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 Let's Share Some Comfort Feeding Ideas 
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Joined: Wed Oct 20, 2010 10:50 am
Posts: 1
Post Let's Share Some Comfort Feeding Ideas
My father has LBD, he is at the point where he needs to be fed by others and there is a worry of aspiration.

Food was and still is (in his own way) a big deal to him. He loved great restaurants and my mom’s cooking. Now in the hospital he gets the pureed, microwaved stuff, which I only hope tastes better than it smells.

After reading the Comfort Feeding for People with Advanced Dementia article ( http://www.lbda.org/index.cfm?fuseactio ... n=72286960 ) and realizing that the food is for enjoyment more than nutrition I thought this might be a good place to share ideas on foods for comfort eating.

The article has examples of mashed bananas & strawberries. My father’s favorite dish was poached salmon so my mom is going to try and cook it a little long so it gets pasty and feed it to him by the small spoonful. I think there are probably a lot of ideas and ways things can be cooked that have a low risk of aspiration and are better than a puree of turkey.

So share away. I know my dad will appreciate your ideas and I am sure others will do. I'll update how the salmon idea goes.


Wed Oct 20, 2010 10:52 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Let's Share Some Comfort Feeding Ideas
Ice cream.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Wed Oct 20, 2010 11:37 pm
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Joined: Wed Dec 30, 2009 1:46 pm
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Location: WA
Post Re: Let's Share Some Comfort Feeding Ideas
PS: And be sure to avoid the kind with any chunks in it. I learned that the hard way. :-\

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Thu Oct 21, 2010 3:01 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3362
Location: Vermont
Post Re: Let's Share Some Comfort Feeding Ideas
If you type in "smoothies" in the search area you might see some postings about pureed/soft foods that were discussed fairly recently.
My dad barely eats now, but he will usually eat puddings, applesauce and cold, wet fruit like cantaloupe and watermelon. They seem to do down pretty easily. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Oct 21, 2010 8:02 pm
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Joined: Sat Jul 19, 2008 10:29 am
Posts: 126
Location: Italy and Toronto (Canada)
Post Re: Let's Share Some Comfort Feeding Ideas
Regarding ice cream: For people with swallowing difficulties and risk of aspiration, especially those on thickened fluids and pureed diets, ice cream can be a hazard. The reason is because ice cream becomes liquid in the mouth and can cause choking in patients with swallowing problems.
My father loves ice cream more than any other food and unfortunately for the last 2 years due to his swallowing problems, we have been told by the speech pathologist to avoid ice cream.


Tue Nov 23, 2010 6:56 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Let's Share Some Comfort Feeding Ideas
SS - I'm probably stepping in this (I've been known to do that.) .... but somehow, the logic of denying the man's favorite food, ice cream, for two years because of the possibility of a perceived danger seems strange.

There are lots of car accidents... but I'm still driving. We do a lot of things that have some risk associated with them.

I know that my husband has occasional difficulty swallowing - but I will continue to serve him ice cream as long as he wants it.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Nov 23, 2010 7:37 am
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Joined: Sat Jul 19, 2008 10:29 am
Posts: 126
Location: Italy and Toronto (Canada)
Post Re: Let's Share Some Comfort Feeding Ideas
Leone,
I totally agree with you. We should always weigh the risks vs. the benefits. In fact, we only stopped the ice cream when we actually noticed that he would choke and cough a lot with ice cream. You see, Dad has great difficulty swallowing and is probably a lot worse off in that department than your loved one. His fluids have to be thickened to pudding consistency (really really thick) and when they are slightly thinner, he ends up choking.
ss


Tue Nov 23, 2010 8:08 am
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Re: Let's Share Some Comfort Feeding Ideas
This may seem like a dumb question, but can he drink liquids? Can he drink totally melted ice cream? Sorry.....

