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 asking for input 
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: asking for input
Gerry, those are good! And number 3: I would say, best to have NO choices. Left to choose between wearing his navy blue vs. his gray sweatpants he could take an hour to decide. The idea of personal control over their environment is sound but choices in LBD don't work very well, at least in our situation.

Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.

Sat Aug 28, 2010 4:02 pm

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3441
Location: Vermont
Post Re: asking for input
I found that with my dad, in situations where I used to involve him in decision making, for his own dignity I'll say something like "We're going to take a little walk outside, is that ok with you?" rather than "do you want to go back to your room or outside?" If he doesn't want to go, he'll shake his fists and say something really nasty, and if he does, he'll answer "that'll be ok". That way he feels like he has some input, but I haven't given him confusing choices that he's not capable of making. (even with little things like that, or what color shirt to wear, etc.)

Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.

Sat Aug 28, 2010 6:01 pm

Joined: Tue Dec 29, 2009 2:28 pm
Posts: 464
Location: Minnesota
Post Re: asking for input
There is a book that I've mentioned before called Caregivers: Drowning in a Sea of Cognitive Challenges by Delaune Pollard, AccOT. In the middle of it is the most useful tool I've found (outside of this forum). It uses the Allen scale and likens each stage to a child's age, with the abilities and state of mind very similar to a child's at each stage of development. This has helped me tremendously in understanding my mother as her cognitive abilities slowly fail. It might also help professional caregivers understand their LBD, and other dementia, patients.

Also, providing in-services and materials to staff at SNF and ALF and wherever might be a great activity for "A Week to Remember" in October. There are educational materials available to volunteers. Check the home page.


Kate [i](Cared for Mom for years before anyone else noticed the symptoms, but the last year of her life was rough and we needed to place her in an SNF, where she passed in February 2012)[/i]

Sun Aug 29, 2010 12:25 am
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