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Joined: Sun Feb 24, 2013 11:33 am
Posts: 5
Post New member
Hello, I am new to the forum. My husband is 58 yrs old and has been diagnosed with LBD after 3 years of uncertainty. He has no memory problems but has had personality changes. Drastic at first but up and down with meds (namenda, zyprexa, lorazepam, zoloft) He did not respond well to acricept and began having psychiatric symptoms when Dr stopped zyprexa for a period of time to see if it was causing Parkinson like symptoms. The latest crash was a panic attack when he seemed to be in an "OK" period. It has taken hin 2 weeks to recover mentally and physically-his muscles were rigid for the duration-aprox 1 hour. Any thoughts appreciated


Mon Feb 25, 2013 8:31 pm
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: New member
It sounds to me like he had neuroleptic malignant syndrome, which can be caused in PD and LBD by giving certain drugs. As I posted in other threads, a neurologist at a seminar I attended last Friday was very explicit that anyone with Parkinson's [or LBD] should not be given Haldol, Risperdal, Zyprexa or Abilify. My husband was given Risperdal in 2008, developed NMS and nearly died. Like your husband, he became very rigid, unable to talk or swallow, and ran a fever. Scary!!! I'm the only one that found the cause by researching his meds on the internet. I ran across a British medical journal [I think it was Lancet] article about it. As soon as the drug was stopped, he improved but some never do recover! :cry: Sadly, there are still quite a few practitioners who haven't gotten the message.

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Mon Feb 25, 2013 9:51 pm
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Joined: Sun Feb 24, 2013 11:33 am
Posts: 5
Post Re: New member
This was the first "panic attack" he has had since this began in Dec 2009. It has taken his more than a week to recover. In the first few days after he did run a fever-this new twist is very scary. We will be seeing his local Dr in a couple of weeks so I can discuss it with him. We just saw his the specialist in neurology in Boston a week before this happened-wish it had happened earlier. Thank you for your input


Tue Feb 26, 2013 7:31 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3436
Location: Vermont
Post Re: New member
Welcome, and so sorry about your husband's dx & med. issues. Stop back here often for info. and support. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Feb 26, 2013 1:05 pm
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: New member
Welcome to the LBDA forums and I am so sorry for your need but glad you found us. I hope the forums can become a place of helpful information and friendships for you!

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Irene Selak


Tue Feb 26, 2013 7:31 pm
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Joined: Sun Feb 24, 2013 11:33 am
Posts: 5
Post Re: New member
Thank you for the "welcomes" It will be nice to be able to throw something out there for a response. This has been a guessing game since the beginning.


Tue Feb 26, 2013 8:22 pm
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