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 What to do when the LO tries to leave - advice please. 
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Joined: Thu Nov 23, 2006 12:28 am
Posts: 5
Post What to do when the LO tries to leave - advice please.
Does anyone have advice to share on what to do when the Loved One (LO) leaves the house and sets off on his own down the street? This has happened twice in the last couple of weeks. My dad gets upset and says he will call the police because he is being kept against his will. He then leaves the house and heads down the street. Mom has gone after him, but can't stop him, so she has called the police because she didn't know who else to call or what else to do. (She was concerned he would wander to a busy street nearby.) Anyone have ideas they have had success with? Any advice is much appreciated.
Cathy

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yukoner181


Tue Dec 12, 2006 12:43 am
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Hi Cathy,
My guess is something is bothering your Dad, of course you may never know what, Maybe he isn't kept busy enough and gets bored and then is on the move, could that be it.
The Alzheimers association has a bracelet that they sell for safe return, I think the cost is 40.00.


Wed Dec 13, 2006 9:25 pm

Joined: Tue Jun 27, 2006 12:43 am
Posts: 47
Location: Boulder, CO
Post LO leaves the house
I personally don't have that experience. Along with the bracelet
there are cards that your Dad can carry in his pocket. These are
available from the Parkinsons association and list all meds and what
is wrong with your Dad.

A friend of mine whose husband did this during the night had to put
special locks on all her doors so that he would not leave the house.

Other than that I have no suggestion..

Good luck

Fran


Sun Dec 17, 2006 1:17 am
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Joined: Sat Aug 19, 2006 5:01 pm
Posts: 79
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It's been awhile since I posted, sometimes it's too sad to share feelings. I continue to read posts and had to respond to this one. My Mom has had episodes recently where she tried to leave and "check on her kids". We had a very hard time getting her to calm down. The doctor gave us the lowest dose of Xanax (I know, it's not recommended). But we broke them in half and gave them to her when she tried to leave. It only happened two more times and the med helped. But that behavior has suddenly stopped. I think she is just getting too frail to try to leave on her own. So if you need to give a very mild med occasionally to treat her agitation and anxiety, I don't see anything wrong with it. Even if it sedates your LO, it's better than all the fear and confusion they are feeling. Everyone is different, but things are worth a try.
Sallyann


Fri Dec 22, 2006 10:06 pm
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Dear Sallyann,
I am glad you did write, I know it is hard to deal with all the feelings that come with LBD, these are deep feelings, it is hard to see a LO act out and behave the way they do sometimes, deep underneath it all she is still very much your Mother, the woman you loved all your life. I am glad the Xanax has helped and you have learned the trade off's we sometimes have to make with aggression and sleepiness because the fear and confusion has to be hard on them as you pointed out, there are NO drugs really recommended for LBD but sometimes we have to go out on a limb and try them to just give our LO's some peace. Stay in touch with us when you can. God Bless!


Sat Dec 23, 2006 1:19 pm

Joined: Mon Jun 26, 2006 11:50 pm
Posts: 11
Location: Texas
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When my Dad was agitated, the neurologist at the Univ. of Okla. that diagnosed his LBD, prescribed a low dose of Zoloft for him. We ended up not needing it so I can't say how it would have affected him but I assume the neurologist thought it was ok when he prescribed it.

By the way, I'm a 53 year old named Sally Anne with a LBD Dad in Dallas, TX. I was curious where the 52 year old Sally Ann with a LBD Mom lives?


Wed Dec 27, 2006 2:57 pm
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Joined: Sat Aug 19, 2006 5:01 pm
Posts: 79
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:lol: My Mom was born in the midwest, where it seems the whole family got the "old timey" names (Daisy, Opal, Montruel, MaryEllen). She moved to California long before I was born, but I still got one of those names. :? Most people just call me Sally, but when the phone rings and someone says "Sallyann"? I know it's family!

So, how long has your family been dealing with this terrible disease? I never know how to tell people the exact time for us, because minor symptoms had been going on before she was diagosed. Taking care of my Mom is THE most difficult thing I have ever done (and I am including 3 long labors!) It's emotionally draining to watch the one you love mentally "go away" and still be with you physically. In a rare clear moment, she is so sweet and then back to a blank stare and no conversation. I am currently thinking of discussing Hospice with her Doc.
Also, I am starting to feel as though we are not fighting this disease hard enough. I keep reading about people going to large teaching Medical facilities for care. Maybe I should look into a specialist in San Francisco or another large medical center. I'm just not sure anyone is getting any new treatment that is working. Has anyone gotten any new info or treatment?
Sallyann


Wed Dec 27, 2006 5:58 pm
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Joined: Mon Jun 26, 2006 11:50 pm
Posts: 11
Location: Texas
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To Sallyann, Luckily, my Dad insisted on a wonderful nursing center that he was familiar with when he still knew enough to be making those decisions and refused to let me take him into my home (it might be the fact that he's a male vs. me a female, although I have done everything, including all the incontinent chores, for him). He really began showing symptoms about 2 years ago, but when we look back on it we realize he had symptoms as long as 5 or so years ago.

He had a terrible fall and crushed his shoulder all to bits and during that episode, the doctors decided he had Alzheimer, but later a doctor-friend suggested I see a neurologist for a diagnosis because he wasn't showing the exact symptoms of Alzheimer. There's really nothing they can do to slow LBD down but it was good to know what it was. Also, to know that he should not take the antipsychotic drugs was good to know. It took about 6 months to get an appointment though.

I have all the admiration in the world for you to be caring for your Mom yourself. I get exhausted when I try to do it for just a few days. But, then I see the Alzheimer patients and count my blessings that at least my Dad knows who I am and doesn't ask the same question 10 million times like they do. There's the good parts and bad parts to every disease. Try to see the good parts; if you can't; go to a nursing home and look around. Like his neurologist said, "there's worse things to die of - you'll be in la-la land; it's your relatives that will suffer; not you."


Wed Dec 27, 2006 11:45 pm
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Joined: Fri Jul 21, 2006 1:05 pm
Posts: 51
Location: Houston, TX
Post 
Hello Sallyann,

When I took my mom to a large teaching medical facility it was for a DX. Not treatment. We found out that she did not have LBD, and the geriatric neuro. did not change any medications or add additional treatments. Just a lot of tests. He also said that if it had been LBD, he would not have changed anything.
I do feel better having a DX other than "some kind of dementia", but if your mom already has a definite DX, I don't know that a large teaching medical facility can do anything other than confirm, or offer another DX.
Good luck,

Jennifer


Thu Dec 28, 2006 1:48 pm
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Joined: Fri Oct 27, 2006 8:07 pm
Posts: 54
Location: New Hampshire
Post wandering
An answer to the wandering question, try going to a craft store, they have large posters of scenery, I was told by the Alzheimers Association that putting this on the door leading to outside will deter the person from leaving, they do not recognize it as a door anymore. This may also work for an LBD patient. Thank goodness my mom hasn't tried that yet, but I did have issues with Dad when he was alive, he had Alzheimers. Hope this idea helps. Shelley


Sun Dec 31, 2006 8:35 am
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