| Author |
Message |
|
Julianne
Joined: Sun Aug 29, 2010 5:46 pm
Posts: 600
|
 Re: Hospice And with all due respect to the hospice, social worker or anyone else, I would request the verification in writing (as Robin suggested). Medication is just such an important issue.
Julianne
|
| Thu Mar 10, 2011 4:00 pm |
|
|
|
Leone
Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
|
Re: Hospice I'm not using the stuff in the box and no one else will use it without my permission. Will everyone chill out .... and back off, please?
I can't open the Box without the permission of the doctor. I will discuss with him everything in the box before it is used.
I am at home and so is Dale. .... And so is the refrigerator where the box is stored.
_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011
|
| Thu Mar 10, 2011 4:06 pm |
|
|
|
irene selak
Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1940
|
Re: Hospice Leone,
I think people were just concerned, nothing more ! That certainly was my motive for the question but I assure you I am completly chillled out !
_________________
Some forum members may be intense in sharing what they have found to be useful/recommend certain resources.While meaning well, some comments may seem rather strong. Please contact me with any concerns.
Irene Selak
LBDA Forum Moderator
http://www.lbda.org
|
| Thu Mar 10, 2011 7:23 pm |
|
|
|
Leone
Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
|
Re: Hospice Thanks, Irene. I appreciate your concern.
As you probably know, I'm feeling overwhelmed right now. Too much is happening too fast. People coming and going here are essential but I'm stressed. One more is coming at 11 tomorrow... and then, thankfully, I have a day of rest on Saturday - before I teach again on Sunday. I also had a speaking engagement this morning... It was a group of ladies and they were a delight... but that was still one more thing on the calendar.
The last thing I need to do is quiz a doctor about what's in the stupid box... which I'm not supposed to open anyhow.  I'm sure I'll find out soon enough. Thanks again, Irene.
_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011
|
| Thu Mar 10, 2011 8:19 pm |
|
|
|
LTCVT
Joined: Fri Jan 15, 2010 9:33 pm
Posts: 2824
Location: Vermont
|
Re: Hospice My dad had a "comfort kit" from hospice, and we were all eternally grateful for the morphine. He was in a lot of pain from his infected pressure sore in the end, and they had stopped antibiotics (which had become ineffective anyway). I'm clueless about the pulmonary kit, Leone, since my dad didn't have one of those, but like you said, you'll eventually find out what's in it. Hope you have a peaceful night and get some good rest. Lynn
_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.
|
| Thu Mar 10, 2011 8:38 pm |
|
|
|
Leone
Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
|
Re: Hospice Thanks, Lynn. Dale started on Methadone tonight so hopefully, his pain in his legs and neck will be relieved and he will sleep more peacefully.
It was my choice to have him in our bedroom with me at night so I'm aware of his needs. It reminds me of when my infants were in a basket next to my bed.  I'm glad to have this time with him. He is still a precious man.
_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011
|
| Thu Mar 10, 2011 9:09 pm |
|
|
|
Leone
Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
|
Re: Hospice Here is what our neurologist would have signed to make Dale appropriate for Marion County Hospice:
http://www.hospiceofmarion.com/pdf/H001 ... cation.pdf
Note the line that says '6 months or less.'
_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011
|
| Thu Mar 10, 2011 10:54 pm |
|
|
|
Leone
Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
|
Re: Hospice Post removed.
_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011
Last edited by Leone on Fri Mar 11, 2011 11:35 am, edited 1 time in total.
|
| Thu Mar 10, 2011 10:58 pm |
|
|
|
Leone
Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
|
Re: Hospice For those of you who were curious about the contents of the kit, I now have opened it ... as per doctor's orders and we discovered that it is the WRONG kit. We were looking for morphine and none is in the box.
What is in the box is:
Diazepam 5 mg
Albuterol .83
Ipratropium .02
Dexamethasone 4 mg
Saline .9
Another box will be delivered to me today.
Dale is now in pain when I try to move his legs or his neck. That makes giving a bed bath very difficult. I will have an aide come and help me. We were hoping to give him the morphine ahead of the bed bath.
_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011
|
| Fri Mar 11, 2011 11:09 am |
|
|
|
mockturtle
Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3008
Location: WA
|
Re: Hospice Yes, those drugs are just for a respiratory emergency, Leone. Good thing you looked! Where's the beef??
_________________
Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
|
| Fri Mar 11, 2011 11:29 am |
|
|
|
LTCVT
Joined: Fri Jan 15, 2010 9:33 pm
Posts: 2824
Location: Vermont
|
Re: Hospice In my dad's last weeks I asked that he be given morphine prior to any moving him - to change him, to change the bed, to put another patch on his back. He was in pain all over no matter what if he had to be moved AT ALL. There was no sense in having him uncomfortable and the pain patch on his back wasn't working all that well at that point. He looked very peaceful after the morphine and slept more, but that was much better than having him in excruciating pain. Glad you are getting that fixed, Leone. Lynn
_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.
|
| Fri Mar 11, 2011 11:56 am |
|
|
|
robin
Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
|
Re: Hospice Glad you looked at the kit.
Yes, a sedating medication (liquid morphine or Ativan are often used) before any move is wise at this point.
|
| Fri Mar 11, 2011 12:54 pm |
|
|
|
robin
Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
|
Re: Hospice You might check out this post I made last night on assessing pain in those with dementia and medicating people before moving them (if they have pain on movement): viewtopic.php?f=13&t=2827
|
| Fri Mar 11, 2011 12:55 pm |
|
|
|
Leone
Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
|
Re: Hospice General Kit In the interests of full disclosure, here is the contents of the General Kit:
Prochiorperazine 25 mg suppositories
Prochlorperazine 10mg tablets
Dicyclomine 10 mg capsules
Alprazolam .5 mg tablets
Morphine 100mg/5ml solution
Chlorpromazine 30 mg/ml solution
Acetaminophen 650 mg suppositories
ABHR suppositories
and you guessed it, Haloperidal 1 mg tablets
Having these does not mean I need to use any of it.
_________________
Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011
|
| Fri Mar 11, 2011 5:52 pm |
|
|
|
mockturtle
Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3008
Location: WA
|
Re: Hospice Mostly anti-nausea, anti-anxiety and pain stuff. As you say, you don't have to use the Haldol. Just make sure no one else does, either.
_________________
Pat [67] married to Derek [83] for 37 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011.
|
| Fri Mar 11, 2011 7:14 pm |
|
|
|
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum
|
|
