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 Delusions/Paranoia? 
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Joined: Sun Sep 15, 2013 6:19 pm
Posts: 3
Post Re: Delusions/Paranoia?
Wow, I totally get the part about the never letting up. My husband has one topic of conversation...his delusions of persecution. It is...all...he...talks...about...morning...noon...night, 3:00am, 5:00am...completely micro-focused on it. Nothing can dissuade him, or change his mind, or his train of thought or convince him he is wrong, and that he has no antagonists to fear. It has been this same delusion for almost a year now, day in, day out, SOOO difficult to deal with, some days I just want to run away screaming. Seroquel isn't helping, he takes it but none of this is changing. I wish I knew how in the world to throw this topic out of his head, it is absolutely wearing me out...


Tue Oct 08, 2013 12:05 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Delusions/Paranoia?
Nothing will dissuade him from his delusions. The specialists never really address these issues [they don't have to live with them 24/7!]. Seroquel seems to help my husband with his hallucinations [although he still has them] but not his delusions. Most importantly, it helps curb his aggressive hostility. It's an ugly disease and a very difficult one to address, much less to live with, seeing our life partner for many years in such a state. I can only offer my empathy and understanding. :cry:

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Oct 08, 2013 9:45 am
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Joined: Sun Jan 11, 2009 8:17 pm
Posts: 104
Location: Arkansas
Post Re: Delusions/Paranoia?
Hello. I symphathies with all of you. It does seem men have a worst time of it. My mom has long been thru that stage of LBD. But when she was, I tried to liken it as walking thru one of those fun houses: mirror, slanted floors, water, thing sideways and upside down. That how it seem to me as mom would describe things. The best thing I found is NOT to ask question about what they are seeing. I know that's hard but it only aggravates them. Acknowledge what they see, reassure them that you are doing all you can to keep them safe and comfortable, and that you know it must be difficult for them to have to deal with this or that. It doesn't help to tell them it's not there. Distraction, something they like, might help. Looking at pictures with them, playing their favorite old time music, taking them on a walk (in wheelchair if need be). I had to have mom's purse and wallet available to let her look at everyday so she was assured her important stuff was there. Telling them doesn't help, let them see it. They are trying to make sense of the crazy world they are forced to live in. Keep things as calm,simple and uncluttered as possible. Eventually most of this will pass then they mostly sleep. Mom did best with every little meds. Namenda,trazadone at night. But it was about 2 years of crazy hours, crazy talk, crazy seeing things. Stay as calm as you can and don't try and reason with them, just symphathies with them. Hope that help a little. Take care of yourselves as best you can. Mom is now 94, been living with me 4 year. Has signs of LBD over 9 years. I haven't posted in a long time, but now things are quite as she sleeps.


Sat Nov 02, 2013 10:57 pm
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Joined: Wed May 22, 2013 8:49 pm
Posts: 4
Post Re: Delusions/Paranoia?
Oh yes, my LO would always check the locks on the doors at night at least 4-5 times. Was becoming afraid of the night outside. His paranoia was increasing and his delusions ongoing. So far no hallucinations.

His worst delusions were of family or friends. Thought his son was coming, with a gun, to kill him. 2 of our friends were out to get him. Then he would have a "get even" tirade that would last for weeks if any of these people were remembered. The worst and still re-occuring delusion was that I was having an elicit affair in "the back room" (many colorful details to that one) when I was just trying to get a decent nights sleep in a spare bedroom. I had to hide all sharp objects in the house. Got pretty scary. Now it is the doctors and staff at his facility putting him there just to take his money. Sigh.

I am quite sure there is some PTSD in there from his time in Vietnam. He surely saw some horrific stuff. Never would want to talk about it.

Thanks to you all. Patlu


Sun Nov 03, 2013 10:14 pm
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Joined: Fri Apr 05, 2013 6:34 pm
Posts: 17
Post Re: Delusions/Paranoia?
My husband isn't to this point, unless he is hiding it from me well. He does HEAR things though. Doors slamming, me screaming for help, somebody in the house at night talking, music playing. It is interesting, because he is 95% deaf. I wonder if that is why he has more of this type of 'hallucination' than visual ones??? Has anyone had this experience?
After reading some of your comments, I don't know if I can handle this weirdness when it begins to happen. I am not a very patient person. How do you deal with this irrational behavior?


Thu Dec 19, 2013 7:45 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3370
Location: Vermont
Post Re: Delusions/Paranoia?
Many times we try to redirect and get them off the topic. When that doesn't work, try to "go with the flow" and just reassure your LO that you are trying to help them with whatever crazy, irrational thing they are seeing, hearing, dealing with. Sometimes you can calmly explain the REAL situation (it can't be snowing outside because it's 100 degrees, so you WILL be able to get to dinner. There is no blizzard keeping you away. Your room is only 30 feet from the dining room and you don't have to go outside, so you don't have to walk in the rain/snow/sleet to get to breakfast. etc. ) When rational explanation doesn't work, you just do the best you can trying not to argue, but to reassure your LO that you are helping them with whatever. It isn't easy, that's for sure. Best, Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Dec 19, 2013 9:42 pm
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Joined: Sun Dec 15, 2013 9:36 pm
Posts: 3
Location: Chandler, AZ
Post Re: Delusions/Paranoia?
My partner's delusion seems to be that the house is filled with people. He says there is no place for him to sit down as every sofa, chair, etc. has someone sitting on it. He often has conversations with the people sitting there. He also frequently talks to the grandfather clock.


