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 RISPERDAL (risperidone) - Any info out there on this med? 
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Joined: Thu Nov 23, 2006 12:28 am
Posts: 5
Post RISPERDAL (risperidone) - Any info out there on this med?
Hello. This is my first time posting here. I've found a lot of good info here. Thanks to you all.
My dad was diagnosed with LDB March 2005. He seemed relatively stable for a year, then started hallucinations March 2006. The last month has seen drastic cognitive decline. He was on Aricept and neurologist suggested he switch to Excelon to see if that may be more effective. The switching over of meds (1/2 dose Aricept with 1/2 dose Excelon for 2 weeks) didn't go well. Last week, he tried Zyprexa, but one dose knocked him out, so he wouldn't take it again. His general physician put him on Risperidone instead. I haven't yet found any info on LBD chats re: Risperidone. Only the commercial website that gives the same disclaimers as other LBD antipsychotic meds, not to be used by persons with "dementia-related psychosis".
My mom is Dad's primary caregiver. She is an angel. She doesn't use computers, so I search, find and print whatever I can for her.
Thanks in advance for any help or advice.
Cathy

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yukoner181


Wed Nov 29, 2006 12:52 am
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Joined: Thu Sep 07, 2006 7:40 pm
Posts: 64
Location: Chelmsford, MA
Post Yukoner
Hi Yukoner,
Sorry that you have to find yourself here. I know how difficult the situation is. There is also a site on Yahoo under groups...LBDCaregivers...it's also very good....

First, sorry about your Dad and his decline...Yes, Excelon seems to be the drug for LBDers...but start very slowly with all meds...don't rush...
BUT, RESPERIDONE, is definitely NOT a choice for LBDers....It is one of the drugs that appears to be very dangerous for LBD patients...My Mom did horrible on it. This was way before I knew she had LBD....I would never put her on it...I would check with your neurologist before I would change any of your Dad's medications...as he is the one that is treating the LBD, not the primary doctor...and chances are the primary doctor doesn't really understand it...You need to be very careful with this drug...sometimes, I have heard of patients going into a decline and not returning to what they were before this drug...I don't want to scare you, but it is a serious drug and can cause lots of problems for your Dad...please check with neurologist asap.
Hugs,
D. Hill

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Caretaker Daughter of 79 YO MOM with Vascular Dementia & AD


Wed Nov 29, 2006 1:20 am
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Joined: Thu Nov 23, 2006 12:28 am
Posts: 5
Post 
Thanks D Hill. Much appreciated.

I will follow up right away. I am glad you responded so quickly, as I had misgivings. My dad had seen his neurologist the first week of Nov and has his next appointment with her in 2 months - to check progress with Excelon. She had provided his GP with the Zyprexa prescription, to issue if required - and it was. When Dad didn't want to continue with Zyprexa, but was suffering major delusions, Mom couldn't get him in to his neuro. He was prescribed risperidone.

I will call my Mom first thing tomorrow and Dad's neurologist. Dad just started the risperidone this past weekend so hopefully....

Thank you so very much! Not just for the info, but for being there and caring!
Cathy

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yukoner181


Wed Nov 29, 2006 2:37 am
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Joined: Thu Sep 07, 2006 7:40 pm
Posts: 64
Location: Chelmsford, MA
Post Cathy/
Hi Cathy,
You are very welcome...I have been going through this for 6+ years with Mom...
I just went to a lecture last week given by the chief of staff neurologist from Mass General Hospital, Boston, Harvard Medical School....he is TOTALLY AGAINST RISPERIDAL....In fact, he is against any anti-psychotics; but when pushed...he said a tiny, tiny amount, but not Resperidal...never...it just does not agree with LBD....
The neurologist is the specialists...and sometimes even they are not familiar with LBD...but, thank God, your Dad's is...if he DX it....

Just push these doctors and don't take no for an answer...some conditions can not wait 2 months for med problems...How much Risperidal is your Dad on? I took my Mother off it and never told her PC dr until about six months later when she make the comment that my Mom seemed to being doing better...then I told her why....This was all prior to LBD DX...

Please check out the Yahoo site....go to Yahoo mail....groups....LBDCaregivers is the name of the group....it's a great group with a ton of info....
Hugs,
Diane

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Caretaker Daughter of 79 YO MOM with Vascular Dementia & AD


Wed Nov 29, 2006 3:08 am
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Post 
Hi Cathy,
I am glad you found the LBD forums, here is a list of bad meds.
I hope this can be helpful for you! :) Risperdol was very bad medication for my husband!


BAD LBD MEDICATIONS



One of the symptoms of LBD is extreme sensitivity to many medications.

NEUROLEPTICS AND OPIATES ARE LIFE THREATENING.



DO NOT GIVE: Haldol, Clozapine, Morphine, Demerol, or any other neuroleptics

or opiates. All medications ending in “azine” may cause neuroleptic

malignant syndrome.

