It is very small consolation, but I'll bet the next lbd or even dementia patient this hospice team encounters will be better prepared because of their experience with you.

God bless you in your wonderful caring, Leone. My heart goes out to you and your precious Dale. Unfortunately, I have no solutions for you, but just wanted to let you know that you are both in my thoughts and prayers.
Ger xxx

It sounds like Dale and you have built some wonderful memories together. I'm sure you will treasure them forever, and if poor Dale was able, he would too. Its the memories of the good times that will help us through the difficult ones - at least I find that when coping with Dad. To be honest, I don't think I could live anywhere else. Even though the country is going through a rough time right now, I still would never settle anywhere else. I am very proud to be a genuine red-haired (yes still all my own at 45, some grey hairs but not bad) Irish cailin. I remember when I went to the states for 6 months after my 21st birthday, and people would stop me in the street and comment on my red hair - and my redder face because I got so sunburned!!!!!

You sound like a wonderful person, Leone. Even with all that you are going through right now, you still have a wonderful sense of humour - I could do with my freckles joining up - I'm called milk bottles here (referring to my white legs)

Gosh, Leone, I didn't know that was the fashion trend. OTOH, I wouldn't have a clue what the fashion trends are and never follow them, anyway. I wear whatever LLBean and Eastern Mountain sports have to offer.

Well girls, another reason why I'm glad I'm in dear auld rainy Ireland - I don't have to expose my legs very often - hosiery or no!!!

Oh Leone, my heart is breaking for both of you. I know you don't want to see him suffer any longer but it is also hard to let go. I had "the talk" with my dad just a few days before he died, telling him we are all OK and that when he needs to go, to let go. I also told him he'd see my mom and various others who had gone before him, and he should go with them. He became very lucid, opened his eyes and said "b___ s____" but then I got him calmed down again. My sister and I started laughing at what he said (probably tension relief on our part). It was the first lucid and appropriate thing he'd said that day! We really thought that was his last day, but he hung in there a little while longer, the poor man.
Thinking of you both tonight. If you don't have anyone with you, I hope you'll call a close friend or relative for support. Lynn

Oh Leone, i wish I could hug you and give you my shoulder to cry on. The best I can do is to pray for you and Dale during this final stage. My heart aches for you both, and for all of us, who will one day face this or those who already have. Love, Bernie

Leone, Dale's pain is so awful! Is this something Lewys typically endure in their final days? Hope you get it under control. It must be pure hell to see him suffer like that!

Probably a hospice nurse can best answer that Pat, but my dad was in terrible pain the last few weeks. I got really tired of asking for him to be given more morphine. I finally made it very clear that before every change he was to get morphine so that moving him would not be excruciating for him. In exasperation I asked one nurse "what's the problem? Do you think he's going to become a drug addict? He's 89 and dying for God's sake." Lynn