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 Sole Caregiver 
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Sole Caregiver
I urge everyone to get some kind of help, I know it isn''t always easy to arrange but find a way, tap into as many resources as you can !
Have family meetings when possible to discuss this and sometimes a plan come up with family being able to offer help, some churches have people that will offer min respite for a few hours, contact your local AD association, sometimes they have people that can help, call senior centers find out what others are doing, contact support groups, Whatever it takes!

The caregiver deserves this precious time if only a few hours here and there! It should be evryyone's New Years resolution !

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Irene Selak


Fri Dec 24, 2010 9:33 am
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Joined: Thu Dec 02, 2010 1:44 am
Posts: 93
Post Re: Sole Caregiver
Getting out of the house if only for a short time makes all the difference in the world. Gerry, I agree just when I am at the end of my rope I think of how I am going to spend my free time. It is what keeps me sane. Bernie


Fri Dec 24, 2010 9:47 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Sole Caregiver
For the benefit of those who are interested in hiring a care giver, I just started today but thought perhaps my 'research' might be informative. I began on the web and discovered that the minimum charge for a nursing home in our area is $200. per day. The next best was an agency that provides hourly care.

The contact from the agency explained that their minimum is 2 periods of 4 hours per week. The charge is $15.00 per hour but the contract requires a minimum of eight hours per week. ($120.00 per week or almost $500.00 per month) And there is an extra charge for weekends - when I am usually teaching or playing the organ.

Since four hours per visit or eight hours per week is more than I need, I asked among my friends if they knew someone who could use the money. I found a retired man - married to a friend - who is able and willing to come whenever I call. No minimum and no extra for weekends. I know him and his wife well. He hugged me when he left. I think this will work out.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sun Dec 26, 2010 4:58 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Sole Caregiver
Leone,
I hope this works out for you ! Its good to know you will help you can depend on, when I started with a caregiver I believe it was 18 an hour and I can't remember the min hours we needed to use but I know it was 3 days a week I actiually think it might have been 12 hours a week, never used the weekends as my girls worked out a plan between themselves, which I am ever so thankful for !

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Irene Selak


Sun Dec 26, 2010 5:26 pm
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Joined: Thu Dec 02, 2010 1:44 am
Posts: 93
Post Re: Sole Caregiver
Fran is a friend of Bill Wilson, and through this organization I hired my caregiver for Fran. Fran knows him very well, he is kind, has experience as a caregiver and most supportive to both of us. I don't know how I could manage without him. He is also very flexable. I dread when I can no longer afford him, which will probably be in July, 2011. I try not to look to far in the future.


Sun Dec 26, 2010 6:07 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Sole Caregiver
I have a caregiver that comes for 4 hrs on Wed, from an agency, it costs 27.50/hr, if you do 5hrs it 25.00/hr. I send a monthly ck of 440. for a 4wk month. This is the second carer that has come, the first no longer works there. I sent her a Christmas card and told her to stop in if she had a chance. She did come and she said she would be glad to stay with Frank if I needed to go somewhere. I haven't been able to go to any of our Grandson's games so I booked her for 3 of them. We didn't talk money but talking with my daughters we thought 20.00/hr would be fair.

I wanted an agency in place for an emergency. If I got sick or were hospitalized they have many that could be put in place to cover 24/7 for temp care.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Sun Dec 26, 2010 6:48 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Sole Caregiver
We're paying 18/hr weekday and $20/hr weekend for our agency caregiver. I usually only get 4 hours twice a week. The SNF he is in right now for respite is $240/day for a private room, which is their regular rate. It varies from one part of the country to another but all are pricey.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Sun Dec 26, 2010 7:11 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Sole Caregiver
Just about the only advantage of living in mid Florida right now is lower expenses. Our average home price in Ocala fell more than any other city in the nation. We hold the record! My sister was surprised that we also buy butter for about $1.80 per pound. :P

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sun Dec 26, 2010 8:44 pm
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Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: Sole Caregiver
Kinda hit the jackpot, maybe. The home health care lady came today for 5 hours, which obviously meant I could go do errands without my husband making it more difficult and giving both of us a break from each other.

The bonus is that those services also usually include meal preparation and light housekeeping. I asked her (before she came) if she would make an easy stew/soup/casserole that would be enough for several meals, and I'd have the ingredients on hand.

She made us a stew which will serve for a couple of more meals, swept and mopped the floors, washed clothes and made the bed. Not because I was pressuring her, but at her suggestion. $21 per hour.


Wed Dec 29, 2010 10:31 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3402
Location: Vermont
Post Re: Sole Caregiver
That must have felt like such a gift! The home CGs we had while my dad was still in his house were wonderful, so willing to do anything and come at any crazy hours we requested. He really liked them once he got used to them. It is such a load off when you get someone good just to do a few little things. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Dec 29, 2010 10:41 pm
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Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: Sole Caregiver
Gift? Miracle. I'm euphoric.

I encourage everyone to try to maximize any help to multi-task to make your life easier beyond the time they spend at your house.


Wed Dec 29, 2010 11:04 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Sole Caregiver
I may get there, but for now, I don't want them to do any of my work. If possible, I want them to go for a walk, all our routes are at least a mile. I have Frank's lunch ready and all she has to do is put it on the table, she does clean up from lunch.

Our first cg stopped by the day before Christmas and offered to stay with Frank if I wanted to go out. I booked her for 3 times so I could go to our Grandson's basketball games. She's terrific, she can find ways to engage Frank with fun, silly play, he says she's crazy, so it's a good match :P .

I can deal with our daily life but I find I "hate" all of this when I'm not able to partake with our grandchildren, I'll never get that back.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Thu Dec 30, 2010 7:36 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Sole Caregiver
Sounds like a few of you have found a caregiver that is going to work out, I am happy for you, everyone of you deserve a break now and then!

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Irene Selak


Thu Dec 30, 2010 11:05 am
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Joined: Sun Jan 11, 2009 8:17 pm
Posts: 104
Location: Arkansas
Post Re: Sole Caregiver
I'm in nw arkansas and there is caregiver classes given at an educational center. They provide a list of individuals that complete the CNA,PNA etc. classes and work privately. I have hired 3 different ones over time and they have worked out great. $12 hr. and you work with them directly. Also check with Area Agency on Aging and keep asking for referances everywhere. Mom is in a home based program with VA and the financal qualifcation have changed in some areas. I don't know how those of you with men can do it. It's so hard to move mom and she under 100 lbs. You really need to take care of yourselves.


Sat Jan 01, 2011 12:50 am
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Joined: Wed Sep 30, 2009 8:25 am
Posts: 227
Post Re: Sole Caregiver
I am the main caregiver for my MIL. Luckily she can afford an agency who provides the caregiver during the day. Since both my husband and I work, this allows us to both continue our careers. If the caregiver cannot make it, the agency is responsible to provide a replacement. It costs about $3000 a month, but that is still less than a SNF and we get to keep her with us for as long as we can. The agency will even provide respite care, although it will cost a bunch. So far we have not done a respite in the 15 months she has lived with us. I feel really lucky that we can continue to have her live with us.

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Donna (age 56) caregiver for mother-in-law Margaret (age 88).


Sat Jan 01, 2011 11:33 am
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