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 My mom is gone but not forgotten 
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Joined: Sun May 01, 2011 3:36 pm
Posts: 1
Post My mom is gone but not forgotten
My mom had LBD for 13yrs but was not diagnosed until 5yrs ago. Like most of you we went to many doctors looking for answers she had test for stroke/seizures - the list goes on. We finally met with a doctor who said she seems like another patient of mine that has LBD. I went to this website right away for research - help - and answers to my questions on what do we do now to make my mom better. Sadly we found out there was no cure.....but that was not going to be our mom. Everytime we were faced with another obstacle we faced it head on. We got physical/speech theraphy - medical equipment around the house to make life more independent for her. We monitored her bathroom trips checking her urine for order marked her bowel movements down to make sure she was going regular. Keep fluids going around the clock. This woman who I am proud to call my MOM was a fighter.....but one day the infection got the best of her and she didn't have the strength anymore to keep fighting even though she had the will too. What I want to tell each and everyone of you who is dealing with this disease....keep your self strong it is a disease no one should have to go through and you can make a difference in how that person spends the last years of their will be greatful that you did. My mom taught me so much that I will pass along to my kids.......LOVE YOU MOM! 8)

Tue Jun 07, 2011 12:34 am

Joined: Sun Oct 21, 2007 4:18 pm
Posts: 835
Location: Acton, MA
Post Re: My mom is gone but not forgotten
Lynette, Sorry to hear of your moms passing. We know that is the only way to escape this horrible disease. Your mom raised a wonderful caring daughter, she must be very proud. Take care of yourself.

Gerry 67, cared for Frank 71, married 49 yrs; dx 2004, passed away October 26, 2011.

Tue Jun 07, 2011 5:50 am

Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: My mom is gone but not forgotten
Welcome Lynette,
I thought you were already a member here but I guess I was wrong, I am sorry for your's and you families loss of your Mom. This is a family of a Father and 10 siblings that I had the pleasure of speaking with many times and it is a family that will forever stay imprinted on my heart. Thank you for coming forward at this time to tell of your family experience with caring for your Mom, I know how much you loved her and how much your loss is !

Irene Selak

Tue Jun 07, 2011 11:55 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3441
Location: Vermont
Post Re: My mom is gone but not forgotten
Lynette - my condolences on the loss of your mom. Lynn

Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.

Tue Jun 07, 2011 3:46 pm
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