Don't be condescending, Honey
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LTCVT
Joined: Fri Jan 15, 2010 9:33 pm
Posts: 2822
Location: Vermont
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 Re: Don't be condescending, Honey There is a specific place on the forum where people with LBD can get support from one another. Does that not happen anymore? I would think it would be a fantastic place to get some support from one another, as well as the many, many suggestions in this particular discussion.
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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.
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| Sun Sep 25, 2011 8:29 pm |
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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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Re: Don't be condescending, Honey Lynnâ¦..I am smilingâ¦cracking a few teeth and biting my tongueâ¦.thanksâ¦..
it is typical to talk about patients like they aren't in the roomâ¦.
I am in the roomâ¦you can talk to meâ¦
I do use the back roomâ¦.there are two of us activeâ¦strugglingâ¦we depend on you to stay sane...
imagine if there were only two on the caregivers side and everyone else was in the back roomâ¦.and they had all the answersâ¦.
I do appreciate the back roomâ¦..
but I need the front roomâ¦.I know one day I won't be able to post here
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Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
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| Sun Sep 25, 2011 8:58 pm |
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LTCVT
Joined: Fri Jan 15, 2010 9:33 pm
Posts: 2822
Location: Vermont
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Re: Don't be condescending, Honey I was talking to anyone and everyone who is reading the posts. Since CGs cannot get into the discussion area of the people who have been dx'd with LBD, there is no way for me to know if people are there supporting one another.
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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.
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| Sun Sep 25, 2011 9:10 pm |
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BayouCajun
Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
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Re: Don't be condescending, Honey my wife and I are talking moreâ¦
there is progress in communicationâ¦
this thread has been helpful in many waysâ¦.
thanksâ¦.
Jeanneâ¦.I am taking every script given to me by Dr. Boeveâ¦and others...
I am not refusing to take anything that has been prescribed for meâ¦.
I did state that I am resistant in circumstances that you are not totally in knowledge ofâ¦.give me thatâ¦.
I give you that I am sure that I am not fully aware of my problemsâ¦.I do have themâ¦.
Kateâ¦.yesâ¦I need more local medical supportâ¦..it is overwhelmingâ¦.
Controlâ¦.yes an illusionâ¦
I am more into faith and confidenceâ¦
I retain the faithâ¦.not so much anymore in the confidenceâ¦
I know I am losingâ¦
I have faith that I will honest to myselfâ¦.hopefully when the hard decisions are necesary that honesty is still realityâ¦.
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Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years
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| Sun Sep 25, 2011 9:16 pm |
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katelu
Joined: Tue Dec 29, 2009 2:28 pm
Posts: 463
Location: Minnesota
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Re: Don't be condescending, Honey The Serenity Prayer applies here, too. Doesn't it?
"God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference."
I think its hard for anyone to accept that there is something they can't change, but even more so for someone who has had "control" over so much for so long. This is not something we are taught in our childhood. We are taught that we can do anything, overcome anything. Reality is an ugly awakening.
I have a lot of respect for people who have gained the grace to accept a difficult situation and make what they can of it. Craig, I have a lot of respect for you.
Kate
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Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]
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| Tue Sep 27, 2011 1:47 pm |
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JeanneG
Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1037
Location: Minnesota
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Re: Don't be condescending, Honey Coy has this version on a t-shrit. Craig may find it applicable, too.
God grant me the senility to forget the people I never liked anyway,
the good fortune to run into the ones I doâ¦
â¦and the eyesight to tell the difference.
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Jeanne, 66 caring for husband Coy, 85. RBD for 30+ years; LDB since 2003, Coy still at home, in early stage
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| Tue Sep 27, 2011 2:15 pm |
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empritchard
Joined: Mon Feb 14, 2011 10:22 pm
Posts: 173
Location: Portland, Or
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Re: Don't be condescending, Honey Thanks Jeanne, love the t-shirt saying!!  Ellen
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Ellen 57, caregiver for mom Marion 80, dx LBD Feb 2011
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| Tue Sep 27, 2011 3:26 pm |
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