thank you all for your informative, but heart wrenching posts.
My mother, 82 has LBD. She lives overseas and my father, 79 is her main caregiver.
After having tried Dopamine and Exelon, she stopped meds related to LBD.
She thinks that meds will prolong her life. It didn't really help and there were undesirable side-effects.
Meanwhile she is taking meds for her low blood pressure.
My father has a pill crusher.
I asked her PCP to prescribe Seroquel, he refused because he is a naturopath leaning doc and doesn't know this medication.
My mother is not being supervised by a neurologist because she refuses treatment.
I will take her to a neurologist in January anyway, but don't really hope it will change her decision.
So, we are getting the raw deal, hallucinations etc.
Needless to say, it is a rough deal.
Please do not tell me what meds would help. Because of the above reasons.
Her Naturopath gave her Vita D and some herb. It does not really help.
Any body else has experiences with a loved one suffering from LBD refusing treatment?