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 Caregiving in Late Stage PD, Tues 11/22, 10amCA -webinar 
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Caregiving in Late Stage PD, Tues 11/22, 10amCA -webinar
The Parkinson's Disease Foundation is hosting a one-hour webinar on Tuesday 11/22 at 10am California time on "Caring for a Person with Late Stage Parkinson's." Members here may find the webinar of interest.

The guest speakers wrote a booklet several years ago on "Managing Advanced Parkinson's Disease." "This booklet offers advice on caring for someone whose own abilities are declining and includes decisions about housing, assistance with activities of daily living, and making end of life plans. The authors also provide information on palliative care and hospice, a concept of care that focuses on an individual’s peace, comfort, and dignity." You can download it at no charge from the National Parkinson Foundation website here:

Managing Advanced Parkinson Disease
http://www3.parkinson.org/site/DocServe ... ?docID=190

Here are the details about the webinar.

Robin



During National Family Caregivers Month, PDF invites Parkinson’s care partners to get involved through educational programs and support services. Start by joining us on Tuesday, November 22 at 1:00 PM ET online or by phone for “Caring for a Person with Late Stage Parkinson’s.”

What: What can you expect as Parkinson’s progresses to its advanced stages? How can you and your loved one living with Parkinson’s prepare for the challenges it presents? Find out by joining this one-hour online seminar. The presenters will discuss strategies for promoting the safety, dignity and quality of life for those with advanced Parkinson's.

When: Tuesday, November 22, 2011 at 1:00 PM ET

Where: Online or by Phone

Register Here:
http://event.netbriefings.com/event/pde ... ister.html


Goals for Participants:
* Recognize the importance of education and training to optimize care partner health and well-being.
* Identify how the use of adaptive equipment and appropriate cues make daily life easier.
* Be able to list suggestions for promoting safety, dignity and quality of life for those with advanced stage Parkinson's.


Who: Parkinson's Disease Foundation, joined by Joan Gardner, R.N., B.S.N., and Rose Wichmann, P.T., of the Struthers Parkinson's Center in Minneapolis, MN.

Joan Gardner, R.N., B.S.N., is a registered nurse and clinic supervisor of the Struthers Parkinson's Center in Minneapolis MN, coordinating the National Parkinson Foundation (NPF) Center of Excellence at this location. Rose Wichmann P.T., is a physical therapist and manager of Struthers Parkinson's Center. The center is recognized nationally for its interdisciplinary team approach to management of Parkinson's disease.

Together, Ms. Gardner and Ms. Wichmann co-authored "Managing Advanced Parkinson's Disease,” distributed nationally by NPF. They also developed the TULIPS program, a Parkinson’s training toolkit designed for use by senior residential facilities. Both Mrs. Gardner and Ms. Wichmann are faculty members of NPF’s Allied Team Training for Parkinson's program. They continue to work on programs and services designed to enhance and improve care for those with Parkinson's and their family care partners.


How to Attend:

* To join by computer, sign up now and you will receive tips for testing your computer to ensure the seminar plays properly on the day of the event. You can listen in through your computer or by calling a unique toll-free number.

* To join by phone, sign up now. On the day of the event, dial toll-free 1 (888) 272-8710 and enter the passcode 6323567#. Online participants can submit questions to the faculty members during the second half of the seminar. The slide presentation will be available on the web.



Information:
http://www.pdf.org/parkinson_briefing_c ... ate_stage/


Thu Nov 10, 2011 2:56 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Caregiving in Late Stage PD, Tues 11/22, 10amCA -webinar
Thank you, Robin. That sounds worthwhile.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Nov 10, 2011 3:49 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Caregiving in Late Stage PD, Tues 11/22, 10amCA -webinar
For those who can't attend, I'd suggest checking out the booklet. We sometimes refer to it in our local support group.


Thu Nov 10, 2011 5:38 pm
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