| Author |
Message |
|
BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm Posts: 386 Location: East TN
|
 Re: Wanting To Go Home
let me clarify about what I thought I heard about default brain connectionâ¦.
overuse of default brainâ¦.
not of in use brainâ¦..~
not shutting down default brainâ¦..
when should be meditatingâ¦.
working that brain to deathâ¦.
soâ¦.could still be overachieverâ¦..but be have been able to shut down at timesâ¦.~normalâ¦..
the example that was given was a meerkatâ¦â¦ a sentry meerkatâ¦. forever on the lookoutâ¦.never shutting downâ¦.
as opposed to someone doing a little yogaâ¦every now and thenâ¦. or a enough Our Fathersâ¦. or Hail Marysâ¦..
or Ocean Waves gently crashingâ¦.
soâ¦â¦. at one time in our early existence on earthâ¦meerkat sentry behaviour was beneficialâ¦. but in todays worldâ¦.it is no longer necesary for most of us⦠and the thinking isâ¦.not beneficial for long lifeâ¦.
_________________ Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
|
| Mon Dec 05, 2011 2:15 am |
|
 |
|
JeanneG
Joined: Fri Dec 31, 2010 3:07 pm Posts: 1037 Location: Minnesota
|
 Re: Wanting To Go Home
I was doing some work tonight with a lot of waiting time while programs ran, and in those intervals I was reading a murder mystery set in 1930 London. The heroine is trapped in a dusty rare book store, with a dead body. I want to share the passage I just read:
"I sank to the floor beside the window and rested my arms on the wide window ledge. At this moment I didn't want to be grown up and independent and on my own in a big city. I wanted more than anything to be home. I wanted to be with Nanny, and Binkey, and even Fig at this moment, in a safe place far from here. And I wanted someone to rescue me."
Don't we all wish we could rescue our loved ones and bring them home?
_________________ Jeanne, 66 caring for husband Coy, 85. RBD for 30+ years; LDB since 2003, Coy still at home, in early stage
|
| Mon Dec 05, 2011 3:51 am |
|
 |
|
mockturtle
Joined: Wed Dec 30, 2009 1:46 pm Posts: 3008 Location: WA
|
 Re: Wanting To Go Home
Quote: Don't we all wish we could rescue our loved ones and bring them home? Indeed we do, Jeanne!
_________________ Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
|
| Mon Dec 05, 2011 10:41 am |
|
 |
|
Ger
Joined: Mon Feb 21, 2011 9:55 pm Posts: 354
|
 Re: Wanting To Go Home
Heartfelt - OH YEAH! 
_________________ cared for Dad who passed away on January 28th 2013 R.I.P.
|
| Mon Dec 05, 2011 11:08 am |
|
 |
|
aelisabeth
Joined: Tue Aug 30, 2011 1:42 pm Posts: 101
|
 Re: Wanting To Go Home
It is so nice to be wondering about something that my mother is going through and then to be able to find the answers here. Thank you everyone! My mother is also obsessing about going home and sometimes I have no idea what she means. I think she is so desperately seeking a place to live where there is no Lewy Body disease - a place where her brain works right. She causes so many problems messing up the situation in which she is living at the time because she wants to find home or accusing the people that are trying to help her of lying to her or abusing her because that is easier to accept than the idea that her brain isn't working right. Someone posted earlier that people with Dementia with Lewy Bodies are trying to escape Lewy and return to an earlier time of life in which they weren't suffering from it. Thanks everyone - Liz
|
| Mon Dec 05, 2011 1:12 pm |
|
 |
|
pjaj
Joined: Wed May 06, 2009 10:15 pm Posts: 15 Location: Kansas
|
 Re: Wanting To Go Home
Loved the quoted book passage, Jeanne. Very fitting for our discussion. (it fits me for sure and probably my husband too).
_________________ P. Jo Ann, 59, married 31 years to Richard, 78 yrs old. Richard was diagnosed spring 2008 with LBD.
|
| Tue Dec 06, 2011 12:52 am |
|
 |
|
BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm Posts: 386 Location: East TN
|
 Re: Wanting To Go Home
Liz,
hopethetical questionâ¦.on your quoteâ¦. [quote] easier to accept than the idea that her brain isn't working right/quote]
How could there ever be an answer to that question?
I am myself working on this very question, for purely selfish reasonsâ¦.
â¦.
I believe that my brain thinks it works fine all of the timeâ¦. I tend to trust my brain before othersâ¦. I know that at times my brain isn't faithful to my commands⦠So, I know it can't be trustedâ¦pretty much factâ¦. So, why do I trust my brain over yours?or anyone else's?
I don't know if I think it is easier for me to think like that, instead of another wayâ¦..I think, there is no other way for me to thinkâ¦. My brain is in control of my thinkingâ¦.and it is the problemâ¦. and for meâ¦.all answers have to come through my brainâ¦.my defective brain, my defectiveâ¦.failing brainâ¦.
sometimes I find myself thinking I wish I didn't know what the problem wasâ¦. but, never acting that wayâ¦â¦ sometimes forgetting that I have a problem⦠like trying to have a real conversation, maybe even one with a little power reasoning involvedâ¦at competition speedâ¦
butâ¦..when I think I am not having a brain problemâ¦..am I? it has happened that wayâ¦..I have seen the proofâ¦..and my brain is still letting me believe thatâ¦.
I believe one dayâ¦.that will not be the caseâ¦. orâ¦..I believe that one dayâ¦.. the association in my brain of my knowing that I have a brain problemâ¦.might get lostâ¦. then I would not be able to reason with the notion of having a brain problemâ¦.that lost association might be a fluctuation or a new baselineâ¦.
soâ¦if he problem can't be meâ¦..its gotta be something externalâ¦
â¦â¦. I am dealing with this nowâ¦.emptying my houseâ¦.and finding all of those things that I thoughtâ¦. someone tookâ¦. I maybe let someone borrow⦠somebody else did something to itâ¦.
I am pretty much finding things wherever I put themâ¦.at some pointâ¦.. just not where my last accurate~â¦.'my' last memory of that item doesn't match realityâ¦.. I can put together some of what has happenedâ¦.but not allâ¦. (I am finding everything)â¦.nobody did anythingâ¦except me...
What is itâ¦â¦a big messâ¦â¦ I can't trust my memoryâ¦â¦ (.) period. (.)â¦.. neither can youâ¦..
and I think it gets worseâ¦.
I don't think she is choosingâ¦.what she is thinkingâ¦.I don't think her brain is 'making' a choice to think that wayâ¦. the decision process within the brain is the culpritâ¦.not the decisionâ¦
just trying to think this stuff throughâ¦.to keep me noticing when it ain't rightâ¦..
_________________ Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
|
| Tue Dec 06, 2011 1:28 am |
|
|