I'd like to devote a thread to simply identifying community resources for services and assistance (I wish a list like this had existed somewhere when we got on the Lewy train).

Not all of these may be useful in your personal situation, but you never know until you're pushy enough to get someone to take the time there to explain their services to you.

Here's my starter list, without comment as to which were of use:

LBDA (obviously!)
Alzheimer's Association
Parkinson's Resource Organizations (and other PD groups)
Area Agency on Aging
Veteran's Affairs (federal)
Veteran's Affairs (for your LO's individual state)
Visiting Nurse Association
Local churches or faith agencies (including one's not of your faith)

Hope others will add to this list based on your experiences. To discuss how to access service from any one particular agency, please start a new thread to make that info easy to find.

Thanks!