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 Trying to sort out the state of Coy's health 
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Joined: Tue Mar 29, 2011 3:02 pm
Posts: 386
Location: East TN
Post Re: Trying to sort out the state of Coy's health
so sorry any setbacks or progression for Coy….

I watched Coy walk around unaided in a restaurant….just like Jeanne says

be safe….you two are my inspiration for the long haul...

_________________
Craig - Patient - Male - 56 years old - Lewy Bodies diagnosed on March 23, 2011 - cognitive disorder NOS dx 2007 - RBD REM dx 2007 issues for 20+ years - intention tremor 1974 - other issues many years


Fri Sep 09, 2011 2:57 am
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: Trying to sort out the state of Coy's health
I know that you guys are good, but I decided to ask for a second opinion. You'll be pleased to know that Dr. Brad Boeve concurs with your recommendation to increase the sinemet. 8)

We will also be increasing Provigil. Boeve is a strong propenent of one change at a time, so that will come later.

Thanks

_________________
Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Fri Sep 09, 2011 2:26 pm
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Joined: Wed Mar 02, 2011 1:04 pm
Posts: 251
Post Re: Trying to sort out the state of Coy's health
Dear Jeanne,
I am very sorry to hear of Coy's recent changes - I am hoping they are fluctuations or maybe just an illness that will pass....I will be thinking of you!!!
Best wishes,

Tonya

_________________
First symptoms in 2000 at 35 yrs old. LBD early onset dx 2-17-2011 at age 46.

' "I try not to worry about the future, but rather to "wonder"....and "wonder" is one step away from "awe" '......From a wise friend........


Sun Sep 11, 2011 1:51 pm
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