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 New from NC 
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Joined: Tue Jun 07, 2011 3:14 pm
Posts: 36
Post New from NC
My 86 year old mom was diagnosed with Lewy Bodies last week and my father has mid stage Alzheimer's. I have no siblings and both parents live with me. I have so many concerns and look forward to hearing how others are coping. If anyone is in a similar situation, I would love to know how you are dealing with this. So far, the various agencies I have called are sympathetic, but have given me little help. This web site is amazing! Thanks to everyone who has contributed!

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Mom 87 in AL with LBD diagnosed one year ago, Dad 87 in AL with AD diagnosed 6 years ago


Fri Jun 10, 2011 10:01 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: New from NC
Welcome Ksparks,
Sorry for your need but glad you have found your way here, seems as you have been hot double and I am sorry for that, I hope you have visited our Home page as there is tons of information there too, LBDA.org, have you checked into support groups in your area, depending where you are in NC

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Irene Selak


Fri Jun 10, 2011 10:09 am
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Joined: Fri Dec 31, 2010 3:07 pm
Posts: 1039
Location: Minnesota
Post Re: New from NC
Welcome! Things are a little quiet here right now, because the forums have been down for maintenance. That will give you a little time to browse through previous posts of interest to you. Do post your questions and concerns -- you'll find a lot of support here!

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Jeanne, 68 cared for husband Coy, 86. RBD for 30+ years; LDB since 2003, Coy at home, in early stage, until death in 2012


Fri Jun 10, 2011 10:21 am
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Joined: Tue Aug 24, 2010 1:45 pm
Posts: 35
Post Re: New from NC
Hi KSparks,
Welcome to the group. We live in Durham and also have been searching for help--specifically home healthcare. This has been a long road dealing with insurance, drs., lawyers, etc. (and I'm still working on it.) It's sort of a Catch 22-there are many support groups that probably would give us good info. but unless you can get someone to stay with your LO's you can't go. Believe me I know how you feel-overwhelmed & frustrated!
You're right, this website is amazing! When a new symptom or problem appears, I immediately click-on and usually find an answer. Stay connected--I'll be happy to help if I can. Kathy

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Kathy, 63, wife & caregiver of Tom, 64 dx 2007 (later stage) lives in dementia care facility in Durham,NC


Fri Jun 10, 2011 12:25 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3341
Location: Vermont
Post Re: New from NC
I, too, welcome you and am sorry you are dealing with 2 parents with neuro. illnesses. You are probably exhausted! I hope you come here often for info. and support. All the best to you, Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Fri Jun 10, 2011 8:04 pm
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Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: New from NC
Welcome, as everyone has said, this forum is a life line. You do have a lot on your plate, good luck and make sure you take care of YOURSELF.

Gerry

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Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.


Fri Jun 10, 2011 9:37 pm
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Joined: Tue Jun 07, 2011 3:14 pm
Posts: 36
Post Re: New from NC
Thanks for all the encouragement!!!

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Mom 87 in AL with LBD diagnosed one year ago, Dad 87 in AL with AD diagnosed 6 years ago


Mon Jun 13, 2011 9:22 pm
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3341
Location: Vermont
Post Re: New from NC
We're here for you! You certainly have more than your share of challenges. I hope you'll come to this supportive community often. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Mon Jun 13, 2011 9:28 pm
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