risks, in her case: While it's true that the FDA issued a black box warning against their use in the elderly, the actual increase in risk of cardiovascular events is pretty small, at the lower doses typically used in dementia patients. I actually worked it out for my mother, based on the medical literature cited by the FDA and my estimate was that, at the 25 mg dose my mother was taking 2x/day, her risk was increased at most maybe 10% over the next 5 years (that is, whatever risk she would have had without seroquel, the risk was 1.1 times as great with it, a very slight increase!) She was 96 when she went on seroquel, so I felt that a slight increase in risk of a heart attack or stroke before age 101 was a small risk.

Benefits, in her case: She had terrifying, disturbing delusions that could not be addressed behaviorally. Her family members were kidnapped or abused or dead; the building was on fire; there was a dead body in the bathroom; and so on. A low dose of seroquel utterly banished her delusions and visual hallucinations. She was much happier and had no discernible side effects.

So my decision, in consultation with her neurologist, who is an internationally known expert as well as a colleague and friend, was to go with seroquel. (We are fortunate both in my own professional background and in having dementia specialists as colleagues and friends.) In our situation, I think this was the correct decision, and I'd do it again in a heartbeat. The risk-benefit balance might be quite different for someone else, with different problems, different age, different comorbidities, and different reactions to the meds.

But her primary care doc got a nasty-gram every month for two years, about the "bad practice" of giving an elderly patient seroquel. We composed a standard response and just sent the same note back every time. Sigh.

For what it's worth, my mother died in May, of aspiration pneumonia, secondary to progression of LBD. Not a stroke or heart attack. At least she was not suffering in anguish about her beloved family.

Laurel

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Laurel - mother (97) diagnosed April, 2011, with LBD; died May, 2014.


Wed Jun 18, 2014 12:35 am
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