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 Hospice 
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
Marion County Hospice is one of the oldest in the nation - 1983. It is non-profit and is the 'sister organization' of the Palliative Care group which has been caring for Dale for the past couple of months. I've been very happy with the nurses and service they have provided. I'm expecting the same quality of care from their hospice arm.


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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Last edited by Leone on Thu Mar 10, 2011 3:54 pm, edited 1 time in total.



Mon Mar 07, 2011 9:10 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice for Dale

All medications for Dale will be supplied at no cost to me - though they sent only Senna Plus Tablets because we have a good supply of the other meds at this time. They will also send a bed table ... because the aides prefer to use that for bed baths. Dale is already in a hospital bed.

So far, I'm happy and impressed with the quality of the experience.


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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Last edited by Leone on Thu Mar 10, 2011 3:55 pm, edited 1 time in total.



Wed Mar 09, 2011 5:20 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3305
Location: Vermont
Post Re: Hospice
I am so amazed that hospice is providing his meds. I'm glad you posted this and am wondering if any of you whose LOs are on hospice are receiving meds provided by hospice? Your hospice org. is lucky to be getting funding from somewhere to cover meds, which must be an enormous expense for some of its clients. It's always interesting to see how the "same" organization can be very different from place to place. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Wed Mar 09, 2011 10:48 am
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: Hospice
My mother was on hospice and all meds were provided free of charge. They also provided the hospital bed and offered to get a portable toilet chair, I had already bought on. They were wonderful.

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Wed Mar 09, 2011 5:34 pm
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Joined: Sun Oct 04, 2009 10:18 am
Posts: 276
Location: Washington State
Post Re: Hospice
My LO wasn't accepted for hospice, but we went through the application process twice. What I was told is that medications would be paid for by hospice, but only for the condition that qualified her for hospice. So, as we were looking at "failure to thrive" as the qualifying condition this would have meant her exelon (for LBD) would not be covered. Some day we will probably have first-hand experience with how this works out in our area.

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Annie, daughter of brave Marie, dx 2007 and in ALF


Wed Mar 09, 2011 7:08 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
You are right, Annie. Admission to hospice is based on the assumption that Dale only needs to be made comfortable and that his life expectancy is six months or less. Nothing 'curative' will be given to him.

He will be medicated for pain, for Lewy related behavior (Seroquel and Klonopin before bed), and for ongoing constipation at no cost to us. We had already eliminated his other medications.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Wed Mar 09, 2011 8:38 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3305
Location: Vermont
Post Re: Hospice
Very interesting. We were still getting billed for all my dads meds, including the ones I tried to get him off of for 9 months. Hospice didn't cover any of our drugs. Luckily he had a great prescription plan but we were still paying around $200 a month for drugs. Lynn

_________________
Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Thu Mar 10, 2011 12:09 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Hospice
I think the rule is that hospice pays for medications that are associated with the qualifying hospice diagnosis.


Thu Mar 10, 2011 2:14 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Hospice
Leone,
If anyone hasn't mentioned it to you, check now into the "comfort kit." I'm thinking that's what you were told was the box of emergency supplies. Typically, the kit contains Haldol. If your husband has parkinsonism symptoms (sorry, I forget if he does), you will want to have that medication removed.
Robin


Thu Mar 10, 2011 2:17 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
It is not called a 'comfort kit.' The label on it is says "Pulmonary Kit."

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Last edited by Leone on Thu Mar 10, 2011 3:53 pm, edited 1 time in total.



Thu Mar 10, 2011 5:59 am
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Hospice
He could experience NMS with rigidity and high fever.

Maybe you could look at the kit you've received and investigate the contents.


Thu Mar 10, 2011 11:42 am
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
robin wrote:
Maybe you could look at the kit you've received and investigate the contents.
Sorry. I've been given strict orders not to open the sealed package without the approval of the attending doctor.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Mar 10, 2011 12:49 pm
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Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: Hospice
Then perhaps ask to receive written documentation as to the contents.


Thu Mar 10, 2011 3:07 pm
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Joined: Wed Oct 28, 2009 11:53 am
Posts: 969
Location: Ocala, FL
Post Re: Hospice
I have just been assured by the Social Worker that there is no haldol in the package. She said Hospice doesn't use that anymore. It does have morphine in it.

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Leone Carroll (75); wife of Dale (75) who passed away March 23, 2011


Thu Mar 10, 2011 3:47 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Hospice
There must have been changes in their kits as they did have haldol in them and I too would want to know what is in the one that is current, if they can tell you Haldol is not in there they certainly can tell you what is in there!

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Irene Selak


Thu Mar 10, 2011 3:57 pm
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