Oh, yes, I've gotten to the acceptance part long since, but when he is paranoid and wants to leave the house or the room and shushes me because I might antagonize the boogeymen, I'm not always sure how far to go along or what might calm him. I use relaxation techniques with him that I know, tell him they haven''t hurt him yet so probably won't, but sometimes it takes a long time to calm him.

Kathy,

The best advice I have to offer is to read Dr. Boeve's Continuum paper so you can figure out other meds that might work so you don't have to use antipsychotics.

You might consider tacking your post on to this one about hallucinations:
http://community.lbda.org/forum/viewtopic.php?t=1896

There are many posts about treating and coping with hallucinations. You can browse the forum areas for topics about hallucinations or start a search here:
http://community.lbda.org/forum/search.php

Robin

Sue,
Can you post the official version of the stages document? Is there a reason it needs to be under wraps?
Robin

Hmmm you'd think the project would be interested in what the caregivers here know and would be sharing.

the Stages information whether posted in its entirety or not.... with permission or without.... I certainly found it extremely helpful.

I am interested as Robin says - It would be great to get the official complete document and information. It would help the 'project' to get feedback from the caregivers on this site.

Goodness sakes...lets not allow ego to prevail here...we are/were all caregivers, have much information to share and need all the help available. Stages would have been a helpful guideline to follow no matter who the authors were. I don't think accolades have anything to do with it. All associations can learn from and support each other. Lets not politicize the issue of dementia. We are all here for the same reason....help...support..information. Share everything possible be it stages, stories or other. I know I could not have made it through to the end without this forum and will always be thankful for those who helped me while on the path and to the end. As always, my continued thanks to all. Blessing to those of you who are on the journey.

So, how can those of us who could use the info. see the original document and its authors' names? It says at the beginning of the posting that it is a document being compiled by members of the Caring Spouses group. Was that not true? To whomever wrote it - can we please see the whole document now and with the authors cited? I have found it helpful in my understanding of the disease whether it is 100% accurate or not, it does give a general outline of some specific symptoms and observations of the order in which some people may experience them. It wasn't presdented here like it was meant to be a 100% perfect explanation for all with LBD, but a useful guide. Lynn

At this time, all I can think to do is send folks who request a private email with the correct document attached. A bit lame I know but better than nothing.
Regards,
Sue

No intention of getting into a contest here about what is sharing and what is misuse. I don't like to assume things but it sounds like perhaps some form of legal paperwork issue. If someone posted something they shouldn't have that issue should be addressed with that person specifically. That said, when people post, as we do here it is already public knowledge as anyone can view it. At times in my professional career I too shared many things without compliments or renumeration but did so because others could benefit by or utilize information which bettered their lives. LBD is a very wicked disease and anything anyone can do to help the caregiver or their LOs get through their journey in a more informed, educated manner should be made available to them in a selfless, positive mode.
My thoughts of support to all of you today. You are all doing a wonderful thing for your loved ones. Stay strong and take care of yourselves.
And... to all Veterans out there...thank you for your service to our country!

Ditto on thanking our veterans and current service personnel.

How do I check a private message? Or how do I send one? Bobbie

At the top of the forum pages it'll say "no new messages" or "1 new message" and you click on that. That will get you to your messages. To send one to someone, when you look at their posting and there is a tiny little almost unreadable thing that says "PM" that means "private message". The person will get it and be able to answer you via another PM.