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 Hallucinations or Vivid Dreams? 
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Joined: Sun Mar 15, 2009 5:45 pm
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Location: Northern California
Post Hallucinations or Vivid Dreams?
I was wondering if anyone else had this problem with LBD:
My husband has very vivid dreams which he acts out: he talks, yells, screams, gets halfway out of the bed and pounds his heels up and down as if running, pounds his arms into the bed. This happens every night and many times....... I wake him up when I am worried that he is going to get up and possibly run into the wall or fall down. On the other hand, he worries that he is going to hit me. Sometimes, he does grasp my hand and I tell him who I am and he relaxes. On occasion, when I wake him, he is desoriented, sees things that are not there - I assume he is still partially asleep -. When he is not at home, and gets up to go to the loo he is totally desoriented and needs me to steer him to the appropriate location otherwise he will pee in his pj's because of bladder urgency. I was wondering if there are any ways I can minimize his desorientation at night since we will be going to Australia in a week? Also, does any one know if his reenaction of his dreams will cause him to sleepwalk? Thanks so much for listening, Juliet


Wed Apr 08, 2009 12:40 pm
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Joined: Sat Dec 13, 2008 12:52 am
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Location: BC, Canada
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I was having those same reactions with my LO and then the new doctor that we are going to told me to try taking him off the clonazepam (klonopin) and that brought the night movements down to hardly any at all. I was also told at the time that seroquel can cause the reactions too but I haven't had to take him off of that yet. If the actions start up again though I will take him off of the seroquel too and then we will have to figure out something else for him but as of right now all of his meds seem to be working great and I am reluctant at this point to change anything. Also my doctor leaves it pretty much up to me as to what doses and what meds that I leave him on. He told me that I am the one that is living with him and he will help me with the meds but I have to keep him informed as to what is going on with them. Right now the doc is in agreement with me leaving the meds the way that they are.


Wed Apr 08, 2009 1:09 pm
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Joined: Fri Aug 11, 2006 1:46 pm
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Location: SF Bay Area (Northern CA)
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Juliet,

This sounds like RBD (REM sleep behavior disorder). It's very dangerous to sleep in the same bed with someone who has RBD. Frankly, you could be strangled or injured. I'd suggest calling the neurologist immediately. He may want to get your husband in for a sleep study so that the RBD can be confirmed. Common meds for dealing with RBD are Klonopin (clonazepam) and melatonin (available OTC). Boeve covers this LBD symptom in great detail, as he's a sleep disorder specialist.

He could sleepwalk.

I'd suggest trying a male urinal at night so your husband doesn't have to get out of bed.

Have a good trip!

Robin


Wed Apr 08, 2009 1:26 pm
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Joined: Thu Apr 02, 2009 9:41 am
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My husband was up and down all night; yelling sometimes, and moving things around, until the neurol. put him on clonazepam. He stills gets up and doesn't remember it the next day, but is much calmer.


Mon Apr 13, 2009 5:06 pm
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Joined: Sun Mar 15, 2009 5:45 pm
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Location: Northern California
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Thank you so much for your information. We are leaving tomorrow for Australia and New Zealand but when we come back we shall make every effort to have my husband's sleep studied to find out exactly what he has and then put him on the medication you have talked about or an appropriate medication for his condition. My husband has moved to another bedroom, sleeps on a mattress on the floor so that he does not have to fall far. So far, he is not sleep-walking. I go to him when I hear him talking, yelling, beating his heels on the floor etc......On the plane, we will try and seat him next to the window so that I will be seated on his other side and if he flails while asleep he will do no damage to an innocent seat mate. I have requested separate beds for our trip. It is going to be an adventure!! :D
Blessings to you,


Tue Apr 14, 2009 12:14 pm
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Joined: Thu Apr 02, 2009 9:41 am
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An interesting phenomena was that one night my husband dressed and went outside in the middle of the night. He went out the back door onto our porch, went down steps, and around the side to the garage and used the code to open the garage door. The next day he did not remember even getting up, and kept asking me what the code was.


