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 Runny nose 
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Joined: Wed Dec 12, 2007 4:53 pm
Posts: 88
Location: Melbourne Beach, FL
Post Runny nose
Hello:

My LO has developed a runny nose that seems to now be ever present. He gets used to it and stops wiping his nose and the result can be unattractive. Any suggestions?

Thanks,

Joy


Wed Jun 25, 2008 12:14 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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This is very common. It is hard for some caregivers not to be revulsed by the sight. Your LO is likely unable to sense that there is mucus on his face. I don't think there's anything you can do to make him be aware of it. You can choose to control your own response to it.

There are at least things you can try to lessen the mucus: guaifenesin (Mucinex) and loratadine (Claritan). Do a search of past posts using the word "mucus" or "drool" to see what remedies others have considered or used.

You can keep tissues nearby, and constantly ask him to wipe his nose. Some find it helpful for their LO to wear cotton wrist bands (like tennis players wear) so there's a "cloth" always available. You'll go through several pair of these wrist bands in a day.

Botox injections can be used to lessen drool so perhaps these injections can reduce nasal discharge....ask the neurologist about this, if you are interested.


Wed Jun 25, 2008 1:02 pm
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Joined: Sat Jan 27, 2007 8:38 pm
Posts: 712
Location: CA
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My solution is to consider buying stock in kleenex! The runny nose is persistent, but I'm fortunate in that Jerome is very aware of it. We go through boxes of facial tissue each week. Best bargain I've found is the 230-sheet 2-ply box for 99 cents at the (you guessed it!) store. Cheers!

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Renata (and Jerome-in-Heaven)


Wed Jun 25, 2008 1:59 pm
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Joined: Wed Dec 12, 2007 4:53 pm
Posts: 88
Location: Melbourne Beach, FL
Post Runny nose
Thanks a lot. I keep lots of tissues everywhere. I have Claritin and will try it. I was just hoping somebody had a magic bullet.

Joy


Wed Jun 25, 2008 5:09 pm
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Joined: Sat Oct 27, 2007 9:16 pm
Posts: 165
Location: tennessee
Post runny nose
Always learning something new here. Never knew the runny nose was one of Lewy's tricks. Here in Nashville, we just assumed nasal allergy.

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Would have despaired...


Wed Jun 25, 2008 6:21 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post runny nose and drool
My husband always has a runny nose but it's just a drip and I'll tell him to wipe it. His drool is non-stop, he's not aware that he has a stream of slimmy drool unless it falls on his arm or hand. I TRY to ignore it but I'm constantly steping in puddles or cleaning them off the tables or counter. We are going to see a neuro in Boston in August, she does give botox injections. Franks not sure if he wants that, but we are house bound, can't go out socially, even when I suggest he wipe his mouth, it takes him so long to process what I said, it's hit the ground and another drool is on the way. I'd love a magic bullet solution. Gerry


Wed Jun 25, 2008 6:52 pm
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Joined: Tue Apr 24, 2007 1:09 pm
Posts: 43
Location: Alberta, Canada
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Oh yeah...the runny nose. Of all the symptoms and problems that my mom is experiencing with Lewy Body, she finds this one the most distressing (to the point of tears).

We finally got the neurologist to refer us to a ear/nose/throat specialist, where I learned more about the wonders of the nose than I could have imagined! What a busy and efficient organ the nose is......did you know that the average human nose produces approximately ONE PINT of fluids per day as the result of processing the air we breath???

Specialist diagnosed the problem as "vasomotor rhinitis" related to Lewy Body. Anyway, we were told that there really wasn't much that could be done, apart from the various sprays and Claritin (which were not beneficial and would only be a short term solution). The specialist was very educational, and related the workings of the nose to the autonomic nervous system. Since Lewy Body results in autonomic dysfunctions (e.g. variations/fluctuations in blood pressure, temperature, etc), and the organs in the nose are a part of that system, it appears this may be the cause of the continual dripping. The fluid produced by the nose usually gathers in the back of the throat and is swallowed each time we routinely swallow. The specialist believed that with mom's Lewy Body, there is either a swelling of the tissue at the back of the nose, preventing the fluids from going down the throat......and instead, the fluids (up to a pint a day) end up coming out through the nose. Or, she's not swallowing on a regular basis, the fluids back up, and come out the nose instead of down the throat.

Apparently the problem sometimes magically resolves itself and just disappears with no reason.......we keep hoping for that day!!

In the meantime, I've found tissues with lotion are the best for mom, as her skin is so sensitive that her nose was becoming raw from the constant wiping. If I ever lose mom, I'll be able to find her by the trail of tissues she leaves behind.....

Good luck, and if you find the magic bullet, PLEASE share it with us!!

Peace,
Suzee


Wed Jun 25, 2008 7:23 pm
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Joined: Wed May 30, 2007 12:09 pm
Posts: 114
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Suzee, You hit the nail on the head. I always comment on the trail of tissues mother leaves wherever she goes. In bed, at the table, in her chair etc. Make sure to check all pockets cuz everyone of them have a tissue in it. We have a box of tissues in every room, sometimes 2. In the car, in her walker...You name it, it has tissues.
We tried Aricept again ( she can't tolerate it ) stopped it for the second time. I can tell you her nose ran double time on the Aricept. It still runs but not half as much.
Daddy with PD always has a runny nose. Drooling also. Evidently he doesn't feel it as we have to tell him to wipe. It does turn one off. :roll:

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#1daughter

Caregiver to 84yr. mother w/LBD & 83yr. dad w/PD


Wed Jun 25, 2008 8:26 pm
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Joined: Sat Mar 22, 2008 9:14 pm
Posts: 15
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Hi, number one daughter! God bless you! yes, runny nose is a one of the symptoms of Lewy Body. yes, tissues tissues and more tissues. Constantly were wiping my mom's nose. Claritin did help a bit, but nothing cured it... so just keep those tissues on hand.


Fri Jul 25, 2008 10:50 pm
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Joined: Thu Aug 30, 2007 6:15 pm
Posts: 231
Location: Charlotte, NC
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Am wondering if the aricept has anythng to do with the runny nose. A man in my LO's facility has alzheimers and sits across the table from him. He takes aricept and his nose runs non stop. My mother, on aricept, also had a runny nose, kleenex in sleeve. When my LO took aricept, same thing, but not as much. He is now on the exelon patch and has no nose running. Coincidence??


Sat Jul 26, 2008 9:17 am
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Joined: Wed May 30, 2007 12:09 pm
Posts: 114
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We tried Aricept 2 or 3 times and had to stop. Each time my LO's nose ran to the extreme. Once the Aridept was stopped her nose still ran but not half as much.

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#1daughter

Caregiver to 84yr. mother w/LBD & 83yr. dad w/PD


Sat Jul 26, 2008 12:34 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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Many do not take Aricept and still have a runny nose.


Sat Jul 26, 2008 1:03 pm
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Joined: Tue Apr 24, 2007 1:09 pm
Posts: 43
Location: Alberta, Canada
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Mom's runny nose started before the Aricept, and I can't really say whether it got worse on Aricept or not. It seems to fluctuate from day to day as well.....but the Aricept is a constant. So, I'm thinking that in mom's case, it's not related to the Aricept.

However, after 2 years on Aricept, I'm questioning whether it is effective anymore. But if it is still somewhat effective, I dread thinking about what mom would be like without it. And she is SO fed up with seeing doctors, I don't think trying to change to Exelon patch right now would be possible. Lately, her biggest complaint is that the doctors only want to see her to make more money, as nothing they do makes her any better......

Peace,
Suzee


Sat Jul 26, 2008 1:43 pm
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Joined: Wed May 30, 2007 12:09 pm
Posts: 114
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Yes Robin, My mother does not take Aricept and she still has a runny nose. It is twice as bad while on the Aricept.

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#1daughter

Caregiver to 84yr. mother w/LBD & 83yr. dad w/PD


Sat Jul 26, 2008 2:11 pm
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Joined: Sat Mar 22, 2008 9:14 pm
Posts: 15
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funny comment manymoons...lewy bodies draining the brain. One thing you do need is a sense of humor when dealing with LO and LBD that's for sure! I do know that I read somewhere that runny nose is a symptom of Lewy Bodies.. If I ever find where I read it, I'll post it on here. I agree, it is just another misery of Lewy Body Dementia.. along with the many other symptoms.. it's brutal, I've been there and have lived it, every symptom, every sadness. Like Manymoons says, "it is what it is" and to add to that, there's no changing it, just jump aboard and get on and hold on for dear life for the ride of your life!
Debbie


Sat Jul 26, 2008 9:47 pm
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