Blog by Daughter with LBD Father
Here's another caregiver's blog about dealing with dementia. The author Joy Walker, based in Auburn, Washington, is writing a book called "3 Years and 13 Dumpsters: Cleaning House After Alzheimer's." While the title and sub-title of the accompanying blog also refer to Alzheimer's, Joy reports recently that her father's diagnosis has changed to Lewy Body Dementia:
"Monday, March 15, 2010
I've been mentioning Lewy Body dementia now for a few months, ever since Dad's doctor reassessed his preliminary diagnosis. What is Lewy Body, one asks. Interestingly, before this last summer, I had never heard this word before. Then I fell into conversation with a woman at one of my art shows whose husband had just died, and she said it was from Lewy Body, a Parkinson's-related dementia. As is so often the case, after that, I heard the word everywhere; suddenly, it had become the newest dementia diagnosis. It's a kind of dementia, and for those of you who don't know, dementia is basically a general decline in cognitive abilities due to degeneration of the brain. Its a symptom, not a disease in itself. Alzheimer's is the most common form of dementia, but Lewy Body is now thought to be the second most common. It causes cognitive problems like those in Alzheimer's, and motor problems like those in Parkinson's. It also seems to have its own passel of horrid and challenging symptoms not found in Alzheimer's. It seems to rapidly be becoming the most difficult and feared form of dementia, from all the accounts I've heard."
The blog was started in July 2009. I couldn't find any mentions of LBD in her blog before the 3/15/10 entry.
"3 Years and 13 Dumpsters: Cleaning House After Alzheimer's
A personal, moving, yet often funny exploration of the impact of Alzheimerâs on sufferer and family alike; from denial to diagnosis, from care-giving to cleaning out the house"