Lynn,

She was on 1mg of risperdal a day for hallucinations and aggitation. Her meds were just changed today. She will now be taking 0.5mg Haldol up to three times a day and 25mg Seroquel at bedtime. The risperdal has been removed from her meds list.

She has shown this aggitation with dad, but he has never had a time when she is refusing to go to bed. But this behavior started just 2 weeks ago. I'm sure with time (if he was home for more than a week at a time) he will see this behavior if we cannot control it with medication.This aggitation seems to just come and go, no matter who is around.

I think we can definitively state that Haldol should NEVER be given to someone with LBD. (Certainly not on a regular basis, and hopefully not under an emergency situation.)

I think your mother may have an AD diagnosis....? It's still a dangerous drug in AD (see the FDA's black box warning on all antipsychotics) but perhaps not nearly as dangerous as it is in LBD. Its anti-dopaminergic effects are what make the drug really less-than-desirable in LBD.

Robin,

Thank you for the information. I have passed this along as well as another article about drugs they probably shouldn't take that you posted.

We have been told from the very beginning that it isn't AD, was with severe dementia for a couple years and are now firmly saying that it is LBD. This is coming from PCP, neurologist, specialists and the clinical study group.

And they are putting her on Haldol?

Megan,
Along those lines...you might look for a different MD team for your mother.
Robin

I agree on finding another team, taking the haldol until they decide it is wrong for her and not knowing the damage it could cause which in fact could be permanent, that is one scary drug in my opinon !

Good Luck with all of this!