Tue Apr 14, 2009 4:09 pm
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Joined: Fri Feb 06, 2009 9:25 pm
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Location: N Ala
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pop was having lots of vivid dreams. I was on the couch asleep one afternoon asleep and he work me up. He wanted to know why was I asleep! He wanted to get mad and said that I had come to the bed and told him to get up and get dressed so we could go and eat. I'd been sound asleep. There was several more times but that is the time that came to mind first/
He was hollering alot in his sleep and the Seroquel has really helped. He was on 50mg and they upped it to 75 and he isn't hollering anymore but he is never still. I was in the bathroom the other night and he was asleep. He was talking up a storm but I couldn't tell what he was saying.
The Neuro gave him an extra 25mg Seroquel for him to take when we go out in the public for agitation and it really helps calm him down. He was saying things real loud that he shouldn't.


Wed Apr 15, 2009 12:07 am
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Location: Henderson, Nv.
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Eileen,
Hope you find the post under this topic. Your moms hallucinations seem real to her...because to her they ARE real. I would discuss this with her MD and see if he can't give her something to help alleviate them. Does she take something to help her sleep at night? Half of dealing with LBD is getting the proper medications to control as many symptoms as possible.

Its not an easy journey for any of us, thats for sure. Its a kind and loving thing you are doing for your mom.

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Dianne C.


Sun Apr 26, 2009 12:51 am
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Dianne

Thanks for guiding me to this topic area. It is comforting to read what other people experience. Even though the experiences are scary at times. It so hard for some family and friends to understand why mom can seem to be functioning normal (besides her physical health problems) and the next day she is so confused. She thinks I am a little girl, usually one she can't find, or I am her mother or her sister who takes care of her, both of whom have passed away many years ago. This disease is so strange no one could make it up. I am going to discuss something else for sleep for her. So far none of the RX he has tried has worked.

Eileen


Sun Apr 26, 2009 4:29 pm
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Joined: Tue Dec 01, 2009 5:04 am
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Location: New Zealand
Post hallucinations and vivid dreams
This is so bizarre - my husband was on clonazepan too and for a while after taking him off it seemed better but now we are back to sudden bouts of shouting out, flailing around and he will grab my arm and shake it like a bone! I just get out of bed until he calms down. If he misses taking he venaflexine depressant that really causes problems - thought we were in America and couldn't get back to NZ (a mere 18 hour flight!) but in the morning couldn't remember a thing. He will alternate between laughing and then crying and having conversations with old business acquaintences.
He also has to just keep touching me to make sure I am still there- doesn't help my sleep exactly - but gets upset when I suggest I sleep in another bed. I find he is becoming more and more emotionally dependent as well as physically needing me to be on tap to cover for any lapses in ability to keep up appearances - but I guess this is all part of the problem. :roll:


Tue Dec 15, 2009 3:46 pm
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My mom also has the vivid dreams and problems separating dreams from reality. A decade before she would act out her dreams and slap her husband while they slept from time to time - I have come to understand that this is an early warning sign for these diseases.

I see a lot of behaviors mentioned in this thread that sound familiar... my mother thinks that I am her mother sometimes (we're the only relatives with dark hair) and she also asks to consult with her father, who died in 1977.

Today she told me she was dreaming about decorating her new assisted living apartment with IVY. I hope we get a chance to do that, because they're making noises there like she can't stay.


Wed Dec 30, 2009 2:50 pm
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Joined: Tue Dec 29, 2009 2:28 pm
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Location: Minnesota
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Barb and juliet, your posts made me think of something my grandmother did, way back in the 1960's, to deal with the sleeping issue and my grandfather's Alzheimer's. She got twin beds. You can set them up across the room from each other, or next to each other with just a few inches apart (better for holding hands). You could even try this out while traveling by getting a double room. If you ask, housekeeping at the hotel will help you move the beds if you need them closer or further apart.

Just a thought.

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Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]


Tue Jan 05, 2010 2:42 am
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