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 Interesting new issue 
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Joined: Tue Mar 29, 2011 3:09 pm
Posts: 20
Post Interesting new issue
My client was diagnosed with LBD 2 years ago. In August it will be 2 years that I have been caring for her. About 4 months ago she started telling me that she was tired of all the reruns on TV, receiving duplicate magazines, the newspapers were all old news,etc. In other words, instead of forgetting things and they were new to her, everything was old news. She even thinks we see the same cars on the road, same people, even cats in people's windows every time we go out. I have not seen this addressed before and just wondered if anyone else has experienced this. It is not any real problem, just an interesting new phase we are going through. Thank you for any info. Marilyn


Wed Apr 13, 2011 10:50 pm
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Joined: Tue Aug 17, 2010 9:20 am
Posts: 184
Location: So Cal
Post Re: Interesting new issue
Hi Marilyn,
We went through a phase where my husband would point to someone and tell me he had seen them earlier in a car next to us on the freeway, or that we had seen the same person in several locations in a day. Sometimes he felt the person had been following him, sometimes he was just amazed at how that person was everywhere we were. I hadn't had any experience with him having delusions at that point, it was before we got a diagnosis, so for quite some time I really believed he was seeing the same person everywhere. It was only after the paranoia became apparent that I realized he wasn't really seeing what he was telling me. Sher

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Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.


Wed Apr 13, 2011 11:41 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Interesting new issue
Marilyn, I had forgotten, but Frank did see the same group every where we went. There would be 3-4 people, not always the same gender as before but he was amazed that they were always "here too". That was a couple years ago, we've gone on to bigger and better? things these days.
Gerry

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Thu Apr 14, 2011 6:27 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Interesting new issue
No, it's not a new issue.... It got to be a serious issue between Dale and me. His response to almost everything was, "I've seen that before" or "I've done that before." I really got so tired of it. It was as if his brain was always informing him that he would be bored with it if he was exposed to it again.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Apr 14, 2011 7:10 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Interesting new issue
Just wanted you all to know I moved this topic that was in welcome area,
into a area more appropriate for the topic, probably better for suggestions too as many people don't always look into the welcome area's !

We really need to stay in the area best fitting question or comment, just makes it hard for newcomers!

Thanks

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Irene Selak


Thu Apr 14, 2011 11:57 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Interesting new issue
Perhaps it's a way to "cover" for herself -- pretending as if everything is "old news" rather than admitting that she can't remember.


Thu Apr 14, 2011 2:36 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Interesting new issue
Or maybe, like my husband, there are two or three identical everythings: Houses, cars, wives, etc.!

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Apr 14, 2011 4:14 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3406
Location: Vermont
Post Re: Interesting new issue
Pat - you should get one of the other wives to clean or do other household chores you don't like! :lol:

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Apr 14, 2011 4:58 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Interesting new issue
Exactly! I don't even think he has Capgras any more. As far as I know there is only one of me now. I could be wrong, though.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Apr 14, 2011 5:53 pm
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Joined: Tue Aug 17, 2010 9:20 am
Posts: 184
Location: So Cal
Post Re: Interesting new issue
I believe Ken has moved on from Capgras as well. Perhaps we should all chronicle the order in which the symptoms/manifestations happen(ed). If I had been more aware of WHAT was happening at the time, I would have. I wonder if we could determine any sort of timeline/ chronologic stage if we compare notes??? Sher

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Sher (53) married 29 years to Ken (66) who was diagnosed with LBD in 2008, but it most likely began many years before.


Thu Apr 14, 2011 11:58 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Interesting new issue
sher wrote:
I wonder if we could determine any sort of timeline/ chronologic stage if we compare notes???
From my experience, nothing is predictable with brain disease.

In December, Dale's delusions and hallucinations returned with a vengeance. His final downturn was only 3-1/2 months long. He went from completely mobile to virtually paralyzed in that time.

He passed away after two weeks in hospice. It was a total shock.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Fri Apr 15, 2011 6:50 am
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Joined: Tue Mar 29, 2011 3:09 pm
Posts: 20
Post Re: Interesting new issue
Thank you to everyone who replied. It always helps to know that there are others out there going through so much of the same thing and actually know what we are talking about when we have a question on something.Marilyn


Fri Apr 15, 2011 10:39 pm
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