Sat Dec 21, 2013 10:06 am
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Joined: Sun Jan 11, 2009 8:17 pm
Posts: 104
Location: Arkansas
Post Re: Delusions/Paranoia?
One way to reassure them I found that might help, is to say something like. "It's ok, I'll take care of it. Or everyone is fine. You sit here. Or....it will be all right, I'll make sure everyone is taken care of. Or... Trust me I can handle this or that." Many times thru out the day I fill mom in on what going on, especially if she has a puzzled look on her face, I don't wait till she come up with something strange. Like say..." Good morning, it's a (rainy) day today. We are going to have a quiet day today. It's just you and me here this morning." I try and do it in a normal conversational way, but by filling them in thru out the day helps ground them. There was a story here once about someone thinking that a pile of unfold socks were snakes. So by keeping thinks uncluttered it could help. I look around and think of how they might mistake an item for something strange. Also it might help just to walk over to that item without saying anything and move it, or like the clock, open and shut the door. It usually makes them mad if you say this or that isn't real. I try and image what their world is like. Like if your drunk or on drugs or have a fever, how strange the world around you is. I had high fevers several time as a young child and I remember how it felt to see things. But if someone was reassure to me that it was alright but didn't try and tell me that what I saw wasn't there, I felt better.


Sat Dec 21, 2013 11:26 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3370
Location: Vermont
Post Re: Delusions/Paranoia?
Laurie has some great suggestions!

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Sat Dec 21, 2013 2:46 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Delusions/Paranoia?
I chased away many an unwanted 'intruder' and sometimes got the dog to chase him away. Other times, I would have to tell my husband that a meeting had been postponed, a flight had been cancelled, etc. which would keep him content for a little while. Other issues involved his calling 'Officer Smith' [actually my SIL] to report problems. My husband never recognized 'Officer Smith's voice and my SIL was very skilled at reassuring him that 'things would be taken care of.'

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sat Dec 21, 2013 4:20 pm
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Joined: Sat May 25, 2013 3:53 pm
Posts: 261
Post Re: Delusions/Paranoia?
Love that! :) Sure wish we'd thought of that instead of having to explain to the real police!

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Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Mon Dec 23, 2013 2:00 am
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Joined: Wed Nov 13, 2013 3:30 pm
Posts: 68
Post Re: Delusions/Paranoia?
My husband also sees people... lotsa people. I just tell him that, for this time in his life, the Lord is allowing him the privilege of seeing the angels that are always around us. This usually diffuses the situation. When it doesn't, I just reassure him that I know they are real to him and they won't hurt him.

I also find ways to make it humorous. One day I came home from work and there was water allll over the kitchen floor. Since he has poor depth perception, he kept pouring and pouring and pouring water into the cat's water bowl. I lightly said "Sweetheart, you need to pick up the bowl next time,k?" Dead seriously he said, "Well, would it help to say I didn't do that?"

I smiled and said "Sweetie, I know you see people in this house all day. But they can't move anything, they can affect no physical object. If they could, they would have done your chores for you." He laughed :D

For delusions, it's more of the same. I don't argue with him when he says he watched the dark horses change into black men (I take him with me to horse barns when I do hoof trim work), I don't argue with him when he says we live in another house, etc. Just reassure and go with it.


Last edited by ChocoMare on Thu Dec 26, 2013 1:16 pm, edited 1 time in total.



Mon Dec 23, 2013 8:01 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Delusions/Paranoia?
When I set the table for two, my husband would often ask about 'all the others' and wonder why I wasn't going to feed them. I told them that they had already eaten.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Mon Dec 23, 2013 1:04 pm
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Joined: Sat May 25, 2013 3:53 pm
Posts: 261
Post Re: Delusions/Paranoia?
When my Mom insisted that we needed to buy one of every type of meat in the grocery store - the first time we had a BIG fight about it. The second time I let her put it all in the basket and then by checkout time she was too tired and had to sit down on the bench. I went and put everything we didn't need back and then went through the checkout. She never noticed and I avoided the confrontation!

_________________
Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Tue Dec 31, 2013 2:20 pm
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Joined: Mon Jan 27, 2014 11:10 pm
Posts: 81
Location: Canada, Ontario
Post Re: Delusions/Paranoia?
Hi All; I don't know if this will be helpful or not. But if your LO is 80 or older they will either remember the Depression or have heard their parents talk about it. It isw O.K. to lie to someone with Dementia in order to achieve an acceptable behaviour, that really is not lying in essence. You could tell them we have another depression and are unable to buy all the meat, flour, cookies, or whatever it is they want to get that is delusional. I know that with mentally ill patients it is possible to help them with hallucinations by saying " I believe you see ...., but I do not see a person, dog, snake or so on. My husband see people, puppies etc. and I have not tried this as he seems o.k. with these visions and so is not affraid. Anne


Sat Feb 08, 2014 3:12 pm
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