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 siblings both w/lbd 
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Joined: Wed Feb 23, 2011 9:44 pm
Posts: 1
Post siblings both w/lbd
hello, i am glad to have found this site. my dad was diagnosed w/ lbd in 2004 at age 64, his only sibling, his sister also was diagnosed w/ lbd in 2009 at age 67, one in my family, for generations never came down w alzheimers, dementia or any other brain issues and most of them lived into there 80s. has anyone ever heard of siblings getting lbd?

Thu Mar 03, 2011 9:15 am

Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3441
Location: Vermont
Post Re: siblings both w/lbd
Hi Thomas - there's probably no way of knowing if this is just random selection or if there is a genetic component. I am sure you will get a lot of anecdotal feedback, but since LBD wasn't even a "real" diagnosis till a few years ago, it is doubtful that there can be any scientific answer at this point. I am so sorry for your double-whammy of your dad and his sibling with LBD. Are you the primary caregiver? Please stop here often for support and advice whenever you need it. Lynn

Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.

Thu Mar 03, 2011 11:59 am

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: siblings both w/lbd
We do have one family locally where LBD (and PD) seems to be running in the family. They've looked through old medical records and have discovered it goes back 3 generations. This family has contacted various medical facilities to find out which facility offers the best genetics testing and counseling, given the geographic location of all family members. Everyone is being studied -- whether they have a neurodegenerative disorder or not.

It's very important for your family members to sign up for brain donation as that's the only way the diagnosis can be confirmed. This knowledge can benefit the entire family.

Thu Mar 03, 2011 12:05 pm

Joined: Fri Aug 11, 2006 1:46 pm
Posts: 4811
Location: SF Bay Area (Northern CA)
Post Re: siblings both w/lbd
PS. You may not want to post your email address as it could be collected by a bot looking for email addresses. If you have provided it as part of your profile, then an EMAIL button will appear beneath each of your posts; people can email you without your posting your email address.

Thu Mar 03, 2011 12:08 pm

Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: siblings both w/lbd
Welcome to the LBDA forums, I can't honestly say I have heard of siblings having LBD but I am sure it is very possible, now I have heard of forms of dementia being in one family, my husband had LBD his sister has Vascular Dementia dn their Mother had Alzheimers, I have been in contact with others with several forms of dementia in same families.
I hope you find the forums a place for answers and comfort !

Irene Selak

Thu Mar 03, 2011 12:11 pm
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Joined: Sun Oct 04, 2009 10:18 am
Posts: 276
Location: Washington State
Post Re: siblings both w/lbd
My 88-YO mother has been diagnosed with LBD. She had three siblings. Her sister was diagnosed with schitzophrenia (sp) 15 years ago and has since passed away (suicide). My recollections of phone conversations with her sounded a lot like my Mom now. Hallucinations, paranoia, fluctuating cognition. I don't know about other symptoms. I believe she had LBD but I don't really know.

One of my mother's brothers (still alive) has been diagnosed with ALZ. The other brother (still alive) has no diagnosis but he has dementia. He is probably moderate to late stage and he has hallucinations/delusions.

Four out of four. They were all late-onset. 70's or 80's.

Annie, daughter of brave Marie, dx 2007 and in ALF

Thu Mar 03, 2011 2:01 pm
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