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 calling out names of loved ones at name as well as the dead 
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Joined: Wed Nov 13, 2013 3:04 pm
Posts: 45
Post calling out names of loved ones at name as well as the dead
I am trying to figure out how much more time my mom has. Her new behavior is being agitated at night calling out for me, my brother, and my diseased dad. This goes on all night off and on. And she is very distressed. She is given Xanax to calm her.

She takes 125 mg of Seroquel which has been increased lately. Couldn't survive without the Seroquel (dodging bullets and knives), but the higher dose OR advancing dementia is causing this new and distressing behavior.

Is it close to the end? She is not seeing diseased ones, but is just calling for them throughout the night.


Fri Feb 28, 2014 12:29 pm
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Joined: Sat May 25, 2013 3:53 pm
Posts: 305
Post Re: calling out names of loved ones at name as well as the d
Hi, I think one thing you can be sure of is that calling for a LO in the middle of the night shows you are thinking of them. So your Mom is probably thinking about everyone she loves. I don't know if anyone can say how long is left but I will tell you that my father, who had a brain timor, was calling out for my Mom, who had already passed, a few nights before he passed on. Hang in there - it's a difficult time!

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Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Mon Mar 03, 2014 5:23 pm
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Joined: Wed Nov 13, 2013 3:04 pm
Posts: 45
Post Re: calling out names of loved ones at name as well as the d
Thank you....this week has been even worse...I have had one caregiver quit...Mom is becoming too stressful to handle...I am afraid no one will stay with her at her facility. Hasn't been calling names this week....has switched to becoming extremely angry with everyone for "not taking her home"


Wed Mar 12, 2014 10:21 pm
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Joined: Sat May 25, 2013 3:53 pm
Posts: 305
Post Re: calling out names of loved ones at name as well as the d
Hang in there! The one thing we do know about Lewy Body is that things will change. Hopefully a change is on the way for your Mom and she will settle down. There are lots of people looking for caregiving jobs so hopefully you can keep finding replacements!

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Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Thu Mar 13, 2014 10:49 am
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Joined: Fri Oct 24, 2014 12:25 pm
Posts: 1
Post Re: calling out names of loved ones at name as well as the d
My husband has been diagnosed with LBD. He has what I call his "dreams" because they are connected to sleep. He sees and visits with deceased members of his family often. Many times it seems they are in distressful situations and he calls me to help him. Other times he is being attacked by animals and is screaming and fighting them off. These are usually at night, but lately he has a few of these episodes when napping in the afternoon. (usually waking and wondering where that person went or not knowing where he is) His neurologist prescribed Clonazepam which has reduced the number of "dreams" (hallucinations) at night.
I don't necessarily think that talking to or calling out the names of the dead means that death is near, although I suppose it could. My husband has been doing this for a few years.


Thu Nov 13, 2014 12:39 pm
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Joined: Sat May 25, 2013 3:53 pm
Posts: 305
Post Re: calling out names of loved ones at name as well as the d
Welcome to the forum JMACS. In Lewy Body and in old age in general, what occurs in dreams and what occurs in real life seem to get confused. Our dreams are our way of processing our worries and our thoughts that we can't quite come to terms with in our waking lives. When our brains get damaged (through age or disease) what we see in our dreams often becomes part of our reality. It sounds like your husband is processing his fears and hopes so comfort him as best you can, that's about all you can do. I think when people are thinking about dying, they think about those who have gone before...

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Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Mon Nov 17, 2014 1:13 pm
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