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 Dealing with anosognosia (unawareness of decline) 
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Dealing with anosognosia (unawareness of decline)
AlzOnline.net is a caregiver support forum for Alzheimer's caregivers. They have an interesting article on their website about anosognosia, which is a lack of self-awareness about one's decline or condition. The best part of the article are "examples of how to approach, interact and speak to someone who has anosognia."

Here's the summary from the article: "The person who has anosognosia is unaware of deficits or the progressive decline in abilities to manage tasks and self-care. The person with anosognosia is not in denial; they have limited awareness or are unaware of the decline. When people with anosognosia confabulate, they believe what they are saying; they are not lying. Their remarks should be treated with respect, followed by a smooth transition to whatever tasks or activities need to occur next. Regular help for the home and family, planning ahead and working with a positive, partnership approach will help with the long-term, daily care management."

Here's a link to the full article and some additional excerpts.


http://alzonline.phhp.ufl.edu/en/readin ... gnosia.pdf

"A lack of awareness of impairment, not knowing that a deficit or illness exists, in memory or other function is called anosognosia. The term anosognosia refers to brain cell changes that lead to a lack of self-awareness. ... The impairment may be in memory, other thinking skills, emotion, or movement."

"Anosognosia differs from denial. Denial is a strategy used to reject something that a person wants to ignore, partially avoid, or reject outright because it is too difficult or causes too much stress. The person may minimize a problem or accept part of the truth, for example, the person may accept the fact of being chronically ill but want to avoid dealing with it by not taking medicine. Sometimes a person is in denial in order to avoid taking any responsibility for an issue or situation. Anosognosia is not denial."

"Anosognosia may occur in different progressive memory disorders. Often the progressive dementia (sometimes referred to as a progressive memory disorder) is of the Alzheimer’s disease type, sometimes it fits into the category of Lewy body disease or a frontal-temporal lobar degeneration."

"Interaction Tips
Providing regular assistance with daily chores, transportation, and personal care and restricting unsafe activities are important. For example, someone may need to make sure that meals are readily available, that spoiled food is discarded, and that alcoholic beverages are not accessible. The controls for operating the stove and water heater should be inaccessible. Someone should be responsible for setting the home thermostat at an appropriate temperature and then locking the thermostat so that the person who is not accurately interpreting body temperature cannot reset the room temperature at too high or too low. Soiled clothing should be laundered immediately or kept unavailable (out of sight ­ out of mind) until the clothing is clean."

"The Checklist for Family Matters, located at www.AlzOnline.net is a useful tool to help families with planning for long-term care management. Regular respite for the family caregiver(s) is essential!"

"Examples of how to approach, interact and speak to someone who has anosognosia:

1. Down-size and decrease unnecessary chores and responsibilities.

Use a positive approach, such as, “It is time to plan ahead about moving to a retirement community where there are kind people and some of your friends so you have more time to do what you like, such as read and go for a walk every morning.”

Don’t use a negative approach, such as, “This house and yard are too much work for all of us. It is hard for you to take care of the house, the yard, and yourself. You need to move to a place where people are always around to help you.”

2. Partner with the person.

Use a positive approach, such as, “Let’s work together on the front porch, then go out for a nice dinner.”

Don’t use a negative approach, such as, “You really need to clean up that mess of old magazines, newspapers and piles of trash on the front porch.”

3. Focus on the person’s concern and subtly include your concern.

Use a positive approach, such as, “When you take this multi-vitamin, how about taking these “brain-vitamins” that the doctor prescribed to keep your memory strong?”

Don’t use a negative approach, such as, “The doctor prescribed these pills and you have to take them every morning.”

4. A gentle, positive voice should be part of a positive empathic approach.

Use a positive approach, such as, “To keep up with these bills, we should work as a team. I will come over on Saturday mornings with your favorite breakfast and we will write out the checks together. After you sign the checks, we will put them in their envelopes and take them to the mailbox.”

Don’t use a negative approach, such as, “You have to pay these bills on time. The utility companies have sent notices threatening to shut off the gas and electricity. I’ll handle the bills from now on.”

5. Provide available assistance and a structured schedule of tasks including personal care, activities including chores and leisure
activities, and “down-time” including a favorite activity or no activity.

Use a positive approach, such as, “After we walk the dog, we will finish the laundry and then sit down for some of that applesauce I cooked this morning.”

Don’t use a negative approach, such as, “There is so much to do? What do you want to do this morning? We have to walk the dog, finish the laundry, and clean the kitchen. The work really piles up fast around here.”


Wed Nov 11, 2009 9:55 am
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Joined: Sat Jan 31, 2009 7:21 pm
Posts: 172
Location: Ohio
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Wow! Thanks Robin. This has been very helpful. I just pray that I can find the patience to be positive. This grieving process is taking so long to resolve & somedays the anger is overwhelming. However, this article & link has been extremely helpful to me. Thanks again. Dee


Wed Nov 11, 2009 11:43 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
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I like these very practical articles that make it clear with examples about what we should say and shouldn't say. Now, if we can just remember all the tips when we need them!


Wed Nov 11, 2009 1:19 pm
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Joined: Sat Oct 06, 2007 4:28 pm
Posts: 736
Location: LA
Post Words to live by
Goodness, Robin, this is not just for Alz and LBD anymore. These tips are the words I try to live by for myself. It has become impossible for me to do my normal "productive living". Life has slipped up on me as I try to care for Mr B. there are not enough hours in the day and as I become slower and slower, I find that I must talk to myself. The negative is my conscience speaking to me and the positive helps me do what I am capable of doing.

As some of you know, I have been on this path since 1997 but the Lord has always allowed me to experience the worst scenerio before sending me help or understanding... Home Health, social workers, kind and helpful doctors, THIS FORUM, and the latest, VA affiliated agency. This agency has sent me a lady who is full of empathy and is gradually helping me take charge of Mr B., household duties, Shee-La [my dachshund] care... in other words being an extension of me.

This study you have posted teaches me that at age 87 it is time for me to allow others into my world. Being thankful for my new helper and all of you [all over again]. She comes in at 10:30 every [week day] morning and stays for several hours. I feel so Blessed.

DrP

_________________
"See this lady she's 85 but she's nice" When I joined in 2007 this is the way Mr B. introduced me to the people only he knew,he added "You need to listen to her" he was 89 then, death due to Lewy Body Dementia/pneumonia in 2009.


Wed Nov 11, 2009 1:56 pm
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Joined: Sat Jan 31, 2009 7:21 pm
Posts: 172
Location: Ohio
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Dorothea: more good news. I'm so glad to hear that you have someone coming in to help out. Good that you are getting a "breather." And you are so right when you say that this community is about more than LBD which makes it so very special. That link & article that Robin posted, opened up a whole new perspective for me because as she said, it clearly spells out exactly what my DH is going thru as well as what type of condition he has, & consequently how it affects me. So helpful just as you have always been with your posts. Keep on keepin' :) Dee


Wed Nov 11, 2009 3:22 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post words to live by
Dorothea,
I am so glad you have some who is helping and you are excepting the help you know you need. I don't know how you do what you do at age 87 !
Time to take care of you too!

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Irene Selak


Wed Nov 11, 2009 4:59 pm
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