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 What to do about hallucinations 
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: What to do about hallucinations
Cindi, seroquel works like a charm for many, and is disappointing for others. Fingers and toes crossed that you are in the charmed group!

If you don't think your husband can be left alone, then he is ready for adult day health services. Explore your local options and see if you can find a good fit -- it may or may not be a "memory" day program.

Good luck!

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Sat Sep 17, 2011 7:04 pm
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Joined: Fri Nov 05, 2010 11:30 pm
Posts: 317
Location: southern cali
Post Re: What to do about hallucinations
thanks for the good thoughts. appreciate it soooooo much..... and thanks for the thoughts on when day care is needed.. feeling really over whelmed lately, since its just me as caregiver.. feeling a bit guilty even thinking about it.. thanks for the needed encouragement..
cindi

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sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 11-13,released to memory care..


Sun Sep 18, 2011 10:54 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: What to do about hallucinations
Oh Cindi, absolutely no guilt necessary for adult day programs!
1) You are better able to be a great caregiver if you aren't doing it 24/7.
2) Some social interaction -- even if it is very limited -- is good for dementia patients. Coy doesn't have a lot of interaction with other clients but does have more with the staff. I think it is good for him to see someone besides me. And it is very nice when someone notices he has a new shirt, or compliments him on doing something well.
3) There are bound to be some activities he likes. Coy likes the "book club" where a staff member reads aloud a book, a chapter each Monday.

Think of it as an opportunity, not as something you are forced into.

If more than one program is available to you, see which one has a "personality" that best fits your husband.

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Mon Sep 19, 2011 12:17 am
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Joined: Tue Dec 29, 2009 2:28 pm
Posts: 464
Location: Minnesota
Post Re: What to do about hallucinations
Amen! Daycare was wonderful for Mom. The interaction was so important. She got some physical therapy there, too. She made friends - her circle of ladies at the lunch table were very supportive of each other. They each knew the others' issues and kept an eye on each other. The activities, especially music for Mom, made a huge difference. Without daycare, Mom would have been stuck with the TV, me and the aide that visited for only a couple of hours 3 days a week.

We started with daycare because home care visits were not enough and I still work full time. We wouldn't have had a roof over our heads if I didn't work, so staying home with Mom wasn't an option. So Mom was there all day, 5 days a week. The only downside was that she was pretty tired when we picked her up at the end of the day. I think she really liked daycare, though. She never refused to go, though I had to take her pretty early in the morning. And it was a wonderful bridge for me in learning to trust someone else with her care. Moving her to the next stage (dementia unit) was still hard, but I think it would have been a lot harder if I hadn't learned to trust other caregivers during the daycare period.

Fill the daycare staff in on likes and dislikes and preferred activities. It'll help them help him.

Kate

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Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]


Mon Sep 19, 2011 10:45 am
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Joined: Fri Nov 05, 2010 11:30 pm
Posts: 317
Location: southern cali
Post Re: What to do about hallucinations
thanks again.. started the process in motion today... had already looked a few that seemed to be possibilities, last month and found one that i thought would be the best for him, at this point.. more men, around his age..( 65.)plus the group seemed a bit more lively and the place was very clean.. and a big plus, it had a physical therapy area, that might be a way to introduce this to him in a different light.... as the doc had wanted some physical therapy started.. since he has been having leg/muscle problems.. so fingers crossed and with your much appreciated encouragement.. making headway.
thanks, cindi

_________________
sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 11-13,released to memory care..


Mon Sep 19, 2011 11:40 pm
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Joined: Sat Aug 14, 2010 1:07 am
Posts: 8
Post Re: What to do about hallucinations
Hi,
I have not posted in quiet a while. My father-in-law is doing amazing for the past year. We have got him on a sizure medication for the hallucinations. And sleeping pills for sleep. He has not had the hallucinations for about 8 months, with no falls, and is sleeping well. He has seen a specialist at UCLA and got the confirmation of LBD.I cannot beleive the difference he has been doing since the change in the correct medication.


Mon Oct 10, 2011 10:53 pm
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: What to do about hallucinations
Oh, I am so glad to hear that!

Yes, the right medications can do wonders. Too bad we can't pass a patient through a magic scanner and come up with exactly the right meds!

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Mon Oct 10, 2011 11:10 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: What to do about hallucinations
ccartl6688 -
Great news! What seizure medication are you using to treat the hallucinations? And what sleeping meds is he taking?
Robin


Mon Oct 10, 2011 11:19 pm
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Joined: Sat Aug 14, 2010 1:07 am
Posts: 8
Post Re: What to do about hallucinations
Hi
This is what he takes for sleep, clonazepam. This is what he takes for the hallucinations, lamotrigine. The doctor watches him because the sizure medications can cause a bad skin irtritation.


Tue Oct 11, 2011 2:31 am
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