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 "Take care of yourself" -- how? 
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Joined: Fri Jun 19, 2009 11:23 am
Posts: 201
Post Re: "Take care of yourself" -- how?
Two years ago when our family entered Lewy land with my sweet man, like the rest of you, many, many said to me take care of yourself, finally one day I said "How, I don't know how and started crying". Every day now I make a conscience effort to take care of me first. Starting with pills in the morning. I used to make sure I got his pills out and organized for the day. Now I make sure I get my pills out first. It's really hard to take care of yourself. I know the daily pill organising is just a minor thing but I try whenever I can. I try to take care of myself first. Kind of like in the airplane when they tell you in case of an emergency put your own O2 on first so you can help someone else.
Mary


Sat Jan 22, 2011 10:43 pm
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Joined: Sun Jun 24, 2007 5:35 pm
Posts: 344
Post Re: "Take care of yourself" -- how?
Jeanne, I just LOVE this series of posts!!!! these are all great ideas!

My contribution:
Find something or someone that will make you laugh or someone that you can make laugh. Laughter is wonderful medicine for the heart and soul.

And Bernie, as soon as it gets above freezing around here, I am planning a good "hair comb" in my car! Love it!

Pat

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Pat Snyder, husband John, dx LBD 2007
Author of [i]Treasures in the Darkness: Extending Early Stage of LBD...[i][/i] [url]http://www.amazon.com/Treasures-Darkness-Extending-Alzheimers-Parkinsons/dp/1466428228/ref=sr_1_1?ie=UTF8&qid=1334092686&sr=8-1[/url]


Sun Jan 23, 2011 12:06 am
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: "Take care of yourself" -- how?
Frank usually goes to bed between 6-6:30 so I call the next few hours "my" time. Sometimes I decide to go to bed at 7-7:30, because I am free to do what I want with "my" time.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Sun Jan 23, 2011 8:22 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: "Take care of yourself" -- how?
Find a pillow that suits you. I've had neck pain stress for years... and it is worse with pulling and pushing Dale. My sister recommended the pillow that her late husband could not live without.... so I recently bought one.

It's a Sobakawa Cloud Pillow. It has tiny beads in it. For me, it's a miracle. No more pain medicine in the morning!

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sun Jan 23, 2011 8:25 am
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Joined: Thu Dec 02, 2010 1:44 am
Posts: 93
Post Re: "Take care of yourself" -- how?
My miracle pillow is a contoured pillow, where the bottom fits under the neck. You can purchase one in any department store. Well worth the money. I too suffered with neck pain until I started using this type of pillow. Bernie


Sun Jan 23, 2011 11:58 am
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Joined: Fri Nov 05, 2010 11:30 pm
Posts: 317
Location: southern cali
Post Re: "Take care of yourself" -- how?
i'm still learning is ok, to take care of myself...somehow i feel guilty or i forget or time runs out or or or ?????
but the one thing i do have. is my painting.. even if i only get 5 minutes, its like a mini vacation...
cindi

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sole CG for hubby.1st symptoms, 2000, at 55. Diag with AD at 62, LB at 64.. vietnam vet..100% ptsd disability,sprayed with agent orange, which doubled chances for dementia. ER visit 11-13,released to memory care..


Sun Jan 23, 2011 2:59 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: "Take care of yourself" -- how?
And I have my music, Cindi. When it all gets to me, I go to the piano.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Sun Jan 23, 2011 3:41 pm
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Joined: Sun Jun 24, 2007 5:35 pm
Posts: 344
Post Re: "Take care of yourself" -- how?
Jeanne, you might want to check out my post on "Tips for Controlling Stressors" for another list on how to take care of yourself as a caregiver. There is some repetition, but some new items as well.
Pat

_________________
Pat Snyder, husband John, dx LBD 2007
Author of [i]Treasures in the Darkness: Extending Early Stage of LBD...[i][/i] [url]http://www.amazon.com/Treasures-Darkness-Extending-Alzheimers-Parkinsons/dp/1466428228/ref=sr_1_1?ie=UTF8&qid=1334092686&sr=8-1[/url]


Sun Jan 23, 2011 10:14 pm
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Joined: Tue Feb 23, 2010 10:32 am
Posts: 215
Location: Kalispell, MT
Post Re: "Take care of yourself" -- how?
Cindi
See new post in Respite, Topic Artists, asking you about your art.


Mon Jan 24, 2011 2:35 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: "Take care of yourself" -- how?
Follow your heart and don't allow busy-bodies to give you advice.... especially if they are uninformed and unqualified to deal with Lewy and the problems you are having.

Some people always have an opinion. Learn how to tune them out.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Jan 26, 2011 9:16 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: "Take care of yourself" -- how?
Leone wrote:
Follow your heart and don't allow busy-bodies to give you advice.... especially if they are uninformed and unqualified to deal with Lewy and the problems you are having.

Some people always have an opinion. Learn how to tune them out.



Leone,
I am sitting here scratching my head and trying to figure this previous post of yours out, this is NOT a professional advice forum, so I would think if people are looking for Professional advice they should be asking their Doctors and not come to the forums at all ! If one is coming to the forums for advice on medications or behavior issues we all need to take it from its source of a caregiver not a professional !

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Irene Selak


Thu Jan 27, 2011 12:34 pm
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: "Take care of yourself" -- how?
Irene, I can't speak for Leone, of course, but I took her comments to mean not to listen to uninformed laypersons. I can see how it is a way of taking care of oneself to ignore uninformed busybodies who are trying to give unhelpful advice. I have a few family members who are like that and that's exactly what I do--tune them out and do what I think best.

Julianne


Thu Jan 27, 2011 3:04 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: "Take care of yourself" -- how?
As you correctly assumed, Julianne, I was thinking of the unwelcome advice of well meaning friends and not advice on the forum. Thank you for clarifying that.

'Taking care of yourself' often means listening to your own heart.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Jan 27, 2011 3:30 pm
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: "Take care of yourself" -- how?
You're welcome, Leone. Well-meaning friends with unsolicited advice can be really hard to take, especially in times of stress.

Julianne


Thu Jan 27, 2011 7:58 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: "Take care of yourself" -- how?
Julianne, and Leone,

I understand what you are saying now but I actually thought it was meant for the forum members and I just didn't want it to blow up here (which has happened in the past ) because there are so many great forum members with great tips and advice but again we are all just layman trying to help one another through a very rough illness !

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Irene Selak


Thu Jan 27, 2011 8:05 pm
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