View unanswered posts | View active topics It is currently Wed Oct 22, 2014 6:18 am



Reply to topic  [ 22 posts ]  Go to page Previous  1, 2
 Sudden decline over five weeks 
Author Message

Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Sudden decline over five weeks
I think this has been discussed before somewhere--their inability to consciously move but able to spontaneously walk. If their brain doesn't have to process it first, they do fine. At least, in that stage. Five or six months ago I was still out walking the dog in the morning when our caregiver arrived early and rang the doorbell. Derek apparently got up from his chair, walked to the door and let him in! He hadn't been able to get out of a chair on his own for months.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Dec 28, 2010 12:08 am
Profile

Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Sudden decline over five weeks
Dale was yelling at 4:30 am for pain medication.

I got him standing once this morning ... but now he is back in bed too weak to do it again.
He is wearing Depends but unless he can move his rear end, I can't change it.

I gave him a cup of coffee ... hoping that would help.... but he hasn't had breakfast and it's almost 10 am. The care giver comes at 10 am.

Dale has an appointment with his PCP tomorrow and I'm wondering if I can get him there. Maybe I can't do this after-all.


_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Dec 28, 2010 10:56 am
Profile

Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Sudden decline over five weeks
How has his postural BP been running?

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Dec 28, 2010 11:07 am
Profile

Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Sudden decline over five weeks
The last sitting reading was 138 over 89 ... and then 106 over 76 a few minutes later.

He just asked me if I knew Ruby. (She has worked for us for over eleven years.)
I said, "Who am I?" and he said, "I don't know."

_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Dec 28, 2010 11:15 am
Profile

Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Sudden decline over five weeks
Does it drop a lot when he stands up?

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Dec 28, 2010 11:29 am
Profile

Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Sudden decline over five weeks
Normally, his blood pressure drops 20 degrees when he stands, yes. That has been the pattern since I started testing.

However, today I'm not trying to test him standing. :lol: It took three of us to get him upright and he finally walked to the kitchen to eat breakfast just before 11 am. He moves his feet only when we count... or he counts 'I, 2, 3, etc.

When I change his wet pad, he says moving his hips feels good.... but it's a terrible job because he can't help me at all.


_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Dec 28, 2010 1:05 pm
Profile

Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: Sudden decline over five weeks
The similarities between Leone's husband's progress and my husband's continue to amaze me. Also, it seems that the range of symptions and behavior over all cases is remarkably consistent.

My husband has issues with the toilet also. At first it was fear of it clogging, now it's a more generalized dread, expressed at night when he is pretty out of it. He would freeze right in the bathroom doorway for a long time. After trying some other solutions, I thought that perhaps we could train his feet if not his mind. During the day, we made several practice trips into and out of the bathroom without his stopping. So far it seems to be working.


Tue Dec 28, 2010 3:09 pm
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 22 posts ]  Go to page Previous  1, 2

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.
Designed by STSoftware for PTF.
Localized by Maël Soucaze © 2010 phpBB.fr