Seroquel, appearing to be the least likely neuroleptic to cause problems,

has made some LBD patients worse, causing extreme

stiffness, dizziness, drowsiness, lightheadedness, vision

changes, and marked increase in confusion. Use with extreme

caution.

AVOID:

Zyprexa

Ativan

Mirapex

Selegeline

Ambien

Provigil

Benedryl



USE CAUTION:

Dilantin....extremely careful monitoring of levels is needed

Sinemet....may cause increased dementia, stiffness, and hallucinations

some LBD patients


Wed Nov 29, 2006 5:54 pm

Joined: Tue Jun 27, 2006 12:43 am
Posts: 47
Location: Boulder, CO
Post 
Irene,

What is your reference for declaring Provigil a medication to use with
caution......Our neurologist has not declared it a drug to use with
caution.

My husband takes it with no problem.

Fran


Wed Nov 29, 2006 7:13 pm
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Post 
Fran,
I make no reference to it per say it is on the list of Bad meds for LBD, I have no experience with it at all, we never used it. The med we had a problem with was Risperdol and that was that was in the post I answered and sent this list to.


Wed Nov 29, 2006 9:25 pm

Joined: Tue Jun 27, 2006 12:43 am
Posts: 47
Location: Boulder, CO
Post 
In the note you have sent to people on this site, you list meds that
are bad to take.....you also have a list of meds that include ambien,
ativan, etc. In this latter list you mention provigil.

I'm wondering what your reference is for mentioning provigil with
the cautionary meds and what's cautionary about it.

Thanks

Fran


Wed Nov 29, 2006 10:11 pm
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Joined: Tue Jun 27, 2006 12:43 am
Posts: 47
Location: Boulder, CO
Post 
Irene, Is the med listing you circulate to people on this site copied from
another site??? Is that where you get the information??? If so, do you
remember where you copied it from???

Thanks

Fran


Wed Nov 29, 2006 10:15 pm
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Joined: Thu Nov 23, 2006 12:28 am
Posts: 5
Post 
Thanks for your info, Irene.

Are there any so-called "good meds" for LBD as it progresses? It seems that every medication I see mentioned on most sites has serious potential side effects. My dad's delusions are really out of hand. His neurologist said she will try her best to fit him into her schedule next week.

Any help is much appreciated.

Cathy

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yukoner181


Wed Nov 29, 2006 10:31 pm
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Dear Cathy,
The one medication that did work for us was the seroquel but be cautioned it does not work for all people with LBD, hopefully whatever the Dr chooses they will start out with small doses.
Good Luck! :)


Thu Nov 30, 2006 12:56 pm

Joined: Mon Jun 05, 2006 3:29 pm
Posts: 93
Location: State College, PA
Post Regarding medications - a reminder from the LBDA
I would like to remind everyone that LBD patients do not all respond the same to medications. Here are a few things to keep in mind...

1. Studies show that up to 50% of LBD patients who receive antipsychotic medications respond negatively to them. That means 50% of LBD patients who receive them do NOT respond negatively. It is not a black and white issue at all, but justifies a cautious approach to the use of all antipsychotic medications.

2. Traditional antipsychotics are contraindicated in LBD. The newer atypical antipsychotics are considered safer, but still bring risk of severe reactions in some LBD patients.

3. Provigil is used in LBD to treat excessive sleepiness, and should be managed by a doctor well-versed in treating sleep disorders.

4. The opinions posted in this forums (including mine) are not a substitute for professional medical advice. Please take all suggestions found here back to your doctor and discuss them in regards to your particular situation.

Thanks,
Angela Taylor
LBDA


Fri Dec 01, 2006 9:29 am
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Post 
Fran,
I have folders upon folders of information on LBD and I really can't say for sure where that one came from , could have been on the caring spouses list. When I started research on LBD for our personal use I just copied many things of interest to me into folders.


Fri Dec 01, 2006 4:44 pm

Joined: Thu Nov 23, 2006 12:28 am
Posts: 5
Post 
Hello Irene, Fran and Angela,

Thanks for your info. My dad's neurologist was kind enough to see him within the week. She changed his meds - he will try Seroquel now, cutting the lowest dose available (25 mg) in half and taking just before bedtime for one week. If it's well tolerated, he is to take the other half at mid-day also. The neurologist has asked that my mom and dad call in after 2 weeks for a verbal report on how he is doing (after my parents mentioned that it is far to get to her office) and wants to see him again in 1 month. My dad's GP has seen him 3 times in the last 2 weeks. GP calls neurologist on a regular basis. We count ourselves fortunate that Dad's getting such attention and care. On the downside, LBD is really taking a hold of Dad lately. It's so sad. I will go see the "behaviour" section now, as we could use some advice on that front.
Thanks again for your care and support.
Cathy

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yukoner181


Tue Dec 12, 2006 12:22 am
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Post 
Hi Cathy,
I hope it works for your Dad and things will calm a bit. It's good to hear that you feel your Dad is getting good medical attention, thats half the battle!


Wed Dec 13, 2006 9:29 pm
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