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Nov 23, 2010 8:49 am
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Joined: Sat Jul 19, 2008 10:29 am
Posts: 126
Location: Italy and Toronto (Canada)
Post Re: Let's Share Some Comfort Feeding Ideas
Whenever liquids are given to my Dad, he immediately chokes on them. Melted ice cream is liquid and so must be avoided. All his liquids are thickened to pudding consistency, even water! You can actually say that he "eats" his liquids.
To substitute for ice cream, we give him very cold puddings. He seems to enjoy those.


Tue Nov 23, 2010 10:33 am
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Re: Let's Share Some Comfort Feeding Ideas - off topic
Thanks for the education. That puts a whole new spin on the 'feeding tube' issue. I hope I don't live long enough to be unable to enjoy food. It's the one thing my mother enjoyed up to her death in September at 104. When she quit eating, she died ten days later. My sister thinks that decision was deliberate. She was a clever women - even with dementia. Life had become intolerable.

Sorry to pull this thread so far off topic. I think sharing ideas about what they CAN eat is a good idea. I'd get really bored with mashed everything.


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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Nov 23, 2010 10:49 am
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Re: Let's Share Some Comfort Feeding Ideas
Dale likes spicy foods. He would hate mashed anything unless it was covered in salsa, mustard, salt, or sugar. He has no sense of smell and very little sense of taste. When I think of hospital food, I think of bland.. Do some of you puree really spicy foods? Dale isn't there yet... I'm just curious.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Tue Nov 23, 2010 11:36 am
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Joined: Sat Jul 19, 2008 10:29 am
Posts: 126
Location: Italy and Toronto (Canada)
Post Re: Let's Share Some Comfort Feeding Ideas
Dear Leone,

If Dale is not having major swallowing difficulties, then I think you would still be safe to give him foods that he enjoys. It might be a good idea to have him checked out by a speech therapist (or speech pathologist). They can assess his swallowing ability and can give you good advice.

We had a speech pathologist involved from early on with my Dad, because he developed swallowing problems very early. I remember in the early stages, he could eat everything, but we were told to stay away from foods with mixed textures (such as a think soup with chunks of vegetables) because he could not manage the two textures at the same time in his mouth.

But Dale may never develop these problems. There is a resident at my Dad's facility who is 102 years old with severe tremors in her hands. Yet, she can eat anything and her food is totally normal.

Here's to hope!
SS


Wed Nov 24, 2010 4:10 am
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Re: Let's Share Some Comfort Feeding Ideas
Thanks for your concern. Dale is not typical. He has almost no Parkinson's symptoms. That includes swallowing. He rarely has a tremor.

He has constant hallucinations and delusions. He has dementia. He gets confused. He has some difficulty rising from a chair but he can walk normally when he wants to.

He has no sense of smell and little sense of taste and that's why I mentioned spicy food. As this stage, I am not very concerned about his swallowing - but that may come along as the disease invades more of his brain.

He makes an interesting subject because I can still talk with him about his hallucinations and delusions. I say they are 'awake dreams.' It doesn't mean that he can stop them, however.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Nov 24, 2010 7:07 am
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Joined: Fri Jun 05, 2009 4:15 pm
Posts: 82
Location: Onsted MI
Post Re: Let's Share Some Comfort Feeding Ideas
I wasn't sure under which topic to put my request but I am having difficullty getting my LO to swallow his meds. Today was the worst ever. He holds them in his mouth and sometimes spits them back into the glass when taking the water. A nurse told me to hold his nose and when he ran out of air he blew the water and pills out like a fountain. The Seniment (Carb/Levo 50/200) is time released and can't be crushed. Any suggestions for me. He is having some difficulty swallowing food as well. He coughs a lot when eating.


Fri Dec 03, 2010 11:14 pm
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Joined: Sat Jul 31, 2010 5:28 pm
Posts: 317
Post Re: Let's Share Some Comfort Feeding Ideas
You can go from timed release pills to regular ones that can be crushed. They will have to be administered more often, though. Sometimes you can put the pill in pudding or applesauce and they can swallow it that way. I wouldn't hold someones nose closed. Not good.

Nan


Fri Dec 03, 2010 11:27 pm
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