View unanswered posts | View active topics It is currently Thu Sep 18, 2014 10:11 pm



Reply to topic  [ 21 posts ]  Go to page Previous  1, 2
 new tv show on lewy body 
Author Message

Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: new tv show on lewy body
Okay…watched the trailer…..

my guess….

man on a mission….gonna correct all the mistakes…he (thinks) he has made in his life….going to fix the world….whether they are ready for it or not….

knows he has only a small amount of time to do anything in….

….why does this story line look familiar….? :lol:

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Thu Oct 06, 2011 3:14 pm
Profile

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: new tv show on lewy body
You can watch the first episode online here:
http://www.starz.com/originals/Boss/Scr ... /episode-1

Right after the credits, the term "Lewy body" and the symptoms are introduced like a sledgehammer. Survival time is said to be 3-5 years. Incredibly, the MD said that "haloperidol might be given for the neuroleptic side." I guess the TV show's producers didn't understand what they were given from the LBDA.


Tue Oct 18, 2011 12:10 pm
Profile

Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: new tv show on lewy body
robin…

if an MD follows the subtle hint left by the credits….then lifetime might tend to be the shorter value…

first time I have seen this lower value….they are going for the drama….

maybe there is time for LBDA to contact these guys and straighten them out….

I sure hope this show doesn't make my already tough road rougher as still trying to be independent…

thats my fear…

I saw Grammer on CNN last night….they said about the show…..a very violent man….and behaviors…..and something else….that was strong….

and I thought….great…..just great….

I am trying to get people to go easy with me so we can communicate and enjoy the moment…

this show is going to terrify them…everyone is going to be scared to death…

of course I could be wrong, hope I am wrong….please let me be wrong

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Tue Oct 18, 2011 3:21 pm
Profile

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: new tv show on lewy body
Craig,
After watching the first episode, I share your concerns.
Robin


Tue Oct 18, 2011 7:42 pm
Profile

Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: new tv show on lewy body
I watched the pilot….

This is so wrong….I am being prostituted so a few hollywood types can have a few more houses…
.that is real 'quote' from Grammer…said he was going to be able to probably be able to buy a few more houses….
I have no problem with earning all the houses he wants….
but, not to be able to make my life harder…
if he was showing how people could make life with lewy better….

the anger scene was real….too real…
tremors….maybe a little exagerated for effect….had to be able to hear it….

the sex….why? I don't get it….do they think everyone is an adolescent?

this is so wrong to be the public's first exposure to this disease…

I am having such a hard time trying to deal with my anger right now….
I don't mean after watching the show…disgust…now
anger….in daily life with people who pull my triggers…
after I beg them to stop…

and I get it….

those around me don't have time to stop and hear what it takes to change the environment….
Instantaneous to make for a safe and secure communication…..
I get it….life goes on for everyone else….

I saw the set up in the set up…..
the answer is to hide it….or drug or restrain….

and then I am sure next is going to be delusions and paranoia….
ya think?…..

talk slow to me….
look me in the eyes…
don't talk over me….
DON"T OVERWHELM ME…….
Don't tell me I am controlling….ya think….
I am trying to save me and you by telling you to stop….

and then we don't have any anger right now we can't control…..
we can all enjoy me being around then….

this show is going to be bad for me….no doubt about it now…..

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Wed Oct 19, 2011 1:01 am
Profile

Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: new tv show on lewy body
here is a newspaper review…
http://www.sfgate.com/cgi-bin/article.c ... 1LIDUB.DTL

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Thu Oct 20, 2011 12:52 am
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 21 posts ]  Go to page Previous  1, 2

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.
Designed by STSoftware for PTF.
Localized by Maël Soucaze © 2010 phpBB.fr