New clinical study on PD looking for participants
Received this from patientslikeme.com and thought it was interesting for our group as they are looking for study participants who do not have PD but are related to someone who has PD:
We are writing to inform you of a groundbreaking study to test a strategy to screen individuals for early signs of Parkinson disease. We are seeking your help in identifying individuals who may be eligible to participate in the study. This study is called the PARS Study and is being conducted by researchers at the Institute for Neurodegenerative Disorders and University of Pennsylvania in collaboration with PatientsLikeMe. The initial phase of the study is performed by mail and involves a scratch and sniff smell test in addition to questionnaires. Most people find the testing interesting. One of the primary goals of the PARS Study is to better understand risk factors for Parkinson disease so that it may be identified earlier in its course and ultimately prevented before the onset of symptoms.
We are currently looking for individuals with a first-degree relative diagnosed with Parkinson disease as well as individuals that have no relatives with Parkinson disease to participate. If you have first-degree relatives (sister, brother, mother, father, or children) or friends without a family history of Parkinson disease who may be interested please encourage them to participate!
In order for your relatives or friends to be eligible, they must:
1. Not carry a diagnosis of Parkinson disease or Alzheimer disease
2. Be at least 60 years old
3. Have no known reason for abnormal sense of smell (eg. Nasal trauma or sinus surgery).
This study is primarily conducted by mail and therefore your relatives do not need to live in the Connecticut or Philadelphia area to participate.
If you have a family member who may be willing to participate in the study, please have them complete the attached eligibility form. They may also find this form and additional information about the study through our website
Parkinson's Associated Risk Study Website - click here
or contacting us directly at 203-401-4300 to have an eligibility form sent to them. Individuals who are eligible and agree to participate will receive information regarding participation by mail. They may be asked to complete mail-in questionnaires each year or to be evaluated by a neurologist near their home. Some individuals may be asked to undergo more extensive testing. The level of their participation is optional.
We hope that you will pass along information about this study to your family members and friends!
Thanks for your help!
The PARS Study Team