Greetings. This is my first post. I'm so relieved to have found this resource!
My MIL is 83 and was diagnosed with PD nearly 8 yrs. ago. Her dementia began around the same time. She lives independently (a very poor decision in my view) about 20 min. away.
My first question is whether any of you can recommend any children's books to explain LBD. My DH and I have 2 young daughters (ages 3 and 5) and I'm growing tired of trying to explain PD and LBD. The flucuations are particularly difficult to explain--one minute grandma is unresponsive, mask faced, and unable to move. A few minutes later she's appropriate and telling funny stories of her own childhood. Perhaps even more difficult to explain are her delusions. (We got Nana Upstairs; Nana Downstairs
by Tomi DePoula which is excellent, but doesn't really reflect our situation.)
My second question is what advice you may have for the DIL in a difficult situation. While I want to support my DH, I disagree with the decisions he and his brother make sometimes. I understand that they want to do what their mother wants, but I think there's a point when if the person can't make his or her own decisions (or safe ones) that they should no longer be asked to decide. My BIL recently gained durable power of attorney (which took more than 5 years of cajoling). But he's out of state and of no use in day to day affairs.
I could start to rant, but I'll retrain myself.