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 Just checking 
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Joined: Wed Dec 30, 2009 1:46 pm
Posts: 3213
Location: WA
Post Re: Just checking
My husband was in a dementia care facility for three months in 2009 during our move. Like many 'memory care' units, they require residents to at least self-transfer and must be ambulatory [at least by wheelchair] and mostly independent with dressing and toileting. My husband was just placed into a skilled nursing facility two months ago and he would no longer be eligible for the dementia facility as he no longer meets their criteria. He is dependent in all ADLs [activities of daily living].

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Pat [68] married to Derek [84] for 38 years; husband dx PDD/LBD 2005, probably began 2002 or earlier; late stage and in a SNF as of January 2011. Hospitalized 11/2/2013 and discharged to home Hospice. Passed away at home on 11/9/2013.


Tue Mar 01, 2011 12:28 am
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Joined: Fri Jan 15, 2010 9:33 pm
Posts: 3437
Location: Vermont
Post Re: Just checking
It's hard to know if her behavioral and mental symptoms have become worse because of the move or because of the progression of the disease itself. What concerns me is that it sounds like her personal care is not what you were expecting and not at the level it should be. That should be addressed before it gets worse. Do you have a choice of facilities? If not, I'd certainly address my concerns with the administrators who are in charge of her care, the cleanliness of her room, whatever it is you think is not up to standard.
We were very lucky that my dad, who was not ambulatory when he went into the ALF and could do almost no ADLs, was kept there until he died. There was nothing he could do for himself the last 6 months or more, but they took care of him there anyway and the ALF got waivers from the state to keep him. I will never know why they did this for us, but we were most grateful that they did. There were times I had to talk with the administration and things were taken care of immediately.
We all need to look out for our LOs and do what has to be done so they get proper care. Lynn

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Lynn, daughter of 89 year old dad dx with possiblity of LBD, CBD, PSP, FTD, ALS, Vascular Dementia, AD, etc., died Nov. 30, 2010 after living in ALF for 18 months.


Tue Mar 01, 2011 12:52 am
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Joined: Sat Jan 03, 2009 2:59 pm
Posts: 1978
Post Re: Just checking
Craigiefam,
Welcome to the LBDA forums and I am sorry for your need, I have no comments about NH's as I kept my husband home.

Visit often and I am sure other will offer their comments for you!

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Irene Selak


Tue Mar 01, 2011 4:51 pm
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