View unanswered posts | View active topics It is currently Fri Nov 28, 2014 5:48 am



Reply to topic  [ 21 posts ]  Go to page Previous  1, 2
 Behaviour causing move to nursing home 
Author Message

Joined: Fri Nov 05, 2010 11:30 pm
Posts: 318
Location: southern cali
Post Re: Behaviour causing move to nursing home
wow tonya.. when it rains it pours.. sending hugs for some relief and answers.. was wondering if you wre to use the medicine list from here, if the doc would accept its not the best drug for him..??

thinking of you and wishing you ALL well.
cindi

_________________
sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 11-13,released to memory care..


Mon May 27, 2013 9:36 pm
Profile

Joined: Wed Mar 02, 2011 1:04 pm
Posts: 251
Post Re: Behaviour causing move to nursing home
Thanks everyone.....well dad has moved to a wonderful memory care unit....I think he is doing better now after te initial adjustment due to regular medications and routine and an environment with fewer stressors....I pray now we can keep him at this nice place financially.....he has had some really good days lately and I am so grateful....he was never given haldol and the care facility knows not to give it to ppl w pd....thankfully....
Thanks to everyone here for your support!
Best,
Tonya

_________________
First symptoms in 2000 at 35 yrs old. LBD early onset dx 2-17-2011 at age 46.

' "I try not to worry about the future, but rather to "wonder"....and "wonder" is one step away from "awe" '......From a wise friend........


Tue Jun 11, 2013 7:50 pm
Profile

Joined: Sat May 25, 2013 3:53 pm
Posts: 305
Post Re: Behaviour causing move to nursing home
Very glad to hear things are settling down for you and that your Dad sounds like he's in a good place!

_________________
Gail, Forum Moderator & daughter of Doris who passed away Dec. 2010 after living with LBD for 7 years.


Wed Jun 12, 2013 12:20 pm
Profile

Joined: Sun May 13, 2012 4:31 pm
Posts: 11
Post Re: Behaviour causing move to nursing home
We were at that same place a little over a year ago. Dad was still mobile then. He came after me with a broken water glass and threatened my mom with a knife. Fortunately my husband was there to take the knife away from him. Dad was taken by police and to emergency staff to hospital where he deteriorated before our very eyes. He lost the ability to walk or do anything for himself. In May he was placed in a nursing home and he is doing the best he can. There were long waiting lists at long term care facilities so we decided to make use of an interum care bed at not one of our first choice facilities. It was the best decision we made.
We visit as often as we can. Mom goes every day.
The point is we did everything we could to keep dad home but there comes a time when we all have to make the decision that we cannot do it anymore. Don't feel guilty. There is only so much we as caregivers can do by ourselves.


Thu Jun 27, 2013 5:47 pm
Profile

Joined: Wed Mar 02, 2011 1:04 pm
Posts: 251
Post Re: Behaviour causing move to nursing home
My heart goes out to everyone...the hardest part is trying to understand that what is best for Dad might not be what he wants for himself....He has adjusted so well to the new environment that his cognition has improved...but now he realizes how much better off he is than the other residents and wants to leave. If it wasn't for the terribly distressful nights and Lewy fluctuations, I'd think that would be best for him, but people who know more than me about this are saying it isn't. And I must say the care he is getting has resulted in marked improvements physically and mentally.....so hard....
best to all,

Tonya

_________________
First symptoms in 2000 at 35 yrs old. LBD early onset dx 2-17-2011 at age 46.

' "I try not to worry about the future, but rather to "wonder"....and "wonder" is one step away from "awe" '......From a wise friend........


Thu Jun 27, 2013 7:13 pm
Profile

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3432
Location: Vermont
Post Re: Behaviour causing move to nursing home
It is very hard to move a LO to a facility when they appear to be "borderline" needing to be there. With LBD, the fluctuations can be great, so during the good times it probably does seem like a good idea to have him home. But when he is not doing well or if/when he becomes extremely aggitated, there are incontinence issues and a myriad of other symptoms, you are probably thankful he is in a place where people can take good care of him. And you know you need to take care of yourself, too. How is everything going with your health now, Tonya? Sending a big cyber hug to you, Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Jun 27, 2013 7:24 pm
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 21 posts ]  Go to page Previous  1, 2

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.
Designed by STSoftware for PTF.
Localized by Maël Soucaze © 2010 phpBB.fr