
"Living with Lewy Body" blogs
Once upon a time, we had a member here named Pauline, aka OnTheEdge. In January '08 she started a blog about caring for her father with LBD. See her post about this here:
http://www.lewybodydementia.org/forum/v ... .php?t=610
A local group member pointed out that Pauline's father died, and Pauline stopped keeping the blog in May '08. You can still find Pauline's blog at:
http://livingwithlewybodyebook.blogspot.com/
The "Living with Lewy Body" blog has now been taken over by Pam (early 50s), whose husband John (62) began showing parkinsonian symptoms earlier this year. John was diagnosed with LBD in April '08. Initially his dementia symptoms had been explained by Attention Deficit Disorder (ADD). You can find Pam's almost-daily blog at:
http://livingwithlewybody.blogspot.com/