I am posting this questions for a careingspouse member that is helping her hospice nurse compile information, if you would like to reply or have a comment please contact her directly, she is in the latter stages of LBD with her husband and isn't online that often.
Thanks to anyone wanting to help!
Our hospice Nurse Practitioner is seeking input from anyone who has had experience with hospice. She is/will be the head of the new hospice house that is under construction and is now visiting hospices to see how they're set up, what they use, etc. But she is also interested in knowing from perspective of patients and families what it is that they have found helpful, not helpful. What you wish they used, hadn't. What they did that was especially helpful to you; what wasn't. I think you get the drift. So for her, I am asking you.
Perhaps those of you who still belong to lbd_caregivers and the after LBD group would pass my questions to them as well, please? IreneS, would you mind asking the Forum folks, too? I don't mind personal replies, so feel free to include my addy, firstname.lastname@example.org
. Thank you.