Hello, I am new to the forum. My husband is 58 yrs old and has been diagnosed with LBD after 3 years of uncertainty. He has no memory problems but has had personality changes. Drastic at first but up and down with meds (namenda, zyprexa, lorazepam, zoloft) He did not respond well to acricept and began having psychiatric symptoms when Dr stopped zyprexa for a period of time to see if it was causing Parkinson like symptoms. The latest crash was a panic attack when he seemed to be in an "OK" period. It has taken hin 2 weeks to recover mentally and physically-his muscles were rigid for the duration-aprox 1 hour. Any thoughts appreciated

It sounds to me like he had neuroleptic malignant syndrome, which can be caused in PD and LBD by giving certain drugs. As I posted in other threads, a neurologist at a seminar I attended last Friday was very explicit that anyone with Parkinson's [or LBD] should not be given Haldol, Risperdal, Zyprexa or Abilify. My husband was given Risperdal in 2008, developed NMS and nearly died. Like your husband, he became very rigid, unable to talk or swallow, and ran a fever. Scary!!! I'm the only one that found the cause by researching his meds on the internet. I ran across a British medical journal [I think it was Lancet] article about it. As soon as the drug was stopped, he improved but some never do recover! Sadly, there are still quite a few practitioners who haven't gotten the message.

This was the first "panic attack" he has had since this began in Dec 2009. It has taken his more than a week to recover. In the first few days after he did run a fever-this new twist is very scary. We will be seeing his local Dr in a couple of weeks so I can discuss it with him. We just saw his the specialist in neurology in Boston a week before this happened-wish it had happened earlier. Thank you for your input

Welcome, and so sorry about your husband's dx & med. issues. Stop back here often for info. and support. Lynn

Welcome to the LBDA forums and I am so sorry for your need but glad you found us. I hope the forums can become a place of helpful information and friendships for you!

Thank you for the "welcomes" It will be nice to be able to throw something out there for a response. This has been a guessing game since the beginning.