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 don't know what to do next............. 
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Joined: Sat Oct 10, 2009 9:45 am
Posts: 1
Location: North Atlanta
Post don't know what to do next.............
My mother was diagnosed with LBD recently. We did go there
and tried to figure out what to do next. She lives in Michigan, we live in
Georgia.She lives alone in a house. She is not legally divorced from my father.He doesn't want to deal with her problem. So it is going to be up to my neice and I.
I was there when she was diagnosed by the doctor with LBD.
She thinks she is fine. He recommended that she does not live alone
or drive. She is hostile toward me. Wants nothing to do with me.
I did file for a temporary guardianship, thinking that was legally the right thing to do, if I could get her to come and live with us. She does not want any part of leaving her home. She has stairs. She is paranoid and very hard of hearing.I do not know what to do next. It has been suggested to
to find someone who will check on her. She will not answer the door
or phone. Physically she is fragile, bad balance and knees.
Our fear is that she will fall and no one will know. It is hard to tell if this
is all disease or part stubborn personalily.I know that she thinks her
independence is being taken away.
She has scheduled a knee replacement surgery later this month.
I am thinking it may be the right time to just wait and see what transpires and let happen what is going to happen.
I have talked to the knee doctor and there are several pre-op and post-op
things she is required to do. She has never been good at following through.
I am returning to Michigan later this month to go back to court for
permanent gurardianship, if not for now, then later.
I have read and talked to to enough people to realize that this is
just the beginning! Help!

Sun Oct 11, 2009 3:40 pm

Joined: Thu Jul 03, 2008 11:05 am
Posts: 150
Location: Raleigh, NC
I'm sorry for the difficulties you're facing, but I suspect you're right that the knee surgery may become a turning point, in several ways. There are many on the forum more expert than I but here are some thoughts for starters:

Her orthopedist (and/or any other doctor) needs to understand her LBD diagnosis and what that means in terms of anesthesia and drugs. The wrong medication can be catastrophic.

If she is to have the surgery, she'll obviously have to go into rehab for a while. Given that she lives alone and is frail, the usual 20 days may not be enough. Can you get her into an appropriate care setting with the idea it's just until she gets better? If she doesn't exercise properly, that day will be a long way off.

Better yet, unless your neice or someone else who can oversee matters lives near her, can you convince her to come down to Georgia for the surgery, rehab and recovery, so you can give her a hand?

She may come to accept wherever she lands for recovery as home.


Sun Oct 11, 2009 6:00 pm

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
You said: "I am returning to Michigan later this month to go back to court for
permanent gurardianship, if not for now, then later."

Probably I'm not understanding your intention. I'm unclear why you would get permanent guardianship and then do nothing??

Sun Oct 11, 2009 6:02 pm

Joined: Sat Oct 06, 2007 4:28 pm
Posts: 781
Location: LA
Post Knee replacement???!!
Deb..., When I was a [fairly] healthy 72 year old, 1995, I had two knee replacements. The re hab for getting my knees to work properly after the surgery was one of the most difficult tasks I have ever had to do. I had to force myself to go through the exercises and take part in the movements required. I would be concerned about this for your mother.


"See this lady she's 85 but she's nice", This is the way my husband, Mr B., introduced me in 2006 to the people only he knew. Death due to pneumonia. Lewy Body Dementia diagnosed post mortem at Mayo Clinic in Jacksonville Florida.

Sun Oct 11, 2009 6:59 pm
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