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 I NEED SOME ADVICE 
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Joined: Tue Jul 03, 2007 2:11 pm
Posts: 2
Location: Ohio
Post I NEED SOME ADVICE
I'm hoping someone can help me--my husband will go to the doctor but will not take any medication.I think he has some form of dementia but I'm not sure,his symtoms are:
1.short term memory loss
2.has trouble finding the right words
3.talks non-stop
4.seems to drop things often and has trouble picking things up.
5.it seems he has lost his sense of direction
6.no longer has good judgement
7.gets upset easy
The doctor will not order any tests because he will not take any medication.I'm not sure what to do,as he is very subborn--any advice?
Any and all advice welcome--THANKS!!


Sat Jul 07, 2007 6:23 pm
Profile YIM
Post 
Dear Ali,
I agree , you are in need of advice, I am not sure what anyone here can advise you to do. There is a reason you ended up on this site and the best I can say is most important getting him to a doctor one that will work with you as a family, we often suspect something is wrong long before it is seen by others including the Dr. I can tell you if the memory has started already and if it is a LB Dementia than more than likely the Parkinsons symptoms will turn up with in the year. What is the reason why your husband won't take the meds and what where they and what are they for, I would be interested in hearing your answer. :?


Sat Jul 07, 2007 7:47 pm

Joined: Tue Jul 03, 2007 2:11 pm
Posts: 2
Location: Ohio
Post 
HELLO IRENE,
THE REASON MY HUSBAND GIVES FOR NOT TAKING ANY MEDICATION IS,HE SAYS,YOU DON'T KNOW WHAT ELSE THAT MEDICATION CAN BE DOING TO YOU.I KNOW THIS IS TRUE BUT HE HIMSELF KNOWS SOMETHING IS WRONG AND I THINK IT'S STILL WORTH A TRY AND TAKING THAT CHANCE.I DON'T EVEN KNOW HOW I WOULD EXPECT SOMEONE TO BE ABLE TO HELP.THANKS FOR TAKING THE TIME TO REPLY.


Sun Jul 08, 2007 12:47 pm
Profile YIM

Joined: Mon Feb 05, 2007 3:43 am
Posts: 215
Location: Seattle, WA
Post 
Start with a neuropsychologist. Just some testing, doesn't/can't prescribe any drugs. . . see if there's really something other than the normal declines of aging.

From there, I think it's important to recognize that the main drugs used to treat cognitive issues are *extremely* well-understood - they're used in the elderly with multiple medical issues all the time, and they're pretty straightforward - the class of "cholinesterase inhibitors" in general has been around pretty much since 1800 and there haven't been a lot of surprises to them through the years.

Eric

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Cal is not the real name of a real 84 year old with DLB. I don't speak for LBDA, nor do I have clever initials behind my name, so information is provided without warranty. Caveat everybody. I blog at http://PragmaticCaregiver.blogspot.com


Mon Jul 09, 2007 4:07 am
Profile WWW

Joined: Wed Feb 21, 2007 11:39 am
Posts: 87
Location: Lucca, Italy
Post 
Ali, When my LO was behaving strangely it did take me a while to get him to take an MRI which in all honesty didn't such much other than an ageing brain. As Eric said, I took him to a neurologist here in Italy and he immediately dxd Parkinsonism and a few months later after a neuropsychological test and a SPECT (radio active scan) it was determined that he had LBD in addition to his Parkinsonsim. Your husband is right about the meds perhaps doing bad things and the approach with LBD is less is best, but if you get to a good doctor who knows something about LBD, if it is LBD, then he should know what meds to give or not to give. I hope you get some answer soon. Irene in Italy

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Irene in Italy


Mon Jul 09, 2007 10:48 am
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