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 Hospice 
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Joined: Sun Aug 29, 2010 5:46 pm
Posts: 610
Post Re: Hospice
And with all due respect to the hospice, social worker or anyone else, I would request the verification in writing (as Robin suggested). Medication is just such an important issue.

Julianne


Thu Mar 10, 2011 4:00 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
I'm not using the stuff in the box and no one else will use it without my permission. Will everyone chill out .... and back off, please?

I can't open the Box without the permission of the doctor. I will discuss with him everything in the box before it is used.

I am at home and so is Dale. .... And so is the refrigerator where the box is stored.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Mar 10, 2011 4:06 pm
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Joined: Sat Jan 03, 2009 2:59 pm
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Post Re: Hospice
Leone,
I think people were just concerned, nothing more ! That certainly was my motive for the question but I assure you I am completly chillled out !

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Irene Selak


Thu Mar 10, 2011 7:23 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
Thanks, Irene. I appreciate your concern.

As you probably know, I'm feeling overwhelmed right now. Too much is happening too fast. People coming and going here are essential but I'm stressed. One more is coming at 11 tomorrow... and then, thankfully, I have a day of rest on Saturday - before I teach again on Sunday. I also had a speaking engagement this morning... It was a group of ladies and they were a delight... but that was still one more thing on the calendar.

The last thing I need to do is quiz a doctor about what's in the stupid box... which I'm not supposed to open anyhow. :roll: I'm sure I'll find out soon enough. Thanks again, Irene.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Mar 10, 2011 8:19 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3430
Location: Vermont
Post Re: Hospice
My dad had a "comfort kit" from hospice, and we were all eternally grateful for the morphine. He was in a lot of pain from his infected pressure sore in the end, and they had stopped antibiotics (which had become ineffective anyway). I'm clueless about the pulmonary kit, Leone, since my dad didn't have one of those, but like you said, you'll eventually find out what's in it. Hope you have a peaceful night and get some good rest. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Mar 10, 2011 8:38 pm
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Re: Hospice
Thanks, Lynn. Dale started on Methadone tonight so hopefully, his pain in his legs and neck will be relieved and he will sleep more peacefully.

It was my choice to have him in our bedroom with me at night so I'm aware of his needs. It reminds me of when my infants were in a basket next to my bed. 8) I'm glad to have this time with him. He is still a precious man.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Mar 10, 2011 9:09 pm
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Joined: Wed Oct 28, 2009 11:53 am
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Location: Ocala, FL
Post Re: Hospice
Here is what our neurologist would have signed to make Dale appropriate for Marion County Hospice:

http://www.hospiceofmarion.com/pdf/H001 ... cation.pdf

Note the line that says '6 months or less.'


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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Mar 10, 2011 10:54 pm
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Location: Ocala, FL
Post Re: Hospice
Post removed.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Last edited by Leone on Fri Mar 11, 2011 11:35 am, edited 1 time in total.



Thu Mar 10, 2011 10:58 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
For those of you who were curious about the contents of the kit, I now have opened it ... as per doctor's orders and we discovered that it is the WRONG kit. We were looking for morphine and none is in the box.

What is in the box is:
Diazepam 5 mg
Albuterol .83
Ipratropium .02
Dexamethasone 4 mg
Saline .9

Another box will be delivered to me today.

Dale is now in pain when I try to move his legs or his neck. That makes giving a bed bath very difficult. I will have an aide come and help me. We were hoping to give him the morphine ahead of the bed bath.


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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Fri Mar 11, 2011 11:09 am
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Hospice
Yes, those drugs are just for a respiratory emergency, Leone. Good thing you looked! Where's the beef??

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Fri Mar 11, 2011 11:29 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3430
Location: Vermont
Post Re: Hospice
In my dad's last weeks I asked that he be given morphine prior to any moving him - to change him, to change the bed, to put another patch on his back. He was in pain all over no matter what if he had to be moved AT ALL. There was no sense in having him uncomfortable and the pain patch on his back wasn't working all that well at that point. He looked very peaceful after the morphine and slept more, but that was much better than having him in excruciating pain. Glad you are getting that fixed, Leone. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Fri Mar 11, 2011 11:56 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Hospice
Glad you looked at the kit.

Yes, a sedating medication (liquid morphine or Ativan are often used) before any move is wise at this point.


Fri Mar 11, 2011 12:54 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Hospice
You might check out this post I made last night on assessing pain in those with dementia and medicating people before moving them (if they have pain on movement):
viewtopic.php?f=13&t=2827


Fri Mar 11, 2011 12:55 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice General Kit
In the interests of full disclosure, here is the contents of the General Kit:

Prochiorperazine 25 mg suppositories
Prochlorperazine 10mg tablets
Dicyclomine 10 mg capsules
Alprazolam .5 mg tablets
Morphine 100mg/5ml solution
Chlorpromazine 30 mg/ml solution
Acetaminophen 650 mg suppositories
ABHR suppositories

and you guessed it, Haloperidal 1 mg tablets

Having these does not mean I need to use any of it.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Fri Mar 11, 2011 5:52 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Hospice
Mostly anti-nausea, anti-anxiety and pain stuff. As you say, you don't have to use the Haldol. Just make sure no one else does, either.

_________________
Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Fri Mar 11, 2011 7:14 pm
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