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 This is the story of a woman - start to end of life of LBD 
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Joined: Thu Jan 17, 2013 9:31 pm
Posts: 38
Post This is the story of a woman - start to end of life of LBD
http://www.lewybodyjournal.org/

It's gives you a lot of insight and what to expect with the horrible illness.

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Liz (59) married to Gary (64) 39 years. Gary was diagnosed with LBD with Parkinsonian features after many years of frustration in December 2011. Gary passed away on October 23, 2013.


Tue Feb 12, 2013 2:47 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3179
Location: WA
Post Re: This is the story of a woman - start to end of life of L
Thank you for sharing it. I pray my husband doesn't have to go through that kind of agony but can die quickly from a stroke or something.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Feb 12, 2013 4:01 pm
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Joined: Thu Jan 17, 2013 9:31 pm
Posts: 38
Post Re: This is the story of a woman - start to end of life of L
I agree and it is just as hard on the families.

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Liz (59) married to Gary (64) 39 years. Gary was diagnosed with LBD with Parkinsonian features after many years of frustration in December 2011. Gary passed away on October 23, 2013.


Tue Feb 12, 2013 4:17 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: This is the story of a woman - start to end of life of L
Liz,
Thanks for sharing this story , I had read this some yrs back, I actually think I was active with the journal when their Mom was alive and can remember when she passed, it was a year after my own husband passed and I remember how the family kept up with the journal ! I wish no one suffered with this illness , ever !

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Irene Selak


Tue Feb 26, 2013 7:48 